Dear all,

Request you to endorse the sector's letter to India's health minister to
restore the disability questions in National Family Health Survey 6 by
filling the simple endorsement form given in the link by *11 am tomorrow -
5th June 2023 before we send the representation *(though the form will
remain open for a while thereafter). Please spare 2 mins of your time for
this endorsement.

http://bit.ly/disability-in-nfhs

[Text of the letter, also included in the endorsement form]

5th June 2023

To

Dr. Mansukh Mandaviya

Honorable Minister

Ministry of Health and Family Welfare, Government of India

[email protected], [email protected]

Sir,

Sub: Urgent action required for inclusion of disability related questions
in National Family Health Survey 6 (NFHS-6: due to commence from July 2023)

We are writing this letter to bring to your attention that the disability
question has been dropped
<https://timesofindia.indiatimes.com/india/govt-drops-disability-related-questions-from-national-family-health-survey/articleshow/100526666.cms>
in the upcoming National Family Health Survey (NFHS) 6 and to seek your
support in reinstating the question.

Disability is an inherent aspect of human diversity. Furthermore, the
Sustainable Development Goals (SDGs) and the United Nations Convention on
the Rights of Persons with Disabilities (UNCRPD - Article 31), of which
India is a signatory, emphasize the crucial need for data collection and
disaggregated data on disability.  The decision to remove disability
related questions from its survey is contradicting the principle of “leave
no one behind”.

Whilst NFHS-5 (2019-21) had disability related questions and collected data
on disabilities, information from International Institute for Population
Sciences (IIPS) & Department for Empowerment of Persons with Disabilities
(DEPWD) confirm that NFHS-6 has dropped questions on disability from its
survey questionnaire.

Going forward, whilst NFHS needed to sharpen its questionnaire on the
disability front and make it more relevant by consulting people with
disabilities, it has reversed the process by removing disability related
questions altogether. Considering the focus of socio economic development
aspects, categorised into gender, households and bio marker subthemes and
an addition of around 50 new questions to NFHS-6,  dropping the 2 questions
on disability from the household subtheme is a discriminatory approach
against persons with disabilities and the development of health policies
and programs related to them.

With the NFHS 6 survey scheduled to commence in just a month's time, it is
imperative that the Ministry of Health and Family Welfare acts swiftly and
prioritize the inclusion of the disability question in NFHS-6, facilitate
disaggregated data and formulation of development programs of 26.8 million
persons with disabilities in the country.

We hereby urge your esteemed office to intervene and take necessary action
to reinstate the disability question in NFHS 6 within the next ten days,
failing which the disability sector will be left with no option but to seek
relief in other appropriate forums.

Looking forward to your immediate response and proactive action in this
regard ensuring the rights of 26.8 million citizens with disabilities in
India.
Sincerely,

WE, the People of India

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