----- Original Message -----
From: Patria, Diah <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>
Sent: 30 Oktober 2000 16:01
Subject: RE: [balita-anda] FW: [balita-anda] Fw: Autisme, Vaksin, dan
Mercury dalam Vaksin
> Saya jadi takut dan deg-degan nih pasalnya anak saya baru aja dapat
> MMR..aduh koq jadi begini sich...tolong dong jangan menakuti-nakuti, kita
> kan orang awam, alangkah baiknya kalau informasi itu tidak meresahkan kita
> sebagai orang tua yang awam...jangan bersifat menakut-nakuti, tapi yang
> informatif dan menenangkan, jadi gimana dengan orang yang terlanjur
> imunisasikan MMR untuk anaknya..?? bagaimana solusinya..??? apakah saya
> harus tunggu anak saya samapai usia 18 bln..dan baru ketahuan
autisnya..atau
> ada keterangan lain yang lebih melegakan ttg ini, atau ada netters lain
yang
> punya kasus anakknya punya autis setelah MMR..sharing dong..biar engga
> deg-degan..
>
> Salam
> Bundanya Sulthan
Yth. Ibu Diah Patria bundanya Sulthan,
Informasi yang diberikan tidak bermaksud menakut-nakuti, tetapi untuk
meningkatkan kewaspadaan akan bahayanya.
Karena kalau kita sudah tahu sesuatu berbahaya, malahan kita jahat
bila kita tidak memberitahu orang lain.
Namun begitu, saya mohon maaf bila Ibu Diah jadi takut dan deg-degan.
Tetapi tentunya Ibu Diah tidak perlu cemas bila memang anak Ibu
paling tidak bukan termasuk autism high-risk.
Bila ingin banyak tahu mengenai ini, Ibu dapat berlangganan ke FEAT.
Berikut di bawah ini saya lampirkan artikel dari FEAT.
Wass,
Dr. Rudy Sutadi, SpA
>Message-ID: <[EMAIL PROTECTED]>
>From: FEAT <[EMAIL PROTECTED]>
>To: [EMAIL PROTECTED]
>Subject: What's Causing Autism Rise? / Response to the MMR Question
>Date: Wed, 11 Oct 2000 03:49:51 +0800
>X-Mailer: Internet Mail Service (5.5.2651.58)
>
>FEAT DAILY NEWSLETTER Sacramento, California http://www.feat.org
> "Healing Autism: No Finer a Cause on the Planet"
>______________________________________________________
>October 10, 2000
>
> Also: Response to the MMR Question
>
>
>What's Causing Autism Rise?
>
> "Part of it could be due to changes in diagnostic
>
> criteria and better diagnosis. Do we think that accounts
>
> for all of the increase? The answer is no."
>
> - Marie Bristol-Powers, coordinator of autism
> programs at the National Institute of Mental Health.
>
>
> [By Tracy Connor in today's NY Post.]
>http://www.nypost.com/health/12908.htm
>
> Developmental pediatrician Cecelia McCarton used to see one or two
>autistic children a year. These days, three or four new patients come into
>her Manhattan office every week.
> "It's the new epidemic," McCarton says - and there's plenty of
>evidence she's right.
> Professionals and parents across the city are reporting a surge in
>autism, a spectrum of developmental disabilities that can lock children in
>an invisible prison.
> Speech pathologist Margery Rappaport saw her first autistic child a
>decade ago. Now these "lost children" make up 75 percent of her client
>roster.
> "The world thinks of 'Rain Man' when they hear 'autism.' They think
>it's a death sentence. They don't realize how complex and pervasive it is,"
>Rappaport says.
> Just how many people have autism or a related disorder is unknown,
>but
>the federal government acknowledges the numbers are growing.
> In the mid-1980s, the figure tossed around was 1 in 2,500. The
>Centers
>for Disease Control and Prevention estimates as many as 1 in 500 people
>have
>autism today.
> There are indications that's a conservative estimate. A federal
>study
>in Brick Township, N.J., found 1 in 250 children with autism - and no
>reason
>why the disorder should be more prevalent there.
> Locally, the Department of Mental Health estimates there are 11,000
>people in the city with autism, but adds that number could be higher.
> The Board of Education reports a 60 percent increase in the number
>of
>students in its autism programs, from 1,544 in 1996 to 2,450 this year.
> Statewide figures have doubled, from 2,550 preschool and school-age
>kids in 1994, to 5,142 by the end of 1998.
> Sandy Levine, executive director of the Autism Foundation of New
>York,
>believes there is an "autism cluster" on Staten Island and is pushing for
>an
>epidemiological study.
> "It's worse than an epidemic because we're going to have our hands
>full for 20 or 30 years," says Levine, the father of a 6-year-old autistic
>boy. "It's heartbreaking."
> FIRST recognized in 1943, autism is a collection of communication,
>social and behavioral disorders.
> At its worst, it can leave a child trapped in an impenetrable shell.
>But many people with autism are high-functioning and others make tremendous
>strides through treatment.
> Movies like "Rain Man" and celebrities who have autistic children,
>including actor Sylvester Stallone and football stars Doug Flutie and Dan
>Marino, have helped raise awareness of autism.
> But for decades, autism was a hidden, grossly misunderstood
>condition,
>labeled as a psychological disorder caused by bad parenting by
>"refrigerator
>mothers."
> Fortunately, the medical community now realizes it's a
>neuro-biological condition that is probably influenced by more than a dozen
>genes.
> Still, scientists don't know exactly what causes it - genetics
>alone,
>a virus or a toxin - or why the numbers are skyrocketing.
> "Part of it could be due to changes in diagnostic criteria and
>better
>diagnosis," said Marie Bristol-Powers, coordinator of autism programs at
>the
>National Institute of Mental Health.
> "Do we think that accounts for all of the increase? The answer is
>no."
> The fiercest debate is over the etiology centers on vaccines, a
>powder-keg issue that has been the subject of congressional hearings and
>dueling scientific reports.
> Suspicion about childhood vaccines cropped up because children often
>exhibit autistic behaviors around 18 months of age, after receiving the
>shots.
> One 1998 British study found a correlation between the MMR injection
>(measles, mumps, rubella) and the spike in autism cases, but a subsequent
>survey swiftly shot down those findings.
> The Centers for Disease Control and Prevention and the National
>Institute of Mental Health insist there is no evidence of a link, but that
>hasn't quieted speculation that the live viruses of mercury preservatives
>in
>the vaccines trigger autism in susceptible children.
> "There's no other explanation for this huge upsurge," says Dr.
>Bernard
>Rimland of the Autism Research Institute.
>
> Whatever the cause, there's little question the sharp increase in
>autism cases has created new pressures.
> Lawyer Gary Mayerson, the father of an autistic child, recently
>launched a firm dedicated to fighting for education services for afflicted
>children.
> Studies have shown intensive one-on-one behavioral therapy is the
>most
>effective treatment for autistic kids, but good programs can cost anywhere
>from $20,000 to $100,000 a year.
> "Scientists have known about [behavioral therapy] for years, but
>school districts have been slow to pick it up or they pay lip service to it
>or they don't want to pay for it," he says.
> Mayerson has 90 clients who are pushing for school districts to pick
>up the tab for special programs, and a third of those cases will probably
>go
>to court.
> The good news, he says, is that New York City and most of New York
>state and New Jersey are progressive compared to other parts of the
>country.
> But Andrew Baumann, president of the Autism Coalition of the Empire
>State and the father of a 7-year-old autistic boy, notes that awareness
>doesn't always equal treatment.
> "There are not enough services available. You say, 'OK, I'll find a
>good service provider.' They tell you, 'Sorry, we have a five-year waiting
>list,'" he says. "Then you go to your insurance company and they say, 'We
>don't cover that.'
> "Everything is a battle. Everything is a fight," he says. "These
>kids
>are lost souls, and we just want to get them the help they deserve."
>
>
> Take Some Mystery out of Autism
> >> SUBSCRIBE <<
> Emailed to you Daily no cost:
> http://www.feat.org/FEATNews
>* * *
>
>Response to the MMR Question
>
> [In Lancet, Volume 356, Number 9237, 07 October 2000. Thanks to R.
>Miller.]
>http://www.thelancet.com/journal/vol356/iss9237/full/llan.356.9237.correspo
n
>dence.13766.1
>
> Sir--Proponents of the belief that measles-mumps-rubella (MMR)
>vaccine
>causes autism quote two strands of evidence. First, that the apparent
>increase in autism coincided with the use of the vaccine and, second, that
>behavioural regression typically occurs within a few months of vaccination.
>We were unable to substantiate either of these arguments.
> Raymond Gallup (July 8, p 161) dismisses our findings on the grounds
>that they are biased, since some of the authors are employed by a
>public-health authority. Such dismissal is absurd and insulting, especially
>in view of our record in identifying other adverse events attributable to
>MMR. His implication that we have something to hide by not immediately
>handing over our data to a US Congressional Committee is similarly ill
>informed. Ethical and legal issues surrounding patient confidentiality,
>data
>ownership, and data protection must be resolved before we could agree to
>such a request. Gallup asserts, without explanation, that our methods were
>flawed. We presume that he is quoting the false testimony that Andrew
>Wakefield gave to the US Congressonal Hearing on Autism and Immunisation on
>April 6, 2000, alleging that the Royal Statistical Society (RSS) had
>pronounced our methods to be wrong. This claim is totally unfounded, and
>Wakefield should withdraw it.
> J H Roger (July 8, p 161) states that we used the wrong study
>design.
>This is a serious criticism, and we are surprised that he did not voice it
>at the RSS meeting he describes. We reject his allegation since he
>unreasonably criticises us for not setting out to test a hypothesis that
>had
>not been formulated. The data that generated the Wakefield hypothesis
>suggest an interval of 24 h to 2 months between MMR and first behavioural
>symptoms, typically regression.1 This finding is supported by parental
>reports as typified by that of David Thrower (July 8, p 161). It therefore
>seemed imperative to test the hypothesis that there was a close temporal
>association between MMR and regression and other markers of autism. Our
>methods were entirely appropriate for this purpose.
> Roger implies that we should have used a case-control design. We
>compared first-dose MMR-vaccine coverage in autism cases born after 1987
>and
>in the denominator population: this design is akin to an unmatched
>case-control study, with the entire population as controls. The groups did
>not differ. Moreover, coverage was constant when autism incidence was
>apparently rising. These findings provide further evidence that the very
>large reported increases in autism quoted by Thrower and Gallup cannot
>reasonably be attributed to MMR vaccine.
> Roger states that the case-series method is unsuitable for
>investigating longer-term associations. In this instance, at least, it is
>not. In response to his reformulation of the Wakefield hypothesis to
>accommodate longer induction times, we did new analyses of our data. The
>results are negative, providing no support for the hypothesis that MMR
>increases the risk of autism at any time after vaccination.
> Finally, Roger wrongly states that regression occurred typically 6
>months after parental concern. Of the 93 cases with the two dates recorded,
>parental concern predated regression in only 21. The median intervals from
>concern to diagnosis we quoted are incorrect; the correct values are 19
>months for core autism (n=198), 18�5 for atypical autism (n=100), and 48
>for
>Asperger's syndrome (n=47).
> At the RSS meeting, Roger began his talk by giving a moving personal
>account of what it is like to be a parent of a child with autism. We
>strongly endorse his and other parents' calls for more research into the
>cause of this disorder. However, those who, in the absence of any evidence
>of causality, condemn a vaccine that has saved countless children from
>premature death and disability, do no service to children, parents, or
>health professionals seeking to understand the causes of this distressing
>disorder.
> - Brent Taylor, Elizabeth Miller, C Paddy Farrington
>
> -------------
>
> Capitol Autism Conference sponsored by FEAT
> October 28, 2000 Sacramento, CA
> Featured Lynn Hamilton author "Facing Autism"
> http://www.feat.org/featorg/confoct2000.htm
>
>_____________________________________________________
>
> Send Your United Way Contributions to FEAT
> Put "16106" on your Donor Card
> Combined Federal Program Number is "3180"
> Or: FEAT PO Box 255722 Sacramento CA 95865
>______________________________________________________
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>[EMAIL PROTECTED] | [EMAIL PROTECTED] | www.feat.org/search/news.asp
>* JOIN News Talk LIST: [EMAIL PROTECTED] *
>_____________________________________________________
>Editor: Lenny Schafer | Eastern Editor: | News Wire: Ron Sleith
>[EMAIL PROTECTED] | Catherine Johnson PhD | News: Kay Stammers
_________________________________________________________________________
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-----
Message-ID: <[EMAIL PROTECTED]>
From: FEAT <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]
Subject: Gov. Reform Committee Votes Unanimous, Recommends Vax Injury Law
Reforms
Date: Sat, 7 Oct 2000 10:56:30 +0800
X-Mailer: Internet Mail Service (5.5.2651.58)
FEAT DAILY NEWSLETTER Sacramento, California http://www.feat.org
"Healing Autism: No Finer a Cause on the Planet"
______________________________________________________
October 6, 2000
Also:
* Transient Virus Infection And Multiple Sclerosis - MMR Vax Gets Glare
* 'Thimerosal in Vaccines Causing Autism' on NPR
* Moms Of Kids With Autism Question Role Of Vaccines
Gov. Reform Committee Votes Unanimous, Recommends Vax Injury Law Reforms
The House Committee on Government Reform unanimously approved the
bipartisan Report of the Subcommittee on Criminal Justice, Drug Policy and
Human Resources, chaired by Rep. John L. Mica (R-FL), calling for reforms to
improve the nation's program for compensating injuries and deaths that are
related to routine childhood vaccinations. The Report was the result of a
series of Subcommittee hearings and the Committee's continuing review of the
program administered by the Department of Health & Human Services (HHS). HHS
uses the Department of Justice (DOJ) to litigate contested compensation
claims.
In presenting the report, Chairman John L. Mica stated:
"Our report addresses reforms to the program that Congress established
to compensate fairly, adequately and efficiently persons who are injured or
die as a consequence of our universal childhood vaccination policy."
Three primary recommendations of the report include: (1) a review to
improve the compensation programs' injury table that is relied upon in many
cases to determine benefit coverage; (2) greater reliance upon speedy and
fair informal dispute resolution practices to avoid expensive and protracted
litigation; and (3) the adoption of a better and fairer standard to be used
in determining vaccine injury compensation when the injuries are not covered
under the injury table.
Chairman Mica thanked the many individuals and groups who provided
information and ideas for improving the compensation program and procedures.
He stated:
"Through our hearings and follow-up work, we gained valuable ideas and
assistance from families, medial professionals, various professional
associations and groups, practicing attorneys, government agencies
(including HHS and DOJ) and others. Their concerns and ideas have been
carefully considered in this report."
Chairman Mica also commended the strong bipartisan support in Congress
that resulted in the consensus recommendations adopted by the subcommittee
and full committee. He noted:
"I am most pleased that the majority and minority staff of both the
Committee and Subcommittee have helped us develop a report that reflects our
shared interests and commitments to a fairer and better vaccine injury
compensation program."
Special thanks and recognition for support were extended to: Mr.
Burton (R-IN), Committee Chairman, Mr. Waxman (D-CA), Committee Ranking
Member, and Mrs. Mink (D-HI), Subcommittee Ranking Member Committee. Mr.
Shays (R-CT) commended Mr. Mica for his leadership in this bipartisan effort
of strong mutual interest.
Since its inception in 1986, the vaccine compensation program has
compensated more than 1,500 families for their vaccine-related injuries. The
program had been criticized in the past for adopting unnecessarily rigid
criteria in awarding compensation benefits, particularly in light of widely
acknowledged gaps in vaccine injury research. The report also calls for more
scientific research to better determine and reduce vaccine risks.
* * *
Transient Virus Infection And Multiple Sclerosis - MMR Vax Gets Glare
[Technical Abstract.]
Atkins GJ, McQuaid S, Morris-Downes MM, Galbraith SE, Amor S, Cosby
SL, Sheahan BJ
Department of Microbiology, Moyne Institute of Preventive Medicine,
Trinity College, Dublin 2, Ireland.
Multiple sclerosis (MS) is a chronic, demyelinating disease of the
CNS in which autoimmunity to myelin plays a role in pathogenesis. The
epidemiology of MS indicates that it may be triggered by a virus infection
before the age of adolescence, but attempts to associate a specific virus
with MS have produced equivocal results. Many studies of the aetiology of MS
have postulated that a persistent virus infection is involved, but transient
virus infection may provide a plausible alternative mechanism that could
explain many of the inconsistencies in MS research.
The most studied animal model of MS is chronic relapsing experimental
autoimmune encephalomyelitis (CREAE), which is induced in susceptible
animals following injection of myelin components. While CREAE cannot provide
information on the initiating factor for MS, it may mimic disease processes
occurring after an initial trigger that may involve transient virus
infection. The disease process may comprise separate triggering and relapse
phases. The triggering phase may involve sensitisation to myelin antigens as
a result of damage to oligodendrocytes or molecular mimicry.
The relapse phase could be similar to CREAE, or alternatively relapses
may be induced by further transient virus infections which may not involve
infection of the CNS, but which may involve the recrudescence of anti-myelin
autoimmunity. Although current vaccines have a high degree of biosafety, it
is suggested that the measles-mumps-rubella vaccine in particular could be
modified to obviate any possibility of triggering anti-myelin autoimmunity.
Copyright 2000 John Wiley & Sons, Ltd.
* * *
'Thimerosal in Vaccines Causing Autism' on NPR
WNYC (National Public Radio) has scheduled a 45 minutes program on
Thimerosal in Vaccine Causing Autism; to be aired on Monday, October 9, 2000
at 12:00 PM Eastern Time on AM 820, in NY, NJ and CT.
The program will be on a popular talk show, New York and Company,
hosted by Leonard Lopade. The program will be available on the Internet at
http://www.wnyc.org. Questions, call WNYC at 1-212-669-8460.
Take Some Mystery out of Autism
-->> SUBSCRIBE <<--
Emailed to you Daily no cost:
http://www.feat.org/FEATNews
* * *
Moms Of Kids With Autism Question Role Of Vaccines
[Kate Schott Dispatch Staff Reporter Tom Dodge/Dispatch.]
http://www.dispatch.com/news/newsfea00/oct00/446579.html
At play in a schoolyard, Melissa Williams, left; Hunter Odenkirk,
center; and Matthew McGlone all have autism. Their parents, who recently
attended a conference on the subject, think vaccinations are behind the
disorder. However, the Food and Drug Administration denies any link. Hunter
Odenkirk wanders the playground at Western Elementary School and eventually
climbs on the merry-go-round. As it begins to turn, the other children laugh
and scream. But 5-year-old Hunter is expressionless, as if his spirit has
been removed from his body.
Keela Odenkirk says she lost her son to autism close to four years
ago. After attending a national autism conference in San Diego recently, she
thinks she knows why. "I think he was genetically predisposed and something
toxic put him into full-blown autism," she said. That "something toxic," she
thinks, is mercury in one of the vaccines he received when he was 18 months
old to prevent such diseases as hepatitis and measles.
Autism affects about one in every 500 people worldwide, according to
the Autism Society of America. It is characterized by repetitive actions and
problems with communication and social interaction. Hunter is socially
withdrawn and doesn't speak. He uses gestures to communicate with his
parents. When he wants to go home, for example, he grabs the car keys and
shakes them.
Some vaccines contain thimerosal, a compound that includes mercury
and is used to prevent infection, the U.S. Food and Drug Administration has
reported. "If that's what made me lose him, that's really sad," said
Odenkirk, who lives with her husband, Bill, in Lexington, about 55 miles
north of Columbus in Richland County.
The FDA denies any link between mercury and autism. Although no one
from the agency would comment, a spokeswoman said the FDA stands by a
statement on its Web site that "The risk of devastating childhood
diseases -- from failure to vaccinate -- far outweighs the minimal, if any,
risk of exposure to levels of thimerosal or mercury in vaccines." In the
same statement, the FDA recognizes the harmful effects of mercury. It has
urged drug manufacturers to reduce or eliminate thimerosal in vaccines. As
of now, the FDA considers all vaccines to be safe.
The American Medical Association and the Centers for Disease Control
agree with the FDA. "A lot of things occur simultaneously but are not
necessarily related," said Dr. Yank D. Coble, an AMA trustee and physician
in Jacksonville, Fla. "This is such a difficult thing -- and so difficult
for the parents." But there is not enough evidence to link vaccines and
autism, Coble said.
A Columbus pediatrician, though, said the mercury theory is worth
studying. "I'm not going to point a finger at immunization, but I'm not
going to rule it out," said Dr. Elizabeth Crickard of Dublin's Hand in Hand
Pediatrics. "Parents are concerned," she said, but "The overwhelming
evidence is that we should be immunizing our children."
Crickard won't see a child unless the parent agrees to vaccination.
Because autism usually is diagnosed between ages 2 and 4, about the same
time a child is vaccinated, the timing might just be a coincidence, she
said. "It's going to take a study of 45,000 children to give us convincing
evidence, and everything else becomes anecdotal."
At the San Diego conference Odenkirk attended, Dr. Andrew Wakefield
of England and a handful of American doctors presented research that
indicates a possible link. Wakefield studied 12 autistic children in 1998
and concluded that their disorder was linked to a vaccine.
Cathy McGlone of Lexington said she was skeptical at first. But after
attending the conference with Odenkirk and Sondra Williams, also of
Lexington, she bought a T-shirt that reads, "My kid got autism from a
vaccine -- and all I got was this lousy T-shirt." "There is no doubt in my
mind anymore," McGlone said.
She and her husband, Bill McGlone Jr., have a 6-year-old son,
Matthew, who is autistic. He had a string of ear and throat infections
shortly after birth. Mrs. McGlone thinks the shot he received to prevent
hepatitis B caused his sensitivity to smells, tastes and loud noises. But
there is hope, she said. Doctors at the conference said removing wheat and
dairy products from an autistic child's diet and adding vitamin supplements
have helped some children. A child also can be given a drug that binds with
the mercury so it can be removed from the body.
Williams and Odenkirk started their children on the special diet a
few months ago and have seen some results. McGlone plans to try it after
talking to her pediatrician. Williams and her husband, Ted, have two
children with the disorder -- Michael, 9, and Melissa, 7.
Michael must control every situation and becomes aggressive if he
doesn't get his way, sometimes tipping over furniture. Such "meltdowns" can
occur three to eight times a day, Williams said. Melissa acts
inappropriately in social situations, sometimes screaming to get attention.
When she was younger, she banged her head against walls, and she still rocks
her body repetitively. The Lexington women are telling others what they
learned at the conference. And they continue to support one another through
their struggle.
"We share so much," Williams said. "We cry together, we laugh
together." The support of parents is crucial, said Jacqueline Wynn, director
of the intensive-behavioral-intervention clinic at the Children's Hospital
Autism Center in Columbus. "Parents need to be their own advocates,
especially in autism," Wynn said. "Parents are the ones who make changes."
The center, which opened in January, will study the theory that
mercury causes autism as well as look for other possible causes, she said.
-------------
Capitol Autism Conference sponsored by FEAT
October 28, 2000 Sacramento, CA
Featured Lynn Hamilton author "Facing Autism"
http://www.feat.org/featorg/confoct2000.htm
_____________________________________________________
Send Your United Way Contributions to FEAT
Put "16106" on your Donor Card
Combined Federal Program Number is "3180"
Or: FEAT PO Box 255722 Sacramento CA 95865
______________________________________________________
LETTERS to the EDITOR: | NEWS EDITOR: | NEWS SEARCH:
[EMAIL PROTECTED] | [EMAIL PROTECTED] | www.feat.org/search/news.asp
* JOIN News Talk LIST: [EMAIL PROTECTED] *
_____________________________________________________
Editor: Lenny Schafer | Eastern Editor: | News Wire: Ron Sleith
[EMAIL PROTECTED] | Catherine Johnson PhD | News: Kay Stammers
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