(thought this article will be useful) 

How the pandemic affected persons with disabilities and why we should care



https://mumbai.citizenmatters.in/how-the-pandemic-affected-persons-with-disabilities-and-why-we-should-care-23946
  

How the pandemic affected persons with disabilities and why we should care | 
Citizen Matters, Mumbai
mumbai.citizenmatters.in

How the pandemic affected persons with disabilities and why we should care | 
Citizen Matters, Mumbai
About Prachi Pinglay-Plumber 1 Article

Ketan Kothari, his wife and his neighbour, are visually-impaired and above 45 
years of age. When they tried to approach various centres for vaccination
in western suburbs of Mumbai, they ended up going to three centres and got 
turned down for various reasons. The centres were too crowded with high risk
of contracting the infection, no special facility for people with disabilities 
or simply did not have vaccines.

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Kothari is one of thousands of disabled/specially-abled people, who are facing 
a number of difficulties while coping with the pandemic and now with 
vaccination.
>From accessing the web portals for registrations to requesting for passes for 
>ongoing treatments, managing without caregivers and so on, Covid-19 has had
an impact on this section of population that is yet to be understood fully.

"We could not register online as the site is not friendly for the blind 
computer users. Also, no state helpline is equipped to deal with the specific 
problems
of disabled patients, their parents and caregivers," says Kothari. "Disabled 
people, who cannot maintain social distance and need to perform their day-to-day
work and who do not have any able-bodied assistant need the vaccine on priority 
but are left in the lurch. At these vaccination centres, treatment meted
out to us (PWDs), depends on individuals, who are managing at that time. Some 
are supportive, some are not. I am very disappointed in the government of
India for not recognising us a high-risk group and making vaccines available 
early on."   

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Read more: 
COVID-19 second wave: Why no one saw this coming

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The Government did not announce any special measures for persons with 
disabilities (PWDs) while announcing vaccines for senior citizens, or those with
comorbidities. Among the categories were listed as co-morbidities, one was 
about disabilities such as multiple disabilities requiring high support needs
or intellectual disabilities.

However, disability rights activists have been pointing out that PWDs are a 
high-risk group, and recognised as such globally, because of dependence on
caregivers and inability to maintain social distancing. Rahul Ramugade, a 
wheelchair-bound cricketer and swimmer, says disabled people have been confined
to homes for over a year and need to be assisted to receive vaccines even if 
they register. "Even if the centre is on ground floor and there are a few
steps to be climbed we have to call people to lift the wheelchair and take us, 
which compromises Covid precautions. Special provisions and facilities,
such as time slots, are needed otherwise the risk of contracting Covid is very 
high."

Tony Kurien, who is visually-impaired, says people like him find it hard to 
maintain social distance because they rely on tactile cues for mobility. He
says, "There is a correlation between disability and poverty. It is highly 
likely that most disabled people are not well-off. How will they pay for this
in private hospitals and how will they manage the crowds in general hospitals?

Recognising these challenges, Adventures Beyond Barriers Foundation, has 
organised a vaccination drive for People With Disabilities in Mumbai after May
1, when vaccination opens for all above the age of 18. "Persons with 
Disabilities (PwDs) have been the world's worst-affected minority during the 
current
pandemic. Along with being highly susceptible to COVID-19, PwDs are struggling 
to get vaccinated due to immense logistical/ financial  issues. Adventures
Beyond Barriers Foundation (ABBF), a non-profit committed to disability 
inclusion and empowerment is working to facilitate the vaccination process for
PwDs living in Mumbai. We are arranging all logistical support to ensure hassle 
free experience at vaccination centres and specific vaccination camps for
PwDs and their caregivers who meet the eligibility criteria," the Foundation 
said in an appeal.

Divyanshu Ganatra, founder of ABBF, who is India's first blind solo-paraglider 
and a neuro-scientist/psychologist, says they are tying up with hospitals
and are willing to do partnerships to conduct camps in specific locations too. 
"The spectrum of people with disabilities is huge and everyone has unique
challenges. From autism to those who are immobile, everyone faces unique 
challenges and are extremely vulnerable to the pandemic. We will try to 
vaccinate
as many as we can with the help of hospitals. Presently this is for Mumbai but 
if we get enough funds and are able to connect with hospitals and volunteers
in other cities, we will organise in other cities too. It is a financial and a 
logistical challenge for PWDs."

Siddharth, who is wheel-chair bound and is helping Ganatra to organise this 
drive says, "It is important to recognise the needs of many PWDs for medical
treatments on a daily basis. Vaccinating them and their caregivers will go a 
long way in protecting them from catching Covid 19 infection. Most of the
caregivers, who are constantly with PWDs for all the tasks, don't have the 
financial capacity for vaccination in private hospitals. They should also be
recognised along with PWDs for getting the vaccines as soon as possible."

ABBF's appeal for registering with them for the vaccine is mentioned below.

(To get this support for a PwD, fill in the form below and our volunteers will 
get in touch with you. *If you are, or know a person with a disability in
Mumbai who needs COVID vaccination, please fill in this form:*

https://forms.gle/1bJGMNrUXR4DREiWA
 If you have trouble filling the form, please call our volunteers on the 
following numbers: Charmaine : 9820249152, Vaani : 9987021213)

They are also raising funds for organising this drive and other Covid relief 
work. The link to that is also mentioned below. 
https://abbf.in/project/Covid19-pwd-relief

Also read: 

list of 2 items
. BMC guide to getting a COVID bed in Mumbai
. COVID-19 lockdown: how waste segregation methods derailed in one Mumbai 
township  


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