By Rahul Cherian
Disability policy reform is not new to India and the most significant
reform exercise in the history of the disability sector is under way.
The Rights of Persons with Disabilities Bill, 2011, was prepared by
the Ministry of Social Justice and Empowerment (MOSJE) last year. This
bill is intended to bring the disability rights discourse into the
21st century in accordance with the United Nations Convention on the
Rights of Persons with Disabilities, which India has signed and
ratified. Unfortunately, ever since it was drafted in June last year,
the bill has divided the disability sector and was even rumoured to
have been rejected by the MOSJE, responsible for its drafting in the
first place.

The wrangling in the disability sector brought the bill to the
attention of the National Advisory Council (NAC), which recently gave
its recommendations on the bill. The NAC recommendations are timely
since the bill has yet to be taken up by Parliament and there is still
time for the MOSJE to rework the bill to ensure that it is legally
sound. While the NAC has made some positive suggestions, it has failed
to address certain critical issues — possibly due to the divergence
within the disability sector. It also takes some inexplicable,
contradictory positions.

The NAC correctly identifies that the detailed definition of
disability in the bill is medical in nature, which means persons with
disabilities are considered patients at a fundamental level. The NAC
recommends that disability be defined in terms of the social model,
which states that social barriers form the primary reason why persons
with disabilities cannot exercise their rights on an equal basis with
others. The implications of this change are profound because it means
remedies will aim to remove social barriers to make society inclusive
rather than use medical intervention to achieve the same objective.
Similarly, the NAC correctly recommends that families with disabled
members be given higher weightage during surveys for BPL and food
insecure households. It also recommends preferential access to all
poverty alleviation and social security programmes, including social
security allowance to households with disabled members. In addition,
the NAC states that destitute, the homeless and the poor who are
disabled, as well as single women and aged women with disabilities,
must be given specific social protection over and above any blanket
social security for all disabled persons.

Unfortunately, the NAC also creates confusion in some areas. There are
currently several laws relating to persons with disabilities. These
include the National Trust Act (for the creation and monitoring of a
trust for the welfare of persons with autism, cerebral palsy, mental
retardation and multiple disabilities), the Mental Health Act (to
regulate mental health services), the Rehabilitation Council of India
Act (RCI Act, to regulate rehabilitation services) and the Persons
with Disabilities Act ( which this new bill seeks to replace). All
these acts are in the process of being amended.

Since these amendments are being worked on in isolation, it is likely
that there are contradictions and overlaps between the amendments
being proposed. So the NAC says that all relevant laws concerning the
rights of persons with disabilities must be reviewed to avoid
inconsistencies and duplication, and amendments should be carried out
through close coordination between various ministries. From this, it
appears clear that the NAC is recommending different laws for the
different areas that these laws cover. However, NAC also recommends
that the various institutions that exist under each of the above laws/
amendments — such as the board of trustees of the National Trust as
proposed under the amendments to the National Trust Act, and the
Rehabilitation Council as proposed under the amendments to the RCI Act
— be converged into a single institution. The creation and operation
of each of these institutions is one of the primary reasons for the
existence of the National Trust Act and the RCI Act. If these
institutions are to be eliminated, then what shape will the National
Trust Act and the RCI Act take? The NAC appears not to have thought
through this issue carefully and unless this apparent contradiction is
clarified there will be complete disarray with respect to the services
and support to be provided to persons with disabilities.

Another area that the NAC should have tackled, but did not, is the
issue of reservations for persons with disabilities in the private
sector. The bill prescribes 7 per cent reservation across the board,
including in the private sector. This part of the bill is
unconstitutional, since the Constitution of India does not permit
reservation in the private sector. The NAC has completely ignored this
contradiction.

Nevertheless, the NAC has made several other recommendations, and it
appears that the bill has to be taken back to the drawing board and
redrafted. This is a good thing in my opinion as a lawyer, and even
though it may take a few more years for a new disabilities law to
become a reality, it is always better to have a well-drafted law than
a half-baked one.


The writer is with the Inclusive Planet Centre for Disability Law and Policy
http://www.indianexpress.com/news/not-another-halfbaked-law/966617/0



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Avinash Shahi
M.A. Political Science
CPS JNU
New Delhi India


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