Great food for thought!
Should be shared on Facebook.
Thank you!
Lissy Verghese

On 3/8/14, Sanchit Katiyar <[email protected]> wrote:
> good read, thought why not share!
>
>  Unspeakable Inequalities: Understanding the cycle of structural
> violence: A case of women with disabilities
>
> December 5, 2013
>
> by Anita Ghai
>
> As a child I dreamt being a doctor. I inherited this dream from my
> mother's aspiration. However this dream was problematic, as I had
> polio at the age of two.   Thanks to my caring parents, I thought I
> was very lucky because we found a school in my locality.  The
> experience in school was enjoyable.  Gratefully, I also found a
> Rickshaw to drop me home from school as my father would drop me to
> school.
> The guy was helpful and protective. Life was going fine. However the
> usual guy fell ill and he sent his brother to pick me up from school.
> I observed that he was helpful; however, suddenly I felt that that he
> was trying to hold me powerfully, too powerfully!
> While I sat on the seat, I felt his hands along my body. Later on I
> felt his hands at places where they were not supposed to be at all.
> When I tried  to push him away, he told me that I was ungrateful as he
> was helping.  At first I could not tell my mother what happened. I was
> scared to death of going to school.  I used several excuses such as
> illness to avoid going to school. After about a week, my mother became
> suspicious.  It was only then that I was relieved of guilt.
> My parents took extra care after that and my mother started picking me
> up from school. However the fear of this man has stayed with me, all
> along. The fear was instrumental in creating a persona, which had
> nothing to do with intimacy and sexuality issues.
> Vulnerability of disabled women
> Violence and abuse of anyone regardless of gender, age, caste or any
> constituency is never permissible. Yet, there are many realities that
> defy articulation. I recall a feminist working on issues of sexuality
> in early 1980, was surprised that I was underscoring the issues of
> violence against women with disabilities. She was shocked as to why
> anyone would 'want to assault a disabled woman'.
> Over the years, I have understood that silence really is complicity --
> because we are all affected, we are all related and we do not accept
> the violence that affects women with disabilities. The fact is that
> girls and women with disabilities are more vulnerable to exploitation
> and abuse. The fact is that they are considered as soft targets with
> the perpetrators assuming that they can get away easily. Since
> disabilities are multiple, many women are unable to comprehend or
> communicate about such acts of violence or assault they face in the
> family, neighborhood and society.
> Structural Violence
> On account of many submissions to Justice Verma Committee, it is clear
> that women and girls with disabilities in India are more vulnerable to
> violence; almost 80 per cent of women with disabilities are victims of
> violence and they are four times more likely to be victims. Disabled
> women are exposed to a higher incidence of violence compared to the
> population average.  In 2013, the latest CEDAW meeting describes women
> with disabilities as disadvantaged, despite a very clear understanding
> of women with disabilities who face violence and abuse, which is
> invisible to the society.
> Though an understanding of direct violence is still somewhat
> recognizable, but structural violence is not understood by society. To
> me, structural violence can be understood in terms of absence of
> equitable life opportunities for the disabled -- with specific
> reference to voices of the disabled women.
> The stories reveal the many assumptions and inequities that contribute
> to their marginalization. Structural violence, according to Johan
> Galtung, exists when some groups, classes, genders, nationalities, etc
> are assumed to have, and in fact do have, more access to goods,
> resources, and opportunities. This unequal advantage is built into the
> very social, political and economic systems that govern societies,
> states and the world.
> Women with disabilities are marginalised in a patriarchal society in
> India. This social and cultural apartheid is sustained by the
> existence of a built environment, which lacks amenities for the
> disabled and solely caters to the needs of the more complete and
> able-bodied 'Other'. This social disregard coupled with experiences of
> social, economic and political subjugation deny the disabled a voice,
> a space, and even power, to disrupt these deeply entrenched normative
> ideals that deprive them of their social presence and any semblance of
> identity.
> To survive as a disabled person in such a blinkered social environment
> has meant coming to terms with unequal power relationships. This is
> reflected most clearly by socio-economic status, health issues,
> gender, has been confirmed by a range of studies that show that
> disabled adults are likely to have low earnings or be unemployed.
> Critical is the fact that the disabled woman faces a hostile
> environment designed for "able-bodied' society, enhancing the subtle
> violence.
> Lack of access to communication, be it in the form of availability of
> Braille materials, augmentative measures or sign language training,
> heightens the oppression experienced by disabled women specifically in
> reporting abusive experiences.
> To my mind, disability does imply broken persons, as an inadequate
> society is neatly tuned to the workings of normative structure serving
> political and economic ends. Such disregard results in an ignoring of
> pertinent issues with regard to disability from the point of view of
> both active social struggle as well as contemporary academic
> discourse. Unfortunately such incipient stigmatisation against those
> who carry the insidious label of 'disability' with them results in an
> exclusion that creates both a sense of despair and distress, often
> leading to a suppression and non- recognition of the 'lack' that marks
> them initially as different.
> Thus violence is not a direct act of any decision or action made by a
> particular person but a result of an unequal distribution of resource
> creating a lack of agency that can fight the inhumane society.
> Structural violence has the effect of denying disabled people
> significant rights such as economic opportunity, social and political
> equality, a sense of satisfaction and self-esteem.  When disabled
> people experience starvation, have serious issues of sanitation and
> basic requirements such as toilets, and are locked in their houses,
> violence is taking place. Similarly, when disabled women suffer for
> reproductive rights and have diseases that could be prevented, when
> they are denied a decent education, housing, an opportunity to play,
> to grow, to work, to raise a family, to express themselves
> spontaneously, a kind of violence is occurring -- even if bullets or
> landmines are not used! Violence happens when optimum potential
> enhancement of a disabled woman is denied.
> Institutional Violence
> I believe we need to understand "institutional violence" too.
> "Institutional violence" and structural violence are not synonymous as
> the former includes violence that is perpetrated by families,
> neighborhood, schools, health centers, universities, and recreational
> organisations, as opposed to individuals.
> In India, 59% of unmarried women have experienced violence from their
> natal family members, friends, and neighbours, and 54% of the
> ever-married women had faced violence from family members, natal
> family members and friends. Also, 78% of the women who faced violence
> had experienced severe mental distress as a result of violence.
> Another area of concern is the possibility of disabled women
> experiencing subtle abuse and being controlled, rather than being in
> control of caring relationships. Most of the women who have shared
> their experiences with me feared abuse and violence more from the
> extended family and acquaintances. In this sense, though the family is
> directly responsible, it does lead to a 'fear psychosis' as many of
> their accounts are treated as overactive imagination.
> As she recounted this to me, Neelima repressed her disgust. "I tried
> telling my mother about my uncle. She had such a look of disbelief as
> she said to me, 'Arre who tumhe kyon tang karega? Usko ladki ki kami
> hai? Tumne kabhi apne aap to shishe mein dekha hai?' (Why would he be
> interested you? Is he short of girls outside? Have you ever seen
> yourself in the mirror?)"
> Thus women with disabilities are especially vulnerable; being less
> able to defend themselves as the risk of assault and rape from
> acquaintances is generally greater than that from strangers.
> As an institution family tends to infantilize and patronize women with
> disabilities, and don't consider them seriously; their choices are not
> respected -- thus, denial is not respected as "denial".  Women fear
> that they may not be seen as dependable -- thus reporting abuse may not
> be believed; they also face damaging social values of being 'inferior'
> or 'throwaway', which can lead offenders to believe that the abuse is
> permitted. Many fellow disabled women report instances of male family
> members fondling a female's breasts each time they touch them. Verbal
> abuses are also prevalent, such as "you are a burden to society" and
> "we are so unfortunate. We cannot even kill you".
> Violence by caregivers
> Further, the relationship between the caregiver and care recipients is
> problematic as the creation of dependency is linked to the  'burden'
> caused by the disabled person. One of the primary reasons for
> under-reporting is the fact that 99% of the perpetrators are family,
> friends and/or caretakers (such as residential staff like maids,
> drivers etc.) Perpetrators often use threats, such as deprivation of
> food, charger of the wheel chair, social activity or personal care in
> order to force the person with a disability to submit to the abuse.
> It's also important to note that though the women would like to report
> abuse, they often lack the resources or information to do so.
> I have noticed when women with disabilities have reached the hospital,
> they find venereal diseases or bruises all over their bodies, and yet
> the doctors, too, overlook the abuse. Even in hospitals, women often
> hear the staff hurling abuse such as "one who can't wipe her own shit
> has no right to be concerned about her hair, so let me chop off your
> damn hair".
> I feel that there is a close alliance between direct, structural and
> cultural violence, as subtle forms of violence include unfair intimate
> relationships, social exclusion, circumscribed autonomy and a higher
> tolerance for ill-treatment within segregated settings, affecting the
> daily experiences of disabled women. For instance many mothers request
> for hysterectomies. On inquiring, they say they want to control the
> menstrual hygiene; they also fear that sexual abuse might lead to
> pregnancy.  The tragic part is that since the systems do not support
> the mothers of disabled daughters, they consider abuse as legitimate
> abuse.
> My understanding is that mainstream research on violence indicates a
> lack of understanding about issues of abuse of women with
> disabilities. As secure, accessible and protective accommodations for
> disabled women are available, I protest the label of being
> 'vulnerable'. My contention is that the issues of women with
> disabilities should be understood structurally. As a myriad political,
> economic, legal and social forces are instrumental to the ongoing
> likelihood of violence and conflict, unless the underlying
> inequalities are solved, the violence will continue to appear.
> Asexualisation of disabled women
> Finally, I would like to point to the politics of control, which gets
> activated through the nature of the 'gaze' and violence. Gaze has been
> historically established, pervasive, powerful, gendered and
> engendering structure of control and dominance in a given culture. My
> contention is that in case of the disabled women, it is not only the
> male gaze, but also an able bodied gaze, which has to be encountered.
> In my interviews with disabled women, the most difficult discussions
> are around a culture where any deviation from a norm is seen as a
> marked deviation, and the impaired body becomes a symbol of
> imperfection. The myth of the beautiful body defines the impaired
> female body as unfeminine and unacceptable. The ramifications of such
> historical rendering are to be found in the North Indian Punjabi
> culture, where, for instance, girls -- though allowed to interact with
> their male cousins -- are not allowed to sleep in the same room.
> Disabled girls, on the other hand, are under no such prohibitions, as
> they are considered sexually safe, or asexual (Ghai, 2002c). The
> assumption is that they will not perceive any of the interaction as a
> 'come on signal', nor invite a sexual encounter. It is almost as if a
> disabled girl is perceived not like other girls but 'above all that',
> which has the effect of freeing the other to imitate any action, which
> in more cases than not turns out to be exploitative.
> As the personal narrative of Simi reveals, "When I was young, I would
> be thrilled at being allowed to sleep in the same room as Vipin, who
> was my first cousin. However, as I grew up, I realised that this
> benevolent gesture of my family was to be understood as a complete
> de-sexualization of my body. Later that same cousin proposed to me and
> said that he was willing to satisfy my sexual desires, if I promised
> to keep quiet and not publicise the illicit liaison."
> Thus 'asexual objectification' highlights the disregard of the dangers
> of sexual violation to which disabled girls are exposed. Although
> never reaching the headlines, there are enough instances, where their
> own fathers and uncles have sexually abused disabled girls. As one of
> my informants, whose sister has cerebral palsy revealed: "My sister
> always had problems in communicating because of speech problems.
> However after her school gave argumentative aids to her, she shared
> with me an experience, which was absolutely horrifying. At first, I
> did not believe her, yet her tears finally convinced me. My Dad's
> younger brother took advantage of the fact that both my mother and I
> had to leave town for work and college. As there was no school that
> would accept her after the age of 13, we had to leave her at home. He
> stayed with us for a month, and my sister became a wreck during that
> time. However, as she could not communicate, we attributed her
> agitation to her disability. It was only later that we came to know
> how he raped her everyday for a month or so. The maid who was to take
> care of her also cooperated with him for money. Even after this
> episode, my father refused to break his relationship with his brother.
> After being threatened that we all would commit suicide, he stopped
> visiting our house."   (Quoted in Ghai, 2003, p.  )
> Thus violence against women with disabilities needs to be understood
> in terms of the relationship to gendered power relations and the
> historical, social and material conditions that perpetuate and
> reinforce violence. Violence not only includes physical, sexual and
> emotional abuse, as in hitting, rape and verbal abuse, but also
> incorporates other forms of violence, for example medical
> exploitation, institutional abuse and structural violence.
> Even though some positive answers have come in the form of the
> Criminal Law (Amendment) Act 2013, some problems like the gender
> neutral definition of the perpetrator in sexual offences, as is
> currently the case, is not in the interest of disabled women. Also,
> the committee was much more sensitive to the issues, but the ordinance
> has given the "bare minimum".
> My submission is that 'personal is political' is still a slogan that
> we must internalize.  Disabled women have to be a part of all the
> possible consultations that create disable friendly structures. More
> important, we need to share our lived realities, so that specter of
> violence and abuse can be eliminated.  We need to tell ourselves that
> we are entitled not only to the citizenship rights, but to connect
> with the "able" society so that a safe world can be created.
>
> Source:
>
> http://gritprajnya.wordpress.com/2013/12/05/unspeakable-inequalities-understanding-the-cycle-of-structural-violence-a-case-of-women-with-disabilities/
>
>
>
> --
> With best regards,
> Sanchit Katiyar.
>
> E-Mail:
> [email protected]
>
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> sanchit.katiyar11
>
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