hi all,

this is something that a lot of us here will relate to. and Payal has
articulated it wonderfully. do go through it and share your thoughts.

the finance of disability

here are instances in life that teach, reinforce, and remind you; time
and again; of what is different about you when compared to many others
out in the
world. Not all of it is palatable or even halfway nice; but that pinch
of salt is always a reminder.

Yes, I know this once again is a story, a personal narrative that
comes with its disclaimers… not a whine, rant, not even seeking
sympathy or a commiserating
pat on the back, but just that; a narrative!

Today, an almost reality was nipped in the bud. A rejection notice
from a visa office said I could not travel overseas on a trip a bunch
of us had been
planning for almost over a year now. Rejections are always difficult
to come to terms with. School or college admissions; a relationship
going sour; even
being turned away by that auto driver when you so desperately want to
get to work. It stings! It reminds you of how, while you think you are
rather indispensable
in your head, the ones out there vociferously think otherwise!

Suddenly a whirlwind of emotional and intellectual activity is set in
motion in the head. A droning monologue that won’t abate or quite
down. All the distance
traversed for years convincing yourself of how relevant your life is,
takes that shuddering step back! I know this sounds like major drama,
while it is
not, it is too.

There have always been varying opinions about what drives your life:
Karma and the universe; what is meant to be? Or your own sell in the
driver’s seat
charting your life’s course.

While I believe in the meant to be, there are instances that made me
wonder if I didn’t do enough to do better? Was making all that effort
and leaving
the rest to be what is meant to be the right decision?

I look back on my life that was- both before and after acquiring my
disability. An audit of sorts and find there is an imbalance in my
statement of accounts
here. While the recovery from the denial phase of my disability I
place in the relearning column of life, the rest spent in trying to
make a go of it sees
some unhappy instances.

Being an educated, able and skilled individual with a disability, I
see myself in a strange place. The industry and trade that I am
trained and educated
in has little for me by way of gainful opportunity. Having tried high,
low and under to find a place there, I still find myself on the
outside looking
in. what happens then? A quest for the new entity that is you starts…
where does one begin though? A soft reset, looking around for using
the other skills
learned in the course of living with a disability begins. Not easy
since you are certain you knew it all and then, suddenly you don’t!

Opportunity slowly peeks out hesitantly out of a dark corner and you
are relieved to find yourself back in the game again. However small
that chance, it
is great to be on your way. But then, when that plateau stage sets in,
you find yourself uneasy again. No peaks and troughs, no push towards
climbing that
organizational ladder…nothing! You continue giving thanks for having
at least had the chance to bring in that little bit of money which
qualifies you as
an earning member of society.

Soon enough, you don’t want to be stuck in the gratitude space only.
You want to grow, match the pace of at least those individuals like
yourself who are
out there doing things for themselves. Strangely, that opportunity
wagon totally passes you by. Floundering, you start on the journey of
self-discovery
once again wondering what you are worth? What are the skills you can
upgrade to? Which are those hidden talents you might put to use? By
the time you find
any hint of that, there is a mess of roiling activity within you.
Self-doubt creeps in! all that positive energy you’ve prided yourself
embracing and reveling
in, doesn’t seem so divine and glorious anymore. Those accomplishments
you’ve been celebrated for; the brave heart and survivor you’ve been
named; that
source of inspiration you’ve been to people seems like just words!
Never one to discount anybody’s words as trivial, I find myself in
place from where
the road ahead seems too long to walk on.

The reality remains that enough opportunities haven’t presented
themselves that can validate your abilities and skills. This, when
translated to accounting
terms means a far from satisfactory state of financial health. My life
in my own eyes is relevant enough; my accomplishments many. My pride
in who I am
is intact, but that world where your bank balance and monetary wealth
defines what your status in life is, is a scary story to tell. Did I
say I tried
my best? I did! My success in translating those talents into an
addition in the credit side of my statement of accounts still eludes
me. Nothing of that
hunt for chances outside of what I do all the time has yielded
sufficiently to make me feel financially relevant. One might ask if I
think my life may
have been more successful without disability? Honestly, I don’t know.
Thinking of what is not is moot. What stays with me at this point is
the thought
of a rejected visa application and the drumming in my head that says I
have lived a long enough life with very little to show for, where the
relevance
of the financial kind matters.

Payal


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