Re: [TMIC] Dr's visit, just a follow up

[pjv1234]

I saw a news clip a few weeks ago regarding memory loss and bladder control 
meds.  It refers to "older" patients, however, my worse loss of memory time 
with TM was also during the time I was taking Detrol LA.  It might have been a 
coincidence, but the FDA is making the makers add memory loss to the list of 
possible effects in the packaging.  I have wondered if anyone is concerned 
about this?

---- Trudy Ogilvie <[EMAIL PROTECTED]> wrote: 
> Regina,I have been exactly where you are now.... what a bummer. I too am
> going to the "top" neuro in the area, but he no longer has time for me. In
> fact I came in for an appointment and it wasn't with him anymore my year was
> up and the diagnosis was TM/MS so now I am with his Nurse Practioner...
> She's awesome. We get along great and she's open to whatever I want to try.
> When I mentioned marijuana, tho I can't "quote" her, she said many patients
> have used it to help with the pain. But it's illegal here in VA and I don't
> know want to get anyone in trouble getting it for me..  Anyway, I too felt
> that Neurontin was messing with my memory (although I am 62). I did switch
> to Lyrica. I had a difficult time with Baclofen as it weakens muscles, so I
> stopped it. I don't really have much spasticity.
> I also couldn't agree with you more as to the fatigue. At times it's
> crushing!! I did try Provigil but thought it made me a little jittery.
> Did not give it much of a try. I hate taking so many meds!  Lyrica,
> cymbalta, zocor, and a bladder control med. The other problem is
> when you look "good" people forget that you might not feel "good". It's hard
> because I force myself out of bed in the morning. (As a catholic I can
> always find a 9:00 am mass somewhere :) Is it a compliment when your friend
> says "I don't ever think of you as handicapped". I love going into Wash. DC
> to the museums.... but it takes everything out of me. I shall stop
> blabbering on. I am so blessed to have friends that drag me and my
> walker/cane everywhere ..... even to Italy & Mexico....
> Regina, you have a great attitude and that is so important with this
> "affliction".....
> Have a great weekend
> Trudy
> 
> 
> On Sat, May 10, 2008 at 12:59 AM, Regina Rummel <[EMAIL PROTECTED]>
> wrote:
> 
> > I saw the neurologist yesterday.  She suggested we increase the Neurontin
> > to 900mg 3 times a day for a week, then increase to 1200mg three times a
> > week.  I asked about Lyrica in spite of my concerns since some of you didn't
> > do well with it.   She said Lyrica was similar to Neurontin, may work
> > faster, is more expensive.   I asked if we can take Neurontin and Lyrica
> > together.  She said yes and that surprised me.  Do any of you take both?
> > And about the spasticity in my hamstrings, she wants me to take 10mg
> > Bicoflen before I do my exercises.  Some of you made negative comments about
> > Bicoflen, didn't you?  I guess you take it as needed.
> >
> > I mentioned my memory slipping somewhat.  I can order a brain MRI if you
> > want to she said.  But I've had TIAs that probably are the cause.   It all
> > went very fast because I type all the questions and concerns to make sure I
> > won't forget anything.
> >
> > What's wrong with me?  Fatigue is a 10 most of the time.  Chronic fatigue
> > is truly a handicap.  I can hardly walk. My left leg is acting up big time,
> > and so is my lower back (T10-T11 lesion).  I drag myself with a walker.
> > Every little thing is a challenge, etc..  Just lifting my left foot is a
> > challenge.  Speaking of foot, Frank was right.  Prednisone will bruise you.
> > I stopped taking it, it's poison.
> >
> > I refuse to give up. I cleaned all the floors of my little apartment.  I
> > cooked shrimp and pasta and steamed asparagus for me and my daughter.  I
> > watched and read the news ignoring the blurry right eye, I did this and even
> > did that....  It's a big challenge to do every little thing.  And tomorrow
> > I'll work all day in the gift shop and check the inventory.  Once I smear
> > the new Channel foundation on my face, eye shadow and gloss on my lips,
> > perhaps if I look better, I'll feel better.
> >
> > But back to the neurologist.  She is supposed to be one of the best in
> > Marin.  But why do I feel that she can't wait to go to the next room where
> > another patient is waiting?  I honestly feel that it's because we both know
> > that there is nothing that can be done for me.  That we're both waisting our
> > time.
> >
> > Took a sleeping pill and smoked some pot (medicinal of course) so I can
> > sleep.  But I feel better talking to you who is kind enough to put up with
> > this babbling.
> > PS.  Jude, I'm thinking about you and hope you feel better and are sleeping
> > peacefully.
> >