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In a message dated 9/21/2004 3:01:35 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
Oh Rob, yes I have. I have heard no follow up from them. But do not worry,
I am NOT making a decision to BMT. Not now, not ever. Dr. Mauro is my
contact at OHSU and I have written him about this a few months ago. I even
emailed Dr. Talpaz, but was told I would not meet the criteria for the BMS trial
yet. So......I am waiting and weakening. My resolve, my strength to cope, etc.
The whole thing stinks. I sometimes think they want me to just die and go
away, get out of their hair, stop making their lives so complicated. Don't
they understand the CML won't go away unless I do? What the hell is remission
anyway? It sure isn't all its cracked up to be. Yeah, I am here, but for
this? I don't need a bloody psychiatrist. I need a Cure that won't kill
me.Won't make my life a living hell, a cure that will let me work again, feel
well again. I swear the longer I live the worse the doctors treat me.
I think they view me like a parasite on the HMO's back and a thorn in their
sides. - Lynne
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