Balmatmic
Fri, 16 May 2008 21:43:30 -0700
Sal,
I think you are trying to find a solution across the board for pain,
mobility, etc. that you think may have worked for you and have it work for
everyone. Because the doc told you you'd never move doesn't mean that anyone
that
the doc told wouldn't walk will walk if they just will themselves to do so.
That just isn't an answer that makes sense since we are all different with a
different body chemistry, pain levels, injury levels, etc. Sadly, not all
of us heal, even a little bit.
Unfortunately, I am on a high dosage of Neurontin, and have tried to
lower it a whole lot. I am determined to get it down by quite a bit, but I
struggle and have struggled for about six months already to do so. My body
goes
through so much pain just trying to drop by 200 mg/day that I couldn't do it
after trying the same level for 2 weeks. I suffered so much, my body
couldn't handle it. I am now working at rate of 100mg/day lower, and that is
for 4
weeks at a time. I am under a good deal of pain almost around the clock, but
have lowered it by 400mg/day now. I only do this because I am determined to
lower my dosage if I can. I don't like the level of pain that I am in, as
it was where I had the edge off most of the time previously. I never took
enough so I wouldn't have any pain, just to take the edge off. I now am
having
a rough time sleeping many nights as it's always worse in the middle of the
night.
Again, I'm happy that you have found something that has worked for you.
We are all finding our way through this illness the best way we can, and
trying to manage our pain in whatever works for us. We learn from each other,
but have to be careful and just share what works for us, but not make
judgement about what others do.
Hugs to all, Barbara A
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