http://www.tandfonline.com/doi/full/10.1080/09687599.2014.984936#abstract
At the time of writing, the UN Committee on the Rights of Persons with
Disabilities is conducting an investigation of the United Kingdom
under the Optional Protocol of the Convention on the Rights of Persons
with Disabilities (CRPD). This, together with the upcoming State
reporting process, has made the UK disability movement more aware than
ever that the United Nations can play a positive role in the struggle
for disability rights. Similar processes have occurred in the other
State Parties to the Convention that have been investigated or made
their reports. Slowly, the wheels of international human rights are
turning, and advancing the disability rights agenda across the world.
This invaluable book is the first to explore the background to the
treaty and the drafting process that resulted in this innovative
Convention. Human Rights and Disability Advocacy has a stellar list of
contributors, including Ambassador Don MacKay, Professor Ron McCallum,
Liisa Kauppinen, Gerison Lansdown, and many other people who were
intimately involved in the negotiations that lead to the CRPD.
Chapters explore sectoral issues - women, children, Deaf people,
people with intellectual disabilities - as well as technical issue
about the drafting. The reader gets an insight into how choices were
made in practice - for example, Mi Yeon Kim explains the dilemma about
whether to mainstream gender throughout the CRPD or whether to have a
separate Article on women and girls. Gerison Lansdown discusses how
the opposition of national delegations to having an article
specifically on children was eventually overcome.
Civil society was involved in drafting the CRPD to a far greater
extent than in any previous international treaty, an example of what
the editors call 'the new diplomacy'. In the negotiations, the
trade-offs between different impairment groups - people with mental
health conditions, Deaf people, people with intellectual disability -
led to the accommodation of competing positions, which do not always
translate straightforwardly into policy and practice. For example,
Article 24 on education establishes a right to inclusive education,
but it does not prohibit special schools. Both sides of the debate
describe it here as a success. But is the compromise a weakness or a
strength of the CRPD?
It is both clichéd and inaccurate to say that the CRPD creates no new
rights. As many authors here state, the CRPD is legally innovative in
several ways. For example, it further develops the connection between
legal and civil rights ('freedom from') and social, cultural and
economic rights ('freedom to ...'). Not only are both approaches
contained within the same treaty, but they are also entwined within
the same articles. It is the first-ever international treaty to
mention sign language. The CRPD also enshrines the requirement to
respect difference (Article 3d), while at the same time it promotes a
strong social model understanding of disability.
The chapter by Heidi Forrest and Phillip French about the contrast
between Australian government and Australian disability movement
interventions grows a deeper understanding of the diplomacy involved.
But overall, the reader gets a strong sense of the variety of
non-governmental organisations who were lobbying hard for their
political goals, but only an occasional glimpse of the ways in which
some countries were blocking certain positions. For example,
conservative Islamic and Catholic countries blocked more liberal
formulations about sexuality and reproductive rights. Moreover, while
the tensions between disabled people's organisations inside and
outside the International Disability Caucus are a theme throughout the
book, only in the last chapter is the question of disability movement
democracy raised. An interesting underlying question is whether the
leaders of the global disability movement were truly representing the
voices of the billion disabled people in the world, particularly those
of the Global South.
There are also omissions from the CRPD, some of which are explored
here. The poorest of the poor did not have a voice in the
negotiations: Huhana Hickey contributes a powerful chapter on
indigenous people with disability, an issue absent from the CRPD with
the sole exception of the Preamble. Another group who are not
adequately discussed in the CRPD are family members of people with
disabilities: parents of disabled children, for example, or carers of
elderly people with disability. Anna MacQuarrie and Connie
Laurin-Bowie of Inclusion International here suggest that the mention
in the Preamble (paragraph x) represents a victory for families who
support people with intellectual disabilities. I would read the lack
of either a substantive Article or any mention of caregivers as a
shortcoming of the CRPD.
In conclusion, Human Rights and Disability Advocacy is an excellent
book that gives a flavour of the Treaty negotiations and will
certainly help scholars and advocates to understand the CRPD better.
However, the contributors lack the distance and objectivity needed to
generate a truly balanced critique of a Convention that in my opinion
is as frustrating as it is innovative. Above all, there is a huge gap
between having a Treaty and achieving human rights. While latter
chapters of this collection discuss monitoring CRPD implementation and
the role of National Human Rights Institutions, it is beyond the scope
of the book to discuss the impact of the CRPD in practical terms. One
of the most moving contributions to this collection is from Lex
Grandia, an advocate for deaf-blind people. His very personal chapter
concludes:
To solve the problems of poverty is very complicated: to break the
isolation will take years and years of work. Low expectations need to
be changed into images of rights and prosperity. That is what I will
try to do now. (156)
His words apply to all disabled people, not only to people who are
deaf-blind, and highlight how much there is now to be done. Sadly, Lex
Grandia died in 2012, and so it is left for the rest of us to try and
achieve his vision.
Tom Shakespeare
University of East Anglia, UK
[email protected]
(c) 2014, Tom Shakespeare


-- 
Avinash Shahi
Doctoral student at Centre for Law and Governance JNU



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