http://www.tandfonline.com/doi/full/10.1080/09687599.2015.1014666#abstract
Disability in Eastern Europe and the Former Soviet Union is indeed a
timely book. It arrives at the 25-year anniversary of the collapse of
most of the socialist governments in Eastern and Central Europe; an
anniversary that is still largely seen as a celebration of the arrival
of democracy and freedom to the ‘Eastern bloc’. This simplifying
appraisal of the complex and difficult social transformations of the
post-socialist societies following 1989 or 1991 respectively
illustrates how needed the intervention this volume offers really is.
Resounding with the current critiques of austerity measures and
politics of exceptionalising (and undoing) disabled lives, editors
Michael Rassell and Elena Iarskaia-Smirnova sum up the ambivalent
effects of the post-socialist transformations as follows: ‘In a cruel
irony of fate, disabled people in Eastern Europe gained greater
recognition and freedom over their lives at a time when political and
economic instability undermined the potential of state welfare systems
to reduce disabling barriers’ (6). Hence, one of the important
contributions of the book lies in providing us with concrete examples
of the contradictory nature of the impacts the post-socialist
developments (and the role of international organisations and
transnational institutional bodies) had on the lives of people with
disabilities.
This book offers 12 individual essays whose thematic build-up and
interdisciplinary breadth will speak to a varied audience, and in
particular to historians, anthropologists, policy-oriented researchers
and sociologists. The book covers a historical period spanning from
the welfare aftermath of World War II to the current post-socialist
and post-Soviet developments.
The first part of the book follows a chronological time-line, opening
with a study by Beate Fieseler on the Soviet welfare (mis)treatment of
the disabled World War II veterans. Frances Bernstein lays out the
symbolical importance of the imagery of powerful (abled) hands and
arms for the official state ideology of Russia under Stalin, to then
contrast it with the failing supply of prosthetic limbs that were
largely unavailable, failing or lost in on the way to their disabled
recipients. Elena Iarskaia-Smirnova and Pavel Romanov symbolically
conclude this introductory section of the book with a discussion of
Soviet film and visual representations of disability. Their text
provides an overview of the development in ‘iconography’ of disability
from the 1920 all through to the perestroika of the late 1980s.
Touching upon the differences and similarities in the West
medicalising paradigms of disability and the tradition of Soviet
‘defectology’, Agita Lūse and Daiga Kamerāde discuss psychiatric
discourses in the context of soviet Latvia and their transformation
under the influence of western diagnostic models.
Essays by Eszter Gábor, Teodor Mladenov and Sarah Phillips constitute
the middle section of the book, primarily drawing from lived
experiences and narratives of people with disabilities. Gábor presents
experiences of the Hungarian disabled people who against all odds of
structural and systemic disadvantagement accessed university
education. Teodor Mladenov’s discussion of disablism and its
historically changing forms draws on an autobiographical essay ‘I, My
Impairment and Sex’ written by a Bulgarian disabled activist, Nina
Zhisheva, to discuss sexual silence and taboo as a central axis of
disability oppression. Sarah Phillips’s exploration of the ways
disabled Ukrainians articulate their citizenship and relationship with
the state through economic entitlement and claims to employment
highlights the central conflict in this disabled citizens–state
relationship in the notion of dobytysia. As she concludes ‘[the
disabled activists] are critical of a state that denies them full
citizenship rights yet persist in appealing to institutions of a state
as a guarantor of such rights’ (179), while, as she also elucidates,
there are presently no alternatives.
The last section of the book examines policies and institutional
framework of disability politics. Darja Zaviršek focuses on the
ideology of work, a theme that runs through many of the essays in the
book, and explores it across the larger Eastern European region. She
demasks the myth of the easy welfare reliance by claiming that the
‘majority of disabled people has always worked’ (186) and it is
through medicalisation and segregation and other effects of disablism
that ‘their economic activity lost some of the fundamental
characteristics […] associated with work’ (186), such as salary,
recognition and self-determination. Hisayo Katsui lays out the
paradoxical promises of the ‘human rights approach’ to disability in
the context of Central Asia. She weights the ways it allows to push
against the persisting medicalised and charity-based discourses
against the ways in which these promises of emancipation become hollow
and unfulfilled and serve the interest of the transnational bodies and
capital rather than the disabled people. Majda Beċireviċ and Monica
Dowling examine the policies of inclusion of children with
disabilities in Bulgaria and Bosnia-Herzegovina. Their essay further
highlights the above raised issues as it brings concrete examples of
how the international campaigns carried out in the name of inclusion
and deinstitutionalisation of disabled children may lead, if
simultaneously accompanied by the pressure to improve national economy
by reducing social protections, to severe precarity. The closing essay
by Victoria Schmidt traces the USSR legacy of the monopolistic system
of special education in the failures of the states in the Caucasus
region to provide inclusive education to children with disabilities.
Presenting a discussion of disability history in the specific
geo-political location of Eastern Europe, Disability in Eastern Europe
and the Former Soviet Union has the ambition to do more than add up
new empirical material and stir. Covering extensive geographical and
geo-political span from the Central Asian republics to Latvia to
Bosnia-Herzegovina, the book does not provide in-depth analysis as a
monograph would. The editors name the book’s ambition as to put forth
disability as one of the key analytical lenses to histories of
‘Eastern Europe’. As they argue, ‘engagement with post-socialist
specifics can enrich disability studies [and Eastern European studies]
in empirical and theoretical terms’ (1). The collection aims to offer
context-sensitive theorisations of disability and of systemic and
structural ableism. This offers a looked-for contribution to the
growing body of work engaged in deconstructing the dominance of
western/northern disability theory. That said, most of the analytical
bringing together and theoretical heavy lifting is done by the
introduction itself. Even though in most cases the essays build off
valuable and rich material and inspiring questions, much of the
analytical conclusions and larger implications are left to the reader.
Also, even as the editors call for decolonisation of scholarship, they
retain the moniker ‘former Soviet Union’ that carriers with it
legacies of Soviet imperialism as well as Cold War dualities.
The introduction calls for the use of disability as an analytical
tool, although the essays do not always convincingly deliver on the
ambition to go beyond viewing disability as an object of study. This
‘about-disability’ perspective occasionally comes out in
descriptiveness of the texts or unreflected use of disability
metaphors such as ‘debilitating injuries’ (42), or even outright
ableist turns of phrases such as ‘[disability was] tremendous cost to
the state’ (43) and ‘they [the disabled veterans] had nothing to offer
society in return’ (25). Additionally, this disconnect between the
analytical ambition of the book and its delivery also shows in the
ways in which most of the essays omit to think disability together
with and in relation to other categories of difference and social
hierarchisations. Despite intersectionality being posited in the
book’s introduction as one of its guiding principles (and some of the
authors are known for their intersectional analyses – Phillips,
Zaviršek and Iarskaia-Smirnova, to name just a few), the essays are
not working from an intersectional framework and understanding of
disability. Mladenov’s essay discussing disability in relation to
sexuality offers a notable exception here. These omissions are most
profoundly felt in relation to race and ethnicity – in particular,
when racialisation was an important mechanism of hierarchisation
within the Soviet Union and across the socialist states. Just as
importantly, race and ethnicity are key to understanding the social
changes initiated by the post-1989 and post-1991 ‘transformations’
that lead to massive displacement of racialised communities.
Ultimately, this omission helps to reinforce the ideology of European
racelessness (El-Tayeb).
This book aspires to accomplish an intervention that no single volume
can do. And this ambition is in fact another of its considerable
achievements as it opens up avenues of thought and questions with
which scholars will undoubtedly engage with in future work. As such,
despite its limits, Disability in Eastern Europe and the former Soviet
Union makes very clear how productive and generative the critical
dialogues between disability studies and Eastern European studies can
be and why we need more of them. The book genuinely enhances ways of
thinking and theorising disability by extending our knowledge of how
contexts, economic structures, political frameworks, ideological
structures and social formations shape disability and its
intersections.
Kateřina Kolářová
Charles University, Prague, Czech Republic
-- 
Avinash Shahi
Doctoral student at Centre for Law and Governance JNU



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