Heather & Pieter
Fri, 16 May 2008 11:21:16 -0700
Hi Sal,
I'm glad that not taking meds is working for you. I'm also very glad to hear
that you are are now walking short distances. You have certainly come a long
way.
I currently take Gabapentin 2400mg, Baclofen 40mg and Zanaflex 4mg. I don't
have to look at a clock to tell me that it is time to take the Gabapentin. My
body tells me. My body from waist to toes becomes much more buzzy (is that a
word) and the pain starts to climb. I can tell you without even looking at a
clock that it is at least 6 or almost 7 hours since my meds which I try to take
at 5 hr. intervals throughout the day.
I currently keep in touch with Marieke in QC. She is a young woman in her
early 30's who is now graduating as a nurse. She has had TM 4 yrs and took on
the nursing challenge after she was paralyzed with TM. She takes many more
meds than I do. I have talked to her about her dosage compared to mine and how
I take soooo much less than she and much fewer types and I cannot tolerate
higher levels of meds as the side effects outweigh the good at some point. We
both agree that someone who is 30 yrs younger than myself can tolerate more
meds in their system.
I know you are even younger than she and I do applaud the fact that you have
weaned yourself from taking meds to using only vitamins. However, that option
is not open to all of us. As Robert says we are all have different tolerance
levels and different levels of pain.
Keep up your positive attitude as I know the rest of us try to daily. It is
what keeps us all going. That and the fact that we have our TM family to share
our ups and downs with.
As for me, I'm going to try and plant flowers this weekend. I'll be tired but
happy. ;)
Heather in Calgary
----- Original Message -----
From: sal r
To: Robert Pall ; tm
Sent: Friday, May 16, 2008 8:26 AM
Subject: RE: [TMIC] Neurontin & Pain
hey Robert, i definitely understand what you are saying. i am not saying to
take herbal remedies i am saying to pshyc out your brain from thinking that
taking heavy doses of meds calms your pain. taking pills is like smoking, your
body just gets use to it because you eat at a set time everyday and if you dont
get your fix then you start to feel pain. i bet if your doing an activity and
lets say you forgot to take a dose of your meds. you would be fine. but as
soon as you remember that you skipped a dose automatically your body goes into
pain.the mind is bery powerful. Mind over matter. example: i was paralyzed from
the jaw down and the doctors said i will never recover again and automatically
just because he is a doctor my mind WAS set to always believe them. but after
so many inspiring talks with people i said no, doctors dont know anything. so i
set my mind to recovery mode and now i aml in a wheelchair but walking short
distances with a walker. its what you train your mind to do and feel. Btw- just
think about Christopher Reeves...its never to late to recover...I just care for
everyone. Best of luck to you all.
Robert Pall <[EMAIL PROTECTED]> wrote:
Sal:
I appreciate your view regarding medications and the option of using
herbal remedies. I do not think there is any one answer that works for all of
us. We all are somewhat different...if TM was like fingerprints there would be
no 2 exactly alike. Considering there is no cure presently available the only
thing we can do is "pain management". I have been on almost everything...some
have worked and I am still on them and other's I have tried and felt the
problems outweighed the benefits. I am certainly willing to try herbal remedies
...heck I am willing to try anything....but I am quite certain that certain
drugs such as Lyrica, 4-Aminopyridine and Diazapan have both helped me to deal
with my condition and has allowed me to live a life as normal as possible.
For me one of the most important things this list provides is members
telling what medications has worked and not worked for them.
Rob in New Jersey
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From: sal r [EMAIL PROTECTED]
Sent: Friday, May 16, 2008 9:46 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Neurontin & Pain
i dont know if people know but they recalled neurontin at certain doses.
Those of you on Neurontin, the temporary relief of pain is not worth the long
term side effects. If you ask me, I would say that most of you are on to much
meds when not needed. doctors give you more then needed but it is up to you to
lower the dose of the meds to a comfort level. your bodies have adapted to the
meds so even if you dont need the amount your taking, when you lower it your
brain automatically detects pain. basically what im trying to say is Its all in
your head. I was on heavy dose of neurontin by the way, i was always fatigued,
i got on lyrica was better...and now im off all and just taking a vitamin.
maybe that vitamin is niot needed either but i rather have that then heavy
meds. dont you think?
"[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote:
Carol,
Neurontin is not a medication to be used only when you have pain. I
believe that any benefit you get from taking it only when you need it is
probably from the placebo effect.
Do you know the side effects of neurontin? You should google "Neurontin"
ans read up about it.
Good luck
F
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