Hi Mary,
Congrats on your PCRU status.
In response to your question, I am PCRU and have decided not to
have a harvest. Based on discussions with my Dr. and since I have a
matched sibling donor if I needed a transplant I would opt for the
allo transplant. Similiar to Erin the feeling was that if I was
going to go through a transplant I would go for the allo which would
give me a better chance of a cure vs. buying time with an auto.
Sharon
--- In [EMAIL PROTECTED], "eloeher" <[EMAIL PROTECTED]> wrote:
>
> Those of you who are at PCRU and have not had a harvest, why
not?
> I would really appreciate your opinions as well as those who have
> chosen harvest. What other risks are there?
> >
> > Thanks in advance for your time. Regards,
> >
> > Mary Toole
> > dx 10/02
>
> Hi Mary,
>
> Congrats on great PCRU results! That is great. When I was first
PCRU
> in 9/02, I asked my onc Dr. Charles Schiffer, about doing a
harvest.
> I told him it seems like a valuable thing for me to have in my
back
> pocket. He strongly disagreed, stating that if my counts were to
> slip, he would rather have me do a MUD transplant than an
autologous
> transplant. (I have an estimated 50 possible donors out there).
His
> point was that if you are going to go through the struggle of a
> transplant, you should go for the one that offers a potential long-
> term cure. (The autologous is expected to buy a few years time as
> opposed to being a sustained cure). I am 32 and considered a
> relatively lower risk candidate for a MUD SCT, so perhaps that
> played into his decision on that as well.
>
> I don't feel strongly enough about the need for harvested cells to
> push back on this one, but I will probably double check his
opinion
> on it at my next appointment to make sure nothing has changed in
his
> thinking. Just another point of view for what it is worth.
>
> Erin in MI
> dx 12/01
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