Re: [TMIC] Mystery ER now on YouTube

[Grace M.]

>      *. *
>>
>      **
>> *Yes Trudy, it is very frightening.  It's not just the attacks
>> themselves, but the fear of dying during an acute one.  That happens
>> frequently with Devic's NMO patients and we have lost many from our support
>> and advocacy group in the two and a half years since Tim and I got it up and
>> running. *
>>
> **
*I have all of my paperwork, durable power of medical attorney etc, in order
in the event that something untowards occurs.  My best friend is in control
of it, and knows exactly what I want.*
**
*I know it sounds morbid, but it is something that I've had to face.  Right
now, there is certainly no cure, and there is no treatment that is
guaranteed to prevent relapse.*
**
*Hugs,*
*Gracie*