I completely second Harish ji's thoughts. Nothing against any person/ institution but I know more than 10 people in my close circle who either haven't seen any improvement or have lost their complete eyesight despite taking expensive treatments from the mentioned institution/s. There can be more than 60 different genetic mutations which can cause RP and in each case, rate/ degree of vision loss is different. It is next to impossible to actually verify the tall claims made by these institutions. In my view, acceptance and rehabilitation is the only sustainable choice.
Cheers, Ajay On 20/04/2022, Mohib Anwar Rafay <[email protected]> wrote: > I heard, one person took some kind of acupressure treatment to cure > RP, initially he experienced good improvement, but later he lost his > remaining sight too. > > On 4/20/22, Harish Kotian <[email protected]> wrote: >> Hi >> >> >> A small piece of advice, be very sure before embarking for any therapy >> which claims cure / arrest of deterioration for RP patients. >> >> The experience is generally frustrating and leaving behind a bitter >> experience. >> >> Harish >> >> >> On 19/04/2022 23:08, Rakshit Malik wrote: >>> Apurwa, I did email you personally around 2:45 p.m. Let me write to you >>> again. >>> >>> On 19/04/2022, APURWA SABDE <[email protected]> wrote: >>>> Hi Rakshit, >>>> Please share me the details too. >>>> My mail id is :- [email protected] >>>> >>>> TIA >>>> >>>> On Tue, Apr 19, 2022, 10:22 PM Rakshit Malik <[email protected]> >>>> wrote: >>>> >>>>> Hi Mohib and Saravanan, >>>>> >>>>> I believe you should immediately Google Karela's Sreedhareeyam >>>>> Hospital, in context of their Ayurvedic medication for RP. I am based >>>>> in Delhi, where they organize related appointments only twice a year. >>>>> A friend did have his deterioration come to a standstill because of >>>>> their medication. This would be ideal, right? >>>>> >>>>> Recently, though, a to-be eye-specialist suggested a medicine that, >>>>> according to her, delays the deterioration, while not stopping it >>>>> altogether. I am happy to share the name/image of the med as well as >>>>> the contact details of the aforementioned specialist (over personal >>>>> chat). Let me know. >>>>> >>>>> Hope this helps. >>>>> >>>>> Best, >>>>> Rakshit >>>>> >>>>> >>>>> >>>>> On 19/04/2022, 'Saravanan K' via AccessIndia >>>>> <[email protected]> wrote: >>>>>> Hai Rakshit, >>>>>> >>>>>> I am also interested in taking up the treatment for RP. >>>>>> How much it is fruitful. >>>>>> Is it will help in improving the eye sight or balancing from further >>>>>> decreasing vision. >>>>>> Please provide more details. >>>>>> Share the response. >>>>>> >>>>>> Regards. >>>>>> Saravanan.K >>>>>> +91 9916512402 >>>>>> >>>>>> >>>>>> On 4/19/22, Mohib Anwar Rafay <[email protected]> wrote: >>>>>>> Hi Rakshit, please give me the contact number of the person who >>>>>>> could >>>>>>> provide me the medication to prevent further deterioration of sight >>>>>>> due to RP. My contact number is 9999996464 >>>>>>> >>>>>>> On 4/19/22, APURWA SABDE <[email protected]> wrote: >>>>>>>> Hi Rakshit, >>>>>>>> >>>>>>>> Please share me the contact details or contact me on 8087316347. >>>>>>>> >>>>>>>> TIA >>>>>>>> >>>>>>>> On Tue, Apr 19, 2022, 2:37 PM Rakshit Malik >>>>>>>> <[email protected]> >>>>>>>> wrote: >>>>>>>> >>>>>>>>> Dear Apurwa, >>>>>>>>> >>>>>>>>> My brother and I also have RP. There is medication available that >>>>>>>>> stops deterioration from continuing. I am happy to share more on >>>>>>>>> this, >>>>>>>>> if you have not explored the alternative already. Besides, it can >>>>>>>>> be >>>>>>>>> great to have a disability-sensitive mental health professional. I >>>>>>>>> would be more than willing to share some contacts. Let me know. >>>>>>>>> >>>>>>>>> Best, >>>>>>>>> Rakshit >>>>>>>>> >>>>>>>>> On 19/04/2022, George Abraham <[email protected]> wrote: >>>>>>>>>> If you think it prudent, you can call me on 9810934040. >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> George >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> From: [email protected] [mailto: >>>>>>>>> [email protected]] >>>>>>>>>> On Behalf Of APURWA SABDE >>>>>>>>>> Sent: Tuesday, April 19, 2022 2:23 PM >>>>>>>>>> To: [email protected] >>>>>>>>>> Subject: [AI] Panic attack >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> Hi All, >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> My brother is suffering from Retinitis pigmentosa. and it's been >>>>>>>>>> a >>>>>>>>>> month >>>>>>>>> he >>>>>>>>>> thinks that the deterioration is way quicker than it should be. >>>>>>>>>> He >>>>> is >>>>>>>>> having >>>>>>>>>> panic attacks and I don't know how to handle him as his triggers >>>>>>>>>> are >>>>>>>>> visual. >>>>>>>>>> Please help me what to do. >>>>>>>>>> >>>>>>>>>> He is just 21 years old. >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> >>>>>>>>>> TIA. >>>>>>>>>> >>>>>>>>>> -- >>>>>>>>>> Disclaimer: >>>>>>>>>> 1. Contents of the mails, factual, or otherwise, reflect the >>>>> thinking >>>>>>>>>> of >>>>>>>>> the >>>>>>>>>> person sending the mail and AI in no way relates itself to its >>>>>>>>>> veracity; >>>>>>>>>> >>>>>>>>>> 2. 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AI cannot be held liable for any commission/omission based on >>>>>>>> the >>>>>>>> mails >>>>>>>> sent through this mailing list.. >>>>>>>> >>>>>>>> >>>>>>>> Search for old postings at: >>>>>>>> http://www.mail-archive.com/[email protected]/ >>>>>>>> --- >>>>>>>> You received this message because you are subscribed to the Google >>>>>>>> Groups >>>>>>>> "AccessIndia" group. >>>>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>>>> send >>>>>>>> an >>>>>>>> email to [email protected]. >>>>>>>> To view this discussion on the web visit >>>>>>>> >>>>> https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/CAHFKw_2L6RShJWMwsiOoPVKUUcMMEOEg7As_yKu0YY1_mir0Xw%40mail.gmail.com >>>>> . >>>>>>> >>>>>>> -- >>>>>>> Mohib Anwar Rafay >>>>>>> >>>>>>> Phone: +919999996464 >>>>>>> >>>>>>> -- >>>>>>> Disclaimer: >>>>>>> 1. 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Contents of the mails, factual, or otherwise, reflect the thinking >>>>>> of >>>>> the >>>>>> person sending the mail and AI in no way relates itself to its >>>>>> veracity; >>>>>> >>>>>> 2. AI cannot be held liable for any commission/omission based on the >>>>> mails >>>>>> sent through this mailing list.. >>>>>> >>>>>> >>>>>> Search for old postings at: >>>>>> http://www.mail-archive.com/[email protected]/ >>>>>> --- >>>>>> You received this message because you are subscribed to the Google >>>>>> Groups >>>>>> "AccessIndia" group. >>>>>> To unsubscribe from this group and stop receiving emails from it, >>>>>> send >>>>>> an >>>>>> email to [email protected]. >>>>>> To view this discussion on the web visit >>>>>> >>>>> https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/CAPUyY5fvCNDuHS0So_hsedi7zaZLPe5TY2RBNJ-_P-xotYAKiA%40mail.gmail.com >>>>> . >>>>> -- >>>>> Disclaimer: >>>>> 1. Contents of the mails, factual, or otherwise, reflect the thinking >>>>> of >>>>> the person sending the mail and AI in no way relates itself to its >>>>> veracity; >>>>> >>>>> 2. AI cannot be held liable for any commission/omission based on the >>>>> mails >>>>> sent through this mailing list.. >>>>> >>>>> >>>>> Search for old postings at: >>>>> http://www.mail-archive.com/[email protected]/ >>>>> --- >>>>> You received this message because you are subscribed to the Google >>>>> Groups >>>>> "AccessIndia" group. >>>>> To unsubscribe from this group and stop receiving emails from it, send >>>>> an >>>>> email to [email protected]. >>>>> To view this discussion on the web visit >>>>> https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/CAO0mUJ6ZPstsM9Xa0-7hqCkk5M3ULupcO3KW4NGhNVxoHAJjLg%40mail.gmail.com >>>>> . >>>>> >>>> -- >>>> Disclaimer: >>>> 1. Contents of the mails, factual, or otherwise, reflect the thinking >>>> of >>>> the >>>> person sending the mail and AI in no way relates itself to its >>>> veracity; >>>> >>>> 2. AI cannot be held liable for any commission/omission based on the >>>> mails >>>> sent through this mailing list.. >>>> >>>> >>>> Search for old postings at: >>>> http://www.mail-archive.com/[email protected]/ >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups >>>> "AccessIndia" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an >>>> email to [email protected]. >>>> To view this discussion on the web visit >>>> https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/CAHFKw_2h4C9JyD9-wsRFiyMXavqJtV5S%2Bvf8f%2B9WCGk9sNV9Kg%40mail.gmail.com. >>>> >> >> -- >> Disclaimer: >> 1. Contents of the mails, factual, or otherwise, reflect the thinking of >> the >> person sending the mail and AI in no way relates itself to its veracity; >> >> 2. AI cannot be held liable for any commission/omission based on the >> mails >> sent through this mailing list.. >> >> >> Search for old postings at: >> http://www.mail-archive.com/[email protected]/ >> --- >> You received this message because you are subscribed to the Google Groups >> "AccessIndia" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> To view this discussion on the web visit >> https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/MAZPR01MB71688AA3F84A6C0B6D2168F5D2F59%40MAZPR01MB7168.INDPRD01.PROD.OUTLOOK.COM. >> > > > -- > Mohib Anwar Rafay > > Phone: +919999996464 > > -- > Disclaimer: > 1. Contents of the mails, factual, or otherwise, reflect the thinking of the > person sending the mail and AI in no way relates itself to its veracity; > > 2. AI cannot be held liable for any commission/omission based on the mails > sent through this mailing list.. > > > Search for old postings at: > http://www.mail-archive.com/[email protected]/ > --- > You received this message because you are subscribed to the Google Groups > "AccessIndia" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > To view this discussion on the web visit > https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/CAMudc6y7fburEL6du2CFV5oQfGfOpYD---EPio5nrXdrzeX9Rg%40mail.gmail.com. > -- Ajay Minocha Mobile: +91-9584076767 Email: [email protected] [email protected]. <[email protected]>in -- Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list.. Search for old postings at: http://www.mail-archive.com/[email protected]/ --- You received this message because you are subscribed to the Google Groups "AccessIndia" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion on the web visit https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/CA%2BhY0d%2BAPamYT_CmpBtHOdd__DOGh73z_23ud9yJCGMeJXxN1A%40mail.gmail.com.
