Dear Friends

AIIMS have now started a new low vision clininc and I hope that more
services to people losing vision would start soon.

Nirmal



On 26 March 2015 at 20:59, Akash Gupta <[email protected]> wrote:

> hello,
> I had also diagnosed with retinitis pigmentosa in 1994. but I have
> come to know about assistive technologies and the real strength of a
> visually impaired in 2011. No doctors in matro cities as well as in
> AIIMS suggested me to look at the rehabilitation path. I have spoiled
> my 5 years in lack of awareness.
>
> On 24/03/2015, Sucharu <[email protected]> wrote:
> > Dear Harish,
> > Actually I was diagnosed with RP around 10 years back at age of 24.
> > It happened at Apollo hospital in Delhi and I met some senior doctors at
> > Ganga Ram Hospital, Delhi, PGIMS Chandigarh and many others for second
> > opinion. It was very early phase of my marriage, pregnancy and career
> full
> > of high emotional pressures.
> > They all detailed me at length about its causes, effects(both short term
> > and
> > far going)and even how unfortunate I am.
> > But anybody hadn't bothered about even referring to any rehabilitation
> > facilities.
> > I am actually having a very strong feeling that they themselves don't
> know
> > that what blinds are doing in India and round the globe in this age.
> > I want somebody to come forward so that rehabilitation can be made a
> > compulsory and inevitable part of diagnosis.
> > Thanks,
> > Sucharu
> >
> > -----Original Message-----
> > From: AccessIndia [mailto:[email protected]] On
> Behalf
> > Of Kotian, H P
> > Sent: Tuesday, March 24, 2015 11:44 AM
> > To: AccessIndia: a list for discussing accessibility and issues
> concerning
> > the disabled.
> > Subject: Re: [AI] NGOworking in particular for late blinds
> >
> > Dear Sucharu
> >
> > The number of acquired blindness is far more than the congenital blind.
> Now
> > amongst the acquired blind,  its spread, is very varied and it iss spread
> > out in different phase of one's life.
> >
> > The invervention in terms of rehabilitation usually has a large time
> > intervening it.
> >
> > To my understanding, your primary question, is there any support system
> > helping one during this vital stage.
> > Local NGO's should ideally filling up this requirement. Besides on a
> > national scale, there is the Helpdesk of NAB delhi and Eyeway  providing
> > this service Harish Kotian
> >
> > -----Original Message-----
> > From: AccessIndia [mailto:[email protected]] On
> Behalf
> > Of Sucharu
> > Sent: 24 March 2015 11:33
> > To: AccessIndia: a list for discussing accessibility and issues
> concerning
> > the disabled.
> > Subject: [AI] NGOworking in particular for late blinds
> >
> > Hello All,
> >
> > Is there any organization addressing to the concerns and needs of late
> > blinds in specific.
> >
> > Thanks,
> >
> > Sucharu
> >
> >
> >
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>
> --
> The most pathetic person in the world is someone who has sight but no
> vision. By "Helen Keller".
> The only thing worse than being blind is having sight but no vision.
> By "Helen Keller".
> ------
> With Warm Regards,
> Akash Gupta
> Rajasthan
> Skype: akash.gupta2412
>
>
>
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