In Dr. Rajat's own words: The basic premise for the registry is to get all patients of RP together, which will make it easier for patients to be matched to the latest new treatments coming for RP. Having such a data is important for epidemiological studies.
Subramani -----Original Message----- From: [email protected] [mailto:[email protected]] On Behalf Of Kanchan Pamnani Sent: Tuesday, September 29, 2009 10:02 PM To: [email protected] Subject: Re: [AI] FW: For the benefit of RP patients Hi Could you explain in more detail about this registry and how will it benefit the RP patients. If you have a database form why dont you copy it to this list. Thanks Kanchan ----- Original Message ----- From: "Subramani L" <[email protected]> To: <[email protected]> Sent: Tuesday, September 29, 2009 10:02 PM Subject: [AI] FW: For the benefit of RP patients > Sorry folks: > > The ID to send details is: [email protected]. > > Subramani > > -----Original Message----- > From: Subramani L > Sent: Tuesday, September 29, 2009 8:29 PM > To: '[email protected]' > Cc: '[email protected]' > Subject: For the benefit of RP patients > > Folks with RP: > > The work for creating the RP registry is on. Since the work is clinical > I would request all of you to write to Dr. Rajat Agrawal at > [email protected] and provide the necessary details to be a part of > this registry. The registry would provide patients to have the > information and the option to subject themselves for treatments to RP > when they become available. So, go ahead and be a part of it. > > Subramani > > > > > To unsubscribe send a message to [email protected] > with the subject unsubscribe. > > To change your subscription to digest mode or make any other changes, > please visit the list home page at > http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.i n > To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.i n Email secured by TPML Raksha Checkpoint To unsubscribe send a message to [email protected] with the subject unsubscribe. To change your subscription to digest mode or make any other changes, please visit the list home page at http://accessindia.org.in/mailman/listinfo/accessindia_accessindia.org.in
