Paying a price for choosing to live in safety 

Sahana Charan 

258 people suffer varying degrees of hearing impairment in Alipur in Kolar 
district 

Mohammed Taqi (right) and relatives at his workshop in Alipur. - Photo: K. 
Gopinathan 

Bangalore: The loud and unpleasant clamour that the gemstone polishing 
equipment makes does not seem to bother 18-year-old Mohammed Taqi as he busies 
himself
in cutting and polishing stone after stone on it. 

For that matter most of the members in his family are oblivious to its jarring 
noise, or indeed to any other noise, loud or otherwise. For, 10 members of
Taqi's family, including himself, his parents, three siblings, and five nieces 
and nephews, are profoundly deaf. 

Theirs is one of the many families suffering the same condition in this remote 
village (Alipur) in Gowribidanur taluk of Kolar district. Of the nearly 14,000
people of the village, 258 suffer varying degrees of hearing impairment. 

This has been established by a survey done by the Office of the State 
Commissioner for Persons with Disabilities and the Grameena Abhyudaya Seva 
Samsthe
(GASS), a voluntary organisation working in that area. The affected persons 
belong to Shia Muslim community. 

"We have done a door-to-door survey of the families in the village and found 
that of the 2,550 households, people in 500 households are affected with one
form of disability or the other. 

"Of these, impaired hearing and physical handicaps are the most common, 
followed by low vision," said B. Venkatesh of GASS. 

This preliminary survey seems to suggest that consanguineous marriages 
(marriage among close relatives) may be the cause for the high incidence of 
hearing
disability in the village, according to a report submitted by the State 
Assistant Commissioner for Disabilities Ishrath Afza to the Chief Commissioner
for Disabilities, New Delhi, and the Union Ministry for Health and Family 
Welfare Services. 

"We have asked GASS to conduct another detailed survey to establish the extent 
of disability in the village. We have also asked the Ministry to include
Alipur village in the National Programme for Prevention of Deafness so that 
awareness can be created among the villagers about the need to avoid marriage
among close relatives," Ms. Israth told The Hindu. 

Syed Haider Hussain, a senior community leader and president of the 
Anjuman-e-Jaffariya Trust, admits that consanguineous marriages are taking 
place in
the village which could be the cause of the disability. 

"We do not want to send our daughters out of the village as they may not be 
looked after well. There have been instances where girls from the village were
married off to suitors from our community outside. But in most cases they 
returned because they were thrown out, as their husbands were alcoholic, or the
girls were ill treated. Since we don't have such vices here, we feel our 
daughters will be protected," he said. 

The village has a low crime rate, zero alcohol consumption, and no 
prostitution. But the village seems to have paid a heavy price for its 
insularity. Born
of closely related parents, the children in the village are now facing untold 
misery. 

The trust helps the needy in the village and ensures that every family in the 
community lives in a concrete house. The disability factor apart, Alipur is
a fairly prosperous village, where families encourage the children, girls 
included, to go to school.

It has five anganwadis, one Primary Health Centre, a government high school, a 
college for women and four private educational institutions. 

The village even has its own television channel, called Ali Channel, in which 
programmes are strictly monitored. 

http://www.hindu.com/2007/05/28/stories/2007052816270100.htm

Vikas Kapoor,
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