--

    Thanks you guys  for all your well wishes!!! I felt it was 
important to share this ongoing drama  of my progress with everyone
  who is taking gleevec since it is so new still!!!  It is still
 quite nerve racking not knowing how long we have to take this drug 
and could we ever be 'cured'  from it!!!  This drug is buying us time
  till something better and a real cure may come along!!  Good luck
   to everyone!!!

       hope, jeffrey c
     
       





- In [EMAIL PROTECTED], [EMAIL PROTECTED] wrote:



> In a message dated 9/8/2004 5:46:08 PM Central Standard Time, 
> [EMAIL PROTECTED] writes:
> Hey Everyone,
> 
>      It wasnt  until recently  that I realized that I have been
>    on gleevec  for 4 years since last August 2000!!!
> 
>          It seemed like it wasnt too long  ago that I was
>    feeling like crap on interferon and then taking gleevec
>   I felt like the energizer bunny!! A feeling I haven't felt
>     in 7 years!! It was  just so amazing to so alive and
>    energetic!!  
> 
>          The difference is that I went from anorextic  looking
>     to puffy face and twenty pounds heavier!!! And  drinking beer 
> never tasted better!! I had swore off alcohol when I was dx  with 
> CML  hoping that might of 'change'things but hell with that,, now 
we 
> got gleevec!!!
>           Just  sharing my anniversary with the group  and how 
> thankful I am  for THIS group which practically saved my life when 
>    a member had mentioned a clinical trial was being conducted in 
New 
> York City after having turned down a chance in Oregon with Dr. 
> Druker!!!
> 
>            Wishing  everyone continued success and not giving up
>     the fight!!!
> 
>           jeffrey c
> Hey Jeffrey, that's great news, I know how you feel being dxed in 
1997 my 
> self and having fought my way through interferon and many of its 
pains in the 
> butt.  I did very well on it though as far as my counts.  We went 
along waiting 
> for some big breakthrough in the fight against this killer and 
damned if it 
> didn't get approved one day before I was to go to Northwestern 
Hospital in 
> Chicago to try to get into the trial in 2001.  After all the 
anxiety of the first 4 
> years there was the wonder of the possibility of light at the end 
of the 
> tunnel.  In March of 2002 I was in complete remission!
> 
> God Bless you and may you have continued success in this fight,
> 
> Jim Rodeghier



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