Re: [TMIC] Neurontin & Pain

[jrushton]

'Buzzy' is a perfect way to describe it, Heather...Jeanne

 
 
-------Original Message-------
 
From: Heather & Pieter
Date: 5/16/2008 1:20:47 PM
To: sal r;  Robert Pall;  tm
Subject: Re: [TMIC] Neurontin & Pain
 
Hi Sal,
 
I'm glad that not taking meds is working for you.  I'm also very glad to
hear that you are are now walking short distances.  You have certainly come
a long way. 
 
I currently take Gabapentin 2400mg, Baclofen 40mg and Zanaflex 4mg.  I don't
have to look at a clock to tell me that it is time to take the Gabapentin. 
My body tells me.  My body from waist to toes becomes much more buzzy (is
that a word) and the pain starts to climb.  I can tell you without even
looking at a clock that it is at least 6 or almost 7 hours since my meds
which I try to take at 5 hr. intervals throughout the day.
 
I currently keep in touch with Marieke in QC.  She is a young woman in her
early 30's who is now graduating as a nurse.  She has had TM 4 yrs and took
on the nursing challenge after she was paralyzed with TM.  She takes many
more meds than I do.  I have talked to her about her dosage compared to mine
and how I take soooo much less than she and much fewer types and I cannot
tolerate higher levels of meds as the side effects outweigh the good at some
point. We both agree that someone who is 30 yrs younger than myself can
tolerate more meds in their system.  
 
I know you are even younger than she and I do applaud the fact that you have
weaned yourself from taking meds to using only vitamins.  However, that
option is not open to all of us.  As Robert says we are all have different
tolerance levels and different levels of pain. 
 
Keep up your positive attitude as I know the rest of us try to daily.  It is
what keeps us all going.  That and the fact that we have our TM family to
share our ups and downs with.
  
As for me, I'm going to try and plant flowers this weekend.  I'll be tired
but happy. ;) 
 
Heather in Calgary  
 
----- Original Message ----- 
From: sal r 
To: Robert Pall ; tm 
Sent: Friday, May 16, 2008 8:26 AM
Subject: RE: [TMIC] Neurontin & Pain


hey Robert, i definitely understand what you are saying. i am not saying to
take herbal remedies i am saying to pshyc out your brain from thinking that
taking heavy doses of meds calms your pain.  taking pills is like smoking,
your body just gets use to it because you eat at a set time everyday and if
you dont get your fix then you start to feel pain.  i bet if your doing an
activity and lets say you forgot to take a dose of your meds. you would be
fine.  but as soon as you remember that you skipped a dose automatically
your body goes into pain.the mind is bery powerful. Mind over matter.
example: i was paralyzed from the jaw down and the doctors said i will never
recover again and automatically just because he is a doctor my mind WAS set
to always believe them. but after so many inspiring talks with people i said
no, doctors dont know anything. so i set my mind to recovery mode and now i
aml in a wheelchair but walking short distances with a walker. its what you
train your mind to do and feel. Btw- just think about Christopher Reeves..
its never to late to recover...I just care for everyone. Best of luck to you
all.

Robert Pall <[EMAIL PROTECTED]> wrote:
Sal:
    I appreciate your view regarding medications and the option of using
herbal remedies. I do not think there is any one answer that works for all
of us. We all are somewhat different...if TM was like fingerprints there
would be no 2 exactly alike. Considering there is no cure presently
available the only thing we can do is "pain management". I have been on
almost everything...some have worked and I am still on them and other's I
have tried and felt the problems outweighed the benefits. I am certainly
willing to try herbal remedies ...heck I am willing to try anything....but I
am quite certain that certain drugs such as Lyrica, 4-Aminopyridine and
Diazapan have both helped me to deal with my condition and has  allowed me
to live a life as normal as possible.
    For me one of the most important things this list provides is members
telling what medications has worked and not worked for them.
 
Rob in New Jersey




From: sal r [EMAIL PROTECTED] 
Sent: Friday, May 16, 2008 9:46 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Neurontin & Pain


i dont know if people know but they recalled neurontin at certain doses. 
Those of you on Neurontin, the temporary relief of pain is not worth the
long term side effects.  If you ask me, I would say that most of you are on
to much meds when not needed.  doctors give you more then needed but it is
up to you to lower the dose of the meds to a comfort level. your bodies have
adapted to the meds so even if you dont need the amount your taking, when
you lower it your brain automatically detects pain. basically what im trying
to say is Its all in your head.  I was on heavy dose of neurontin by the way
 i was always fatigued, i got on lyrica was better...and now im off all and
just taking a vitamin. maybe that vitamin is niot needed either but i rather
have that then heavy meds. dont you think?

"[EMAIL PROTECTED]" <[EMAIL PROTECTED]> wrote: 
Carol,

Neurontin is not a medication to be used only when you have pain. I believe
that any benefit you get from taking it only when you need it is probably
from the placebo effect.

Do you know the side effects of neurontin? You should google "Neurontin" ans
read up about it.

Good luck

F









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