David,

Very well handled.

Dave
Oregonian, woodworker, Engineer, Musician, and Pioneer


----- Original Message ----- 
From: "David Ferrin" <ow...@jaws-users.com>
To: <jaws-users-list@jaws-users.com>
Sent: Thursday, April 27, 2017 15:51
Subject: Re: [JAWS-Users] sorry off topic prayers and unsubscribe soon


This is a heart breaker for sure. If I enforce the rules then I would have
to get all hard case, but in this situation I do not wish to do that as she
is dealing with such a trajaty in her life.

Yet if I don't then those folks who depend on us following the guidelines
will feel like I let them down.

This is one of those many times that I do not like sitting in the big chair
so to speak. I think that possibly she might be so kind as to post her
personal email address on here so people can contact her with their
respective messages of support.

I have one that I will share with her alone and not on the list as it is not
for public viewing. I have her email address, but then again I have
everybody's' email address as whenever anybody comes or goes it crosses my
desk alerting me of such things.

What do you say Zoe, do you want to post your personal address so folks can
contact you privately? Trust me in the past couple of years this house has
had its share of problems and major operations. So I know what difficulties
arise in a persons' life.

-----Original Message----- 
From: wayne smith
Sent: Thursday, April 27, 2017 5:49 PM
To: jaws-users-list@jaws-users.com
Subject: Re: [JAWS-Users] sorry off topic prayers and unsubscribe soon

Dear Zoe, please know that we are praying for you as you bare a heavy cross.
We will send out your prayer request to all who we know will pray.

Wayne

-----Original Message-----
From: JAWS-Users-List [mailto:jaws-users-list-boun...@jaws-users.com] On
Behalf Of zoe fiogkos
Sent: Thursday, April 27, 2017 2:35 PM
To: jaws-users-list@jaws-users.com
Subject: [JAWS-Users] sorry off topic prayers and unsubscribe soon

Hi my fellow elf's and Mrs. Clause. Hope you are all doing ok. Unfortunately
I have no choice, I have to unsubscribe from all the email groups I belong
to. I haven't been able to check email and be online for a long time and it
seems I will be out of things for much longer. When I turned on my laptop
this morning I had over fifteen thousand emails waiting for me. Given my
situation I just can't keep up anymore. I pray that one day I recover and
are able to join my favourite groups again.  My family is against me telling
people what's wrong but I feel in writing this email I'm also helping myself
to come to grips with my illness. I will remain subscribed a few more days
so that I may read your thoughts in hopes that your words might help me to
continue to fight this awful illness.
Again I'm sorry for the off topic post and I hope the moderators can find it
in their hearts to forgive me, and if one day I recover I hope they will
remember me and let me back in to my favourite mailing groups.
Before I tell you all my story, I would like to thank each and every one of
you for either your help on various topics, or your individual private help
through the phone or private email, or your messages of getting to know me,
or your words of encouragement when it came to the mac, jaws, NVDA, windows
10, household tips, cooking instructions, prayers, and harmless chit chat.
If I offended anyone in anyway, or gave anyone a hard time please forgive
me.
Here's my unbelievable story.
Last August I was doing a lot of gardening mostly weeding to be honest. I
was on my hands and knees from morning to night pulling weeds and keeping my
property clean. I am grateful to the good Lord for blessing me to have such
a lovely property but it's old and no one ever took care of the garden. The
result is weeds on top of my weeds. Chemicals are forbidden here in Canada,
and I haven't been able to find an affordable solution, so I'm left with
fighting weeds on a daily bases. I am a sun lover and adore summer, last
summer was the first time in my life that I couldn't wait for summer to be
over. I was exhausted and I have nothing to remember for my 2016 summer
except pulling weeds all most every day for the whole entire spring, summer,
and fall.
In August I noticed 2 mosquito bites on my elbow and 2 on my inner left
thigh. The bites were very itchy just like normal mosquito bites, so I
didn't think anything of it. I also noticed my nails were black underneath.
I thought it was dirt from the garden, to spite that I was showering every
single day and cleaning my nails, the next morning they would be filthy
again. Again I thought it strange but I justified it in my head as to much
gardening. In August my husband and I visited a few local restaurants and
spent two nights in a motel in north Ontario for a weekend away.
I wanted to try my hand at building a small business doing something I love
so I decided to start making my own bracelets and selling them online. I
have always loved costume jewellery and to spite my vision problems, I have
been taught that there is nothing I can't do. My mother always said "try and
if you fail, oh well, life goes on. Try different things until you find
something you are good at and you love doing." So I talked to my mom and
husband and they both backed me as they always do. My mother who adores me
spent over six thousand dollars to buy my supplies, and encouraged me on a
daily bases. My husband turned half of my computer room into a work space
with special lighting, magnifying contraptions, shelving, etc. My husband
and mom bought me bins with dividers and I spent months sorting beads and
other supplies by color, size, and type. I got help from someone on one of
these mailing lists and he helped me to create labels to label all these
bins. Everything was going great, or so I thought.
I spent hours teaching myself how to make these beautiful bracelets, I
finally got the hang of it after much trial and error and I was ready to go.
I registered on etsy.com and opened up a Facebook small business page. I
bought more supplies to host a launching party with food, drinks, and gifts
for my guests to introduce them to my creations and my new business. While
all this was happening, I noticed in October that the mosquito bites were
not going away. They had become scabby and even more itchier.
I showed my mom and she justified it just like I had done in my mind. Due to
my type two diabetes they were taking a long time to heal as many things do
when you have diabetes.
At the beginning of November as some of you already know, I started to have
problems with my right eye. Long story short for those who don't know, I
suffer from a cornea disease. My cornea was trying to break. This had
happened before but this time it was persistent and my doctor had to try
different medications to stop the cornea from breaking. While I was battling
this cornea problem I noticed my right arm becoming very itchy and the two
mosquito bites had now become 10. I was so worried about my eye that I put
this arm problem aside until I solve this cornea issue. I thought I was
having an allergic reaction to something.
By the beginning of December my whole entire arm from the elbow down was
covered in scabby itchy pimples. I thought oh my God what's going on? I
changed my soap, detergent, and started to watch what I was eating. Due to
the cornea problem and the Christmas holidays I didn't get to my family
doctor until January.
By January both my arms were covered in these strange itchy things. The
doctor looked at my arms and fingers and said oh don't worry it's nothing,
you have scabies.
Pardon my language but I answered what the hell is scabies?
She said it's a bug sometimes humans get. Usually from sex but since your
husband doesn't have it and you didn't cheat on him you got it from the
motel you stayed at, or from a shopping mall, or someone hugged you who has
it. She continued on to say it will be gone in a few weeks. She said it's
contagious but since you will be treating yourself in the next week don't
worry about it.
She gave me a lotion with pesticide in it and told me to apply it to my
whole body from the knec down before bedtime and shower after 12 hours in
the morning. She said do not apply to face and scalp because scabies don't
go there and it's not safe.
She said repeat this process one week later. During this week of treatment
vacuum the house every day and wash linens and all clothing warn every day.

So off I went astonished at what I had heard. Where the heck did I get
something like this. Oh well I thought it will soon be over, or so I
believed.
On my way to the pharmacy to pick up the lotion full of embarrassment I kept
on thinking about the doctor's words when she said to me, "zoe I know you
are a clean person and your house is clean but this illness has nothing to
do with cleanliness, rich, or pour. Anyone can contract this disease.
She continued on to say because you are type 2 diabetic your immune system
is compromised and so it's easier for you to catch something like this. The
scabby pimples on your arms, are the bugs laying eggs and leaving their
pheacies  behind. The body has an allergic reaction to those things. I cried
all the way to the pharmacy. I went home and began the treatment as the
doctor had described. My husband and I slept in separate bedrooms and I kept
away from my mom just encase.
I put my bracelet business on hold thinking it's only a few weeks. I
laundered every day running my clothing through the dryer three times to
make sure I kill everything that could be on my clothing.
I got depressed but my family reminded me of everything the doctor told me
and I was consoled and thought to myself what am I crying about this will be
over soon.
Boy was I wrong.
One week later when I was finished the treatment I was still itchy and the
scabs were still there. I called the doctor and she confirmed what I had
read online that the body would slowly extract the pheacies and eggs and
eventually the itchiness would go away, it would take about six weeks for
everything to return to normal. By the way by mid-January I could no longer
sleep, the itchiness would keep me up all night itching, burning and crying
from pain and sleeplessness.
During January I attended the funeral of a beloved older man who had passed
away suddenly and I had visited his widow and also I visited a 96 year old
woman who I have known since I was born, who is like a grandma to me, not to
mention the hospital visits for my cornea, the Christmas parties and
services in my church. I thought my God I hope no one caught this from me
and at the thought I was devastated. My family consoled me saying Zoe you
didn't know what it was, it's not your fault.
During the six week period after the treatment I decided to take precautions
just encase. I stopped going to church, visiting people, I didn't allow
anyone to come over, I didn't do daily things like banking, grocery
shopping, etc. I continued to vacuum every day, cleaned the house
diligently, and of course laundry every single day. My husband and I stayed
away from each other accept for the occasional peck on the lips quickly.
I was miserable but this would soon be over.
I began to make Easter plans, my bracelet launching party, plans, and
planned for my step daughters visit in the summer to meet our new
granddaughter.
Things were not as the doctor or I thought.
At the end of the six week mark, I was itchier than ever. The pimples had
spread to other parts of my body and they were scabbier than ever. I made a
doctor's appointment again and off I went.
She looked at my body and said "these are scabies I'm absolutely 100% sure,
but if the medication didn't work, I don't know what else I can do for you,
so I will send you to a specialist, a dermatologist."
In the next week after that disappointing appointment I began to feel bugs
walking in my hair, nose, and ears. My sleep was next to nothing and it
started to show. My hair was down to my waist and I sat in the garage and
cut it all off while my mother watched me and cried.
My husband went to the drug store and got me extra strength Benadryl to help
with the itchiness and sleep. I began to take one every night to knock me
out. I started to research my problem online.
What I read was not encouraging at all.
I began to read horror stories of people who had scabies and couldn't get
rid of them because these bugs have become resistant to the medications
offered by doctors. Further I read stories of people who were diagnosed with
delusional paratosis and some were even locked up in looney bins. I thought
to myself, well don't believe everything you read on the internet. Since
general medicine couldn't help me and I had gotten the call from the
doctor's office that my dermatologist's appointment would not take place
until April 10th, I decided to try some home remedies to get rid of them.
Here the hell began.
I read that diluted bleach in water would kill them. Not true, I smelled
like chlorine and about 5 bugs fell off me.
I read that 12 days of white vinegar on the body would kill them. I also
went to a natural pharmacy and they told me to shower with castile soap
every day and let the soap dry on me. When my body absorbed the castile soap
then I should slather neem oil all over my body.
Neem oil smells like rotten peanuts and or diarrhea in my opinion. Every
night for the next 12 days I got in the shower, lathered the soap on me,
waited half an hour for it to dry, lathered neem oil on me from head to tow,
wore tight clothing to bed, (tights, socks, turtle neck, full flannel
sheets, and a thick winter blanket), in the morning I showered with extra
strength neem and rosemary soap. After the shower I applied coconut oil to
my whole body  and then applied vinegar 3 times a day to my whole entire
body. This was my life for the next 12 days.
Result, every day I would find 20 to 30 dead bugs on my body, so I thought
great it's working. At the end of the 12 days my skin was badly burned from
the vinegar.
Now I had hardly any hair and a burnt body and face.
I began to suffer greatly. My body was stinging and hurting and the bugs
were not gone.
I tried lice shampoo even though I read online that it doesn't work for
scabies. They were right it didn't work. I would pick them out with a lice
comb every day until my scalp was so badly scratched I couldn't take it
anymore. I tried hydrogen peroxide, it did kill many but didn't get rid of
them.

I researched more online and found a study based in Australia that said that
in a study done the only thing that killed resistant scabies was clove oil.
They are in the process of developing medicine for scabies with its base
being clove oil.
I started reading up on people who had used clove oil and most swore that
they got rid of them. There were a few people who said it didn't work for
them. I went to the natural place and bought bottles of clove oil.
I diluted clove oil with coconut oil so that it doesn't burn me and began to
apply to my whole body every day.
At night I still used the neem oil.
Didn't work, I further burned my body and the bugs were still there.
Starting to panic because I felt the bug activity getting worse, I took a
bottle of castile soap and mixed it with neem oil and began to shower with
that. Every time I applied this to my head and body I felt the bugs jumping
for fear or joy, who knows with the dam things.
I began to leave this on me and waited for 20 minutes before I washed off.
They would fall in the tub dead. I thought great something is finally
working.
After 2 weeks of this, the bugs were still not gone even though 40 50 bugs
would fall in the shower every day, sometimes even twice a day.
During all of this I read that the only thing that will get rid of them is
an old remedy of sulphur soap. I searched high and low in Toronto but no one
seemed to have it. Finally I found it on amazon and ordered it along with
sulphur cream and sulphur ointment.
Finally these things came and a new routine began.
Every morning I would shower with the castile neem oil mixture, I would
leave it on for 20 minutes and rinse off, then I would lather on the sulphur
soap, leave it on for 20 minutes and rinse off. I would get out of the
shower and lather on the coconut oil. Thousands of bugs would come out of my
skin. My mom and husband would wear gloves and pick them off my skin and
dispose of them safely. At night I would lather the neem oil all over me and
slather on sulphur ointment on my head and sulphur cream on my face.
This continued for about 10 days.
The bug population on my skin diminished every day, but at the end of 10
days my skin was blistering and drying so bad I began to have horrible pain.
Every time I got in the shower I screamed of pain. I could again not sleep
from the pain.
However the pimples were now nothing but faded scars, so I thought great
this is working so I said to myself clench your teeth and bear it if it
means these things would finally be gone.
I also found online a sight called earth clinic and they said to drink 1
litre of distilled water mixed with 1/8 teaspoon of borox every day, 5 days
on and 2 days off, also to supplement this by drinking half a teaspoon of
natural baking soda mixed with half cup of distilled water morning and
night. They explained how this destroys a fungus in their gut and doesn't
allow them to digest properly and will help to get rid of them if they are
in your blood.
I also read that the world health organization says untreated people with
scabies results in kidney failure, heart failure, and even death in some
cases.
Obviously with all of this information, pain, treatments, and isolation I
began to cry from morning to night and started to suffer physically and
emotionally.
Bracelet business? What bracelet business. Friends? I couldn't see any
friends. Email and computers? Non-existent.
Easter was coming, for me the most important and biggest holiday of my faith
and existence. I could not go to church, I could not see my goddaughter to
give her gifts for Easter. I could not cook or make plans for Easter. I
could not take communion. I began to spend my days when not treating in my
garage sitting on a plastic chair covered with a plastic bag, swotting the
bugs away and crying. With hardly any sleep it was taking its toll on me. I
couldn't eat because I was afraid the bugs would fall into my food, I began
to lose weight.
Even though the pimples were gone, and thousands of dead bugs would come out
of my body, even though my skin was now badly damaged the bugs persisted in
my scalp and face.
My husband wore a plastic bag over his body and with plastic gloves he
shaved my head and plucked my eye brows.
Now I was a worse looking freak then before. Bald, no eye brows, dermatitis,
burnt skin, tired and it showed, and still with bugs.
Finally April 10th came and I was so excited to go to the dermatologist and
finally get some help.
I wore a shower cap and gloves and went to the doctor making sure not to
touch anyone or anything for fear of spreading this awful thing to any other
human being.
I told the doctor everything I have described to you guys, and then it
happened my worst fears came true. He looked at my scalp with glasses and
examined my skin and said, "you don't have scabies, there are no signs of
crusted pimples, it's all in your head." I responded doctor don't you see
the scars on my body, I have topically treated for so long that the pimples
are gone, but the bugs are still there." He said "no they are not you have
delusional paratosis." My husband popped up and said doctor I have seen the
bugs coming out of her body, we find them dead in the tub and on her
clothing. He answered you guys are nuts, and if there is bugs then prove it
put them in a bottle and bring them to me, she has a bad case of dermatitis
and she's nuts."
I was shocked and couldn't believe my ears, everything I had read on the net
was true.
I went home and cried until my body could no longer produce any more tears.
I contacted other scabie sufferers online and they told me it would be hard
to find a doctor to help because they don't want to admit that the meds they
give you don't work. Everyone told me that those who chose to take the
bottled bugs to the doctor got no results. The doctors refused to examine
the bugs or send them for analysis and many of them were forcibly locked up.
My family and I had a long conversation and came to the conclusion that the
only thing that could help me was the home remedies and we would not take
the chance of me being locked up with a diagnosis of delusional paratosis.
By this time I could no longer do the sulphur treatment on a daily bases for
now I was greatly suffering. I lessoned the sulphur showers to 1 every three
days and still my skin was suffering.
I throughout my area rugs, laundry hampers, runners, old blankets, computer
chairs, I spent no time in my house accept at night to go to bed on my
covered bed with heavy duty plastic bags. I wore a shower cap and gloves at
night, but the shower cap caused broozes on my head. Easter came and left,
and I didn't bake like I do every year, I didn't cook, I didn't go to
church, I didn't celebrate with my family, (even though they sent me lots of
food and sweets), all I did was cry, swat bugs all day, and continued to
treat myself in hopes that this one day would be gone.
During all of this my mom who picked the bugs off me every day and cried  at
the sight of her only child suffering so much developed a lump in her
breast, (which we are waiting for results).
When she went to the doctor to have this lump checked out she told the
secretary what's going on. The secretary who is in her fourth year of
becoming a homeopath doctor suggested she try to help me.
Her teacher could help me if I could afford to pay her. The Canadian
government doesn't cover homeopathic medicine and I have no private
insurance, so I'm stuck with a kind hearted student who is paying for my
homeopath medicine and trying to help me. I know she's a student and I'm
kind of her gini pig but at this point I have no choice. I stopped all home
remedy treatments and I'm following her instructions.
Tomorrow is one week since I started following her instructions. I have had
one good night of sleep, I've hardly eaten anything in a week, The bug
activity has gotten worse, and I'm severely suffering.
Not to mention I have ten thousand dollars' worth of bracelet supplies
sitting in a room collecting dust, while my pour 70 year old mother is
trying to pay this debt off. My husband and I have maxed out our credit
cards on neem oil, clove oil, plastic bags, plastic gloves, sulphur
products, distilled water, vinegar, and anything else you can think of. We
are barely making ends meet and we are afraid of losing our house and still
looking and hoping for a cure.

I don't know if this is going to work, I thought about killing myself but my
faith in God is strong and that has kept me from taking action. I pray to
the good Lord to take pity on me and grant me his mercies and compassions
and heal me.
I pray that he guides this young student to find a solution to my problem.
Even as I write this email the bugs are attacking me. It has taken me all
day to write this email because I'm fighting with the bugs. I have to stop
every other word to get them out of my nose, ears, and swot them off my
head.
By the way I collected some bugs in a bottle and the young student looked at
them with a microscope and confirmed that I'm not crazy and these are
scabies.
Please everyone forgive me for this very long email and pray for me.
I don't know when I'll be back or even if I will ever be cured but I wanted
everyone to know why I'm leaving my favourite mailing lists, and I will miss
you all, I will miss reading your solutions to all problems related to the
mac, PC, iPhone, etc. I will miss the delicious recipes amongst other
things.
I hope that if one day I am cured you will all accept me back and then I
will let you know how I got cured if you're interested.
Again my apologies to the list owners and moderators for the off topic post
and long email.
May all of you be well and most importantly healthy. Without health nothing
is of importance.
Tell your friends and families how much you love them because you never know
what could happen to you. The worst horror movie or nightmare you have ever
seen could come true like my case.
Thanks to those who took the time to read such a long email.
By the way one of the hardest things is not being able to hug your loved
ones. My husband has cried like a child because he can't hug or kiss me. If
these bugs don't kill me, and the emotional and physical pain doesn't kill
me I will emerge stronger and with heck of a tale to tell those who want to
listen. Be well all from an isolated, suffering, but hopeful human being
somewhere in Toronto.

Sincerely
Zoe



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David Ferrin
You don't have to be crazy to run a list like this, but it does help.


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