*My brother in law in CA has LEWY'S disease and is doing very good.* *They live in CaRMICHAEL,CA * On Tue, Feb 8, 2011 at 3:07 AM, Joan Croft <[email protected]> wrote:
> > > Hi Sharon, > > I have been really far behind on email and other things…didn’t even eat my > first bite of food until almost 10 pm tonight. > > > > As I read about your father, it reminded me of what happens in the early > stages of Lewy Body Dementia. With LBD, the bouts of confusion or doing > things out of the ordinary are few and far between. With your dad not being > able to say what happened to his lip, it could be result of orthostatic > blood pressure that is a common symptom of LBD. A lot of times, the person > with LBD will not know what happened and then suddenly afterward at some > point will have some story about what happened even though today he does not > know. For example, my mom was upset when I was in the hospital and she > called me and said that she couldn’t find her keys. I told her that I would > help find them when I got home. I got home and because I just had back > surgery, I really couldn’t scour the house for the keys. After a few days, > she started telling me that she was in the garage and she dropped the keys > and they flew behind the washer. She told that story over and over once she > had said it the first time. The hallucination that she had with how the > keys got lost became a memory in her mind just as if it truly had happened. > I did find the keys in her bedroom in her robe pocket, so the garage story > was a hallucination. You may be asking why I am writing this. My mom had > LBD and in the early stages I thought she just had a bad night’s sleep every > couple of months. When she was diagnosed with this disease…something that I > had never heard of, I had a lot of learning to do. I still read the posts > on the Yahoo Group for LBD Caregivers and I am now the facilitator for a > Lewy Body Dementia Caregiver Support Group here in the Las Vegas Valley. > The most important thing to know is, if your dad or anyone else you suspect > might have LBD, there are some drugs that are normally given for Alzheimer’s > that react negatively on persons with LBD. Some, like my mom had, cause > irreversible damage and ultimately speed up the death of that person. > > I don’t want to scare you, but the story of his falling just struck a > familiar note with me. Your Mom may not see all the signs because she is > there with him most of the time and she may also attribute some small things > to lack of sleep, etc. I do hope that your dad does not have LBD, but I > just can’t do harm by alerting people of the dangers of some drugs. LBD is > a disease where the person has fluctuating cognition, unlike Alzheimer’s > where once the person is confused, they do not get unconfused. > > If you, or anyone else reading this post, should want more information > about LBD, please feel free to contact me directly at > [email protected] > > > > *From:* [email protected] [mailto:[email protected]] *On > Behalf Of *Nancy Lucky > *Sent:* Monday, February 07, 2011 3:38 PM > *To:* [email protected] > *Subject:* Re: [Chihuahuas] My Dad (OT) > > > > > > Sharon, > > My Dad has Alzheimer's and is quickly going down fast. He is now in diapers > and probably does not have much time to live, but unlike your Dad it will be > a blessing when he goes as he has no life anymore. I will say a prayer for > you dad - that is the strangest thing I have heard too. > > Nancy and the girls > > When you are gifted... give; when you learn... teach > > *Nancy, Abbey-Rose and Maggie-Mae* > > > > --- On *Mon, 2/7/11, Mare <[email protected]>* wrote: > > > From: Mare <[email protected]> > Subject: Re: [Chihuahuas] My Dad (OT) > To: [email protected] > Date: Monday, February 7, 2011, 12:51 PM > > > > Prayers for you and your Father Sharon. > > Best, > > Mare > > > > > > > > > > *-------Original Message-------* > > > > *From:* Sharon > Norman<http://us.mc819.mail.yahoo.com/mc/[email protected]> > > *Date:* 2/7/2011 2:35:46 AM > > *To:* > [email protected]<http://us.mc819.mail.yahoo.com/mc/[email protected]> > > *Subject:* [Chihuahuas] My Dad (OT) > > > > > > > > We had to take my dad to the ER at the hospital tonight...about 10 minutes > before the Super Bowl was over...We’re not sure what happened...he said he > was sitting at the kitchen table and his lower lip swelled up (filled with > blood) and started to bleed. At the hospital they gave him one stitch.They > did and EKG...and a cat scan at the ER...they kept him and are going to run > more tests. Not sure what happened...he insists he didn’t fall. He had a > major stroke 2 and a half years ago...but he showed no signs on a stroke > tonight...thank God...he’s very alert and acts the same...the cat scan came > back normal. Please say a prayer for him. We didn’t get home from the > hospital till after 3 AM...we had to wait till they got a bed for him...then > my daughter called and kept me on the phone for 45 minutes! I’m waiting for > Dave to leave for work so I can take a 2 hour nap before heading back to the > hospital....Thanks~~Sharon > > > > > -- Ann
