Hi Sharman 
I am sorry to say I don't have a treatment to share with you as we 
are still trying to find out what the cause may be.  I have been the 
same as you with doctors not giving a damm, but my onc looked at my 
left ear and saw something, so I am getting tested.  I do not know 
what he is looking for as yet, but I will be sure to share when I 
know. Sorry you are having this also, but mine also are very painful, 
not only ringing.  
I know how you feel, it is really awful!
xxx Linda in Ca



--- In [EMAIL PROTECTED], "Sharman Denison" <[EMAIL PROTECTED]> wrote:
> 
> Linda, I have not written you before, but I need to know what kind 
of
> treatment, if any, you are getting for the "ear ringing."
> There is hardly a day I can hear clearly anymore. The sound is 
horrible.
> Somedays worse than others.
> I never get answers from the doctors. They shrug their shoulders. I 
believe
> it's a Gleevec thing also. So many side effects.
> Thank you,
> Sharman Denison
> ----- Original Message -----
> From: "lindabones9" <[EMAIL PROTECTED]>
> To: <[EMAIL PROTECTED]>
> Sent: Sunday, October 31, 2004 9:18 PM
> Subject: [CML] Ears,
> 
> 
> >
> >
> > Hi all,
> > I am just back on line and trying to read the posts.
> > Thank you for the links, Lottie, and I will check them out. You 
must
> > have been reading my mind as I was just going online to look for 
this
> > info.
> >
> > I saw my local onc (Dr Lemon)Friday and he was very pied off that 
one
> > of the doctors there didn't see me while he was gone. (I think 
that
> > the secretary is going to get the boot, and she deserves 
it...rude to
> > cancer patients!) I let him know that I have been to a ENT, (who 
said
> > I was just getting old), my Pain Specialist who injected me with 
his
> > arsenol of weapons,(and gave me more drugs!..ugh) the dentist, and
> > chiropractor. I have extreme painful headaches, earaches, and 
ringing
> > in my head so loud that I could be hired as a violenist...maybe a
> > chelloist? Something VERY loud, and high pitched.
> > Long story short. He ordered MRI's of everything...sinuses, ears, 
etc.
> > He says he sees a "bubble" in my left ear that should not be 
there,
> > and has refered me to a ENT Specialist (who he respects) and we 
will
> > see from there. He is not excited about me taking Diazide and 
thinks
> > my body should eliminate the fluid on it's own, but I will bring 
him
> > the info on IM and fluid retention. I told him that side effects
> > come and go, but he wants some kidney tests, so that's good, I
> > guess. I kinda said to myself, hey, I don't want any kidney tests!
> > Just like a kid would! So, guess there's some kid left in me! Ha~~
> > I have eliminated 6 pounds of fluid since 10-22, feels good! Thank
> > you all for all of your support and suggestions. Both of my 
support
> > groups have supported me and I am grateful. Nancy, those drops did
> > help to relieve some of the pressure, good suggestion!
> >
> > Congrats to everyone on the good news..the prego family's, the BMS
> > news, the zeros...well, just everyone!
> > Nice to be back and see you all.
> > xxx Linda in Ca
> >
> >
> >
> >
> >
> >
> >
> >
> > New! Sign up for local CML support group meetings in your local 
community
> at
> > http://cml.meetup.com
> >
> > Apply for Commercial Real Estate loans online and submit your 
deal to
> dozens of hungry lenders in just minutes. Loan programs for all 
types of
> business and commercial real estate. Apply anytime at
> http://realestatezoo.com
> >
> > CML (Chronic Myelogenous Leukemia Support List)
> > ---------------------------------
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> > An International Community Of CML Patients
> > For more information: http://cmlhope.com
> >
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> >
> >
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >





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