Zulekha Bee, 35, physically disabled, lives in Mendhar tehsil in Poonch, Jammu
Zulekha Bee is 35 years old, physically disabled and lives along with
her brother in kuccha house, in Chatral area, Mendhar tehsil Poonch
district, Jammu. Ever since her parents passed away some years ago,
she has been entirely dependent on her brother. She finds it a
struggle to reach the door of home from her usual position on her bed.
But her biggest hurdle is to go outside to defecate in the open, often
in the bitter cold or during rains. Zulekha Bee’s house does not have
a toilet and day after day, she has to undergo the humiliation and the
sheer physical stress of going through with her daily body functions
in a public space.
http://www.asianage.com/india/how-open-defecation-hits-disabled-909
Moved by her plight, Syed Basharat Husain Shah, a young student from
Jammu University, a social activist took up the matter with Jahangir
Hussain Mir, deputy chairman of the legislative council. Mr Mir gave a
sympathetic hearing and issued a letter to the BDO, Mendhar stating
that `20,000 should be given from the member of Legislative Council
fund for construction of a toilet for Zulekha Bee. Despite this,
action is pending. The question to be asked then is how many more
Zulekha Bees are there in this border area, a conflict zone where life
is difficult? A study conducted in 2015 on Disability, Disability
Sensitisation and Management in Poonch by Charkha, an NGO based in
Delhi, throws some light on this.

The study conducted in Mendhar, Surankote and Mandi tehsils in Poonch
shows that largest section of persons with disabilities (31 per cent)
are in the age group 10-20 years. Twenty per cent fall in an older age
group, 20-30 years. This shows that the children and youth bear the
brunt of the burden of disability here. Ten km from Haveli, the
district headquarters, in the model village of Khanetar, lives 12 year
old Ikram. Afflicted by polio, even the act of reaching school and
coming back home is a drain on this young boy.

In his case too, what is debilitating is the fact that there is no
toilet in his house. Ikram has to be taken for defecation in the open.
It is excruciating not only for him but for his family members, to
watch their child suffer so much.

The prevalence of disability in the state of Jammu & Kashmir,
according to the figures of the Central Statistics Office Ministry of
Statistics & Programme Implementation, 2011 — is exceptionally high.
It stands at 3.6 per cent as compared to the national average of 2.1
per cent.

There would be multiple reasons for this including heredity,
environmental factors and disease. In Poonch there is another factor
that can be linked to the prevalence of disability. People in this
border district have for decades lived under the shadow of violence,
fearing for their life and limb. Many of them are victims of violence,
have suffered injury that has left them disabled.

Support through institutional mechanisms and responsive systems of
governance that are disabled friendly — is thus an imperative. Sadly
this is wanting. The coverage of PHCs is poor and people in rural
areas find it difficult to access district or sub-district hospitals.
Bad road connectivity makes things only worse.

Arguably poor services and infrastructure would hit the disabled even
more as is in the case of Zulekha Bee, Ikram and several others.
Fareed Malik, a Maulvi involved with social issues says, “In Adai
village, Mandi tehsil, many disabled persons live in houses without a
toilet. On one occasion, we invited Prof. Nirmal Gupta, chairperson of
Jammu-Kashmir State Social Welfare Board. She expressed her support,
saying that she would ensure that a toilet is constructed in the house
of every disabled person. We are hopeful that this will happen. It is
painful for our disabled community members to defecate in the open
particularly during the rain or snowfall”. When there is so much of
noise being heard on the national stage on “Swachta” and when the
emphasis on ending open defecation has become a deafening cry, can
this now find resonance in Poonch?

The blitz of newspaper advertisements marking the completion of two
years of the NDA government claims big achievements on several fronts
including ending open defecation. According to government sources, one
crore 92 lakh toilets have been built for general public. A whopping
54,732 villages are reported to have moved from open defecation to
toilet usage, as individual toilets have been constructed through
government support. It is another matter whether these claims would
stand to scrutiny. But even if they do, such an achievement would be
dimmed by the present plight of Poonch where the extent of
marginalisation due to multiple factors of under-development, conflict
and poor services is arguably high. The disabled here are then doubly
disadvantaged. Can the Union government or the state government
generate the political intent and marshal its gigantic resources to
ensure that the disabled in this border region can defecate in
dignity?

The writer is the deputy editor of Charkha. This article has been
written under the National Media Award Programme instituted by NFI.
(Charkha Features


-- 
Avinash Shahi
Doctoral student at Centre for Law and Governance JNU


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