This is beautiful! Shivani is my dear friend and a very very  courageousand
lovely person. Thank you for writing your story Shivani it will bring a load
of value to all its readers.

Warmly
Preeti

Preeti Monga
Director
 

 
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-----Original Message-----
From: AccessIndia [mailto:[email protected]] On Behalf
Of avinash shahi
Sent: Tuesday, March 04, 2014 2:43 PM
To: jnuvision; accessindia; sayeverything
Subject: [AI] Book Review: No looking back Reviewed by Shubhangi Vaidya

I'm glad to note now autobiographical accounts are being pennd down or
typed by persons with disabilities in India also.
Mrs Shivani has joined the list of ms Monga, Malini Chib, Mr Ved Mehta
and Mr L Subramani. please let me know if other people have also
written and I have missed their names?...
This trend should continue because experience is the best teacher, they say.
Literature on personal experiences of disabled people in India is very
less hope many more autobiographies will be written by many in the
days to come.
Go screen reading softwares go...
http://www.tribuneindia.com/2014/20140302/spectrum/book2.htm

Reviewed by Shubhangi Vaidya

No looking back
by Shivani Gupta
Rupa. Pages 272. Rs 295


What do you say about a 22-year-old girl whose spine is shattered in a
car crash? That her life is over before it has even begun? That she
will lead a life of dependence and misery and become a 'burden' on her
family? That she will be seen as a deficient, unattractive being who
can never hope for romance, love and conjugality? Shivani Gupta's
autobiographical account challenges these deeply entrenched cultural
stereotypes about people with disability. The author takes us through
the trauma after the accident that found her flat on her back,
paralysed, and the harrowing experiences of the public hospital where
she spent weeks staring at the dingy ceiling, inhaling the
overpowering odour of disinfectant and hearing the moans of fellow
patients. Shivani chronicles her 'rebirth' as a wheelchair user and
takes us through the everyday realities of her new life -- personal
appearance, clothing, body image, dependence upon a personal
attendant, bowel and bladder control, going out and shopping ,
re-negotiating personal relationships -- with compelling candour.

Her narrative highlights the transient, fragile nature of the bodies
we inhabit and the way society and culture "disable" people far more
than their impairments do. Converting adversity into opportunity,
Shivani embarks upon a career in rehabilitation and counseling at the
newly established Indian Spinal Injuries Centre. An opportunity to
visit and train in the UK empowers. There is a realisation that people
with disabilities do not have to live life on the margins and that
society must be responsive to their needs.

Back home, she learns how to live independently, away from the
protective and sometimes overpowering embrace of her family. She makes
new friends, and meets the man who is to become her "best friend,
lover, comrade and guide", Vikas Sharma. As opposites are wont to, the
two are attracted to each other; as professional colleagues they
strengthen each other's hands and go on to do path-breaking work
together in the areas of accessibility and inclusive environments.
Their partnership, working, studying, travelling, "learning to fly" --
results in the formation of "AccessAbility," a venture that seeks to
"change the world" and make it fit for persons with disability, and
not the other way around. In their personal lives too, a major
breakthrough takes place; their families accept their relationship and
they marry. Shivani's reflections on the dynamics of becoming an
Indian daughter-in-law and her identity as a woman with disability are
poignant. She narrates how she is carried up a flight of stairs to
meet her in-laws in their apartment and sits awkwardly in the drawing
room as the men have their Scotch and the womenfolk bustle around in
the kitchen preparing and serving food!

Four months after the wedding, on their way to Manali, Shivani and her
family find themselves in another terrible road accident in which
Vikas and his father lose their lives. Shivani's account of the days
that follow is moving. Her experience of the frailty of the corporeal
body carries over to her understanding of loss, sorrow and pain, which
are an inescapable part of the human condition. She seeks solace in
the knowledge that she was blessed with love that was reciprocated in
ample measure, whose intensity she is now able to fully appreciate.
The callousness of the medical system, the daily indignities of being
a person with disability in India, the role of family and friends and
the healing power of love. It is a must read.



-- 
Avinash Shahi
M.Phil Research Scholar
Centre for The Study of Law and Governance
Jawaharlal Nehru University
New Delhi India



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mobile phones / Tabs on:
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http://www.mail-archive.com/[email protected]/

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