Re: [TMIC] Doctor Appointment

[Grace M.]

>
>  *I too learned a meds lesson the hard way.  A year or two ago, I became
>> concerned due to my daily Tegretol dose.  (1200 mgs per day for paroxysmal
>> tonic spasms.)  So......I decided to cut back my dose on my own without
>> input from my neuro.  Well, I made it to 800 mgs, or so I thought.  While at
>> a doc appointment  (Not my neuro.) at a Pittsburgh hospital, they suddenly
>> came back with a vengeance.  *
>>
>
>
>> *Now, if you've never had them, you can't possibly imagine what they're
>> like.  In my case, one leg rises to nearly hip level and locks, with the
>> knee bent and the calf and splayed out foot pointing to the right. (Think
>> male dog peeing.)  Right arms bends up under the chin with claw.  Head pulls
>> to right shoulder.  Left leg goes stiff, left arm also stiff.  For many NMO
>> patients, including myself, they don't just come once a day, or a few times
>> a day, but several times per hour round the clock.  They can last for up to
>> two full minutes and are excruciating.  Well, to make a long story short,
>> they hit me in the waiting room and the staff thought I was seizing
>> and panicked.  The next thing I knew, my rear end was slapped in
>> a wheelchair and they were calling for emergency help.   I ended up in bed
>> for several days while I slowly took my dose back up.   Now I'm on 1500 mgs
>> per day, and there is NO WAY that I will ever pull a stunt like that
>> again.   *
>>
>
>
>> *Gracie*
>>
>  *       *
>>
>