Glad to share that today I met the Head of Ophthalmology at AIIMS Delhi. Although the meeting was regarding an assistive devices event, I highlighted a few important issues so they can be addressed. I am writing this from memory, so there may be minor inaccuracies. Below are the issues discussed and his responses:
1. Bulky Physical Files & Need for Digital Records I raised the issue that patient files at AIIMS become very bulky, and for Persons with Visual Impairments it is extremely difficult to manage them, especially when we visit alone. I suggested that records should be available in soft copy, as there is already a policy encouraging digital documentation. Response:: He mentioned that a digitization program has been running for more than three years. He referred to a TATA institute involved in the process, though I do not recall the full details of his explanation. 2. Fake Disability Certificate Issue I raised concerns about fake disability certificates. Response:: He acknowledged that the issue exists. Earlier, disability certificates were issued mainly by large institutes like AIIMS. However, it was argued that it would be difficult for patients—especially those from remote areas—to travel to major hospitals. Therefore, district hospitals were authorized to issue certificates. He stated that some district hospital doctors may lack proper expertise in disability assessment. 3. Alleged Fake Certificates in AIIMS Delhi I mentioned that similar issues may also occur in AIIMS Delhi. I am aware of cases where individuals allegedly received 100% disability certificates despite having around 80, 90%. I suggested that the certification criteria should be strict, but not so strict that genuine candidates suffer. Response:: He clarified that such cases may involve temporary disability certificates. 4. Temporary Certificates and Benefits I responded that even temporary certificate holders appear to receive facilities. Response (from him and Ajit Sir): They stated that temporary certificate holders do not receive all benefits. For example, they do not get job reservation or concession in buses and railways. My observation is that they may still receive certain reasonable accommodations similar to permanent certificate holders. I request clarification from group members if my understanding is incorrect. 5. RP (RPE65) Treatment Availability I asked whether RPE65 treatment for Retinitis Pigmentosa is available in AIIMS or any Indian hospital. Response:: He said he would arrange a meeting with their Retina expert, who could provide detailed information. 6. Research & Development on Retinitis Pigmentosa I shared that when I met the Head Ophthalmologist of ICMR and requested R&D on Retinitis Pigmentosa—since RPE65 treatment costs more than ₹3 crore and is unaffordable—He informed me that they do not received research proposals from hospitals. He stated that if proposals are submitted, funding can be considered. Response:: He responded positively and said they would send a proposal. 7. Lack of Audio Announcement in Lift I pointed out that one of the four lifts in the building audio announcement system is not working. Response:: He instructed his team to write a letter to the electrical department to address the issue. 8. Absence of Tactile Path I highlighted that tactile paths (yellow guiding tiles) are not available. Response:: He took the feedback positively. As mentioned earlier, this summary is based on memory and may contain minor inaccuracies. Tomorrow, 17th February, is the event. I will have another opportunity to meet him, the Chief of RP Centre, and other senior officials. If anyone has suggestions for additional improvement points that I should raise, please let me know at 8076798104. Ashutosh Singhal -- Disclaimer: 1. Contents of the mails, factual, or otherwise, reflect the thinking of the person sending the mail and AI in no way relates itself to its veracity; 2. AI cannot be held liable for any commission/omission based on the mails sent through this mailing list.. Search for old postings at: http://www.mail-archive.com/[email protected]/ --- You received this message because you are subscribed to the Google Groups "AccessIndia" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. To view this discussion visit https://groups.google.com/a/accessindia.org.in/d/msgid/accessindia/CAFL6Vg%2BpbyD193UUVF_ijY2OuxbE2_QiiLa0gLYE%2BGVLFxwACQ%40mail.gmail.com.
