Hi all, 

I have been off line for a while due to a very fun week with the 
family at Disney World. My parents, sister & family (4 nieces and 
nephews ranging from 3 to 9), my husband and our 3 year old 
Elizabeth all had a wonderful time! What an amazing place that is! 
So many fun things for all ages. Elizabeth does not understand why 
we can't just turn around and go back there any time we want. Ah, to 
be 3 again. 

I have been catching up on posts and wanted to welcome all the 
newbies. And to express my sadness about Marque's passing. I 
remember being very inspired by his posts and his zest for life when 
I first started reading this list. What an amazing person he was. 

Also, congratulations to Hart and Jona for your new baby girl. 
Wonderful news, and she is a good sleeper to boot! I began the 
Gleevec when Elizabeth was 4.5 months old and mostly sleeping 
through the night, but I did need my husband to step it up with the 
early morning wake-ups, etc. It was true for me that the initial 
side effects were so much worse than they were after the first two 
months or so.  I can't speak for 800mg because I have always been on 
400mg. I hope her side effects are as minor as possible. 

I just happened to realize that on this day 3 years ago I was dx'd 
with CML with my infant in my arms. The dr. told to get a transplant 
if I had a match, and if not, enjoy my baby and get my affairs in 
order. Gave me the ol' 3 to 5 years expectation. Yikes. That one 
didn't know about Gleevec yet. My world was crumbling around me... I 
was very glad to have sought out second and third opinions! Looking 
back, I am so very very blessed and lucky by the way everything has 
turned out. Added to that, this Christmas will mark the 10 year 
anniversary of finishing my treatment for Hodgkins. A LOT to 
celebrate this holiday season! 

Erin in MI
32 y/o
Gleevec 400 mg since 1/02
PCRU since 9/02, will know soon if still holding





------------------------ Yahoo! Groups Sponsor --------------------~--> 
Make a clean sweep of pop-up ads. Yahoo! Companion Toolbar.
Now with Pop-Up Blocker. Get it for free!
http://us.click.yahoo.com/L5YrjA/eSIIAA/yQLSAA/8zSolB/TM
--------------------------------------------------------------------~-> 

New! Sign up for local CML support group meetings in your local community at 
http://cml.meetup.com

Apply for Commercial Real Estate loans online and submit your deal to dozens of 
hungry lenders in just minutes. Loan programs for all types of business and 
commercial real estate. Apply anytime at http://realestatezoo.com 

CML (Chronic Myelogenous Leukemia Support List) 
---------------------------------
Part Of CMLHope.Com
An International Community Of CML Patients
For more information: http://cmlhope.com 

Post Message: [EMAIL PROTECTED] 
Subscribe:  [EMAIL PROTECTED] 
Unsubscribe:  [EMAIL PROTECTED] 
Change To No Mail/Web: [EMAIL PROTECTED] 
Change To Digest: [EMAIL PROTECTED] 
Change To Email: [EMAIL PROTECTED] 
List Help: [EMAIL PROTECTED]  
CML Group Web Site http://groups.yahoo.com/group/CML 
 
Yahoo! Groups Links

<*> To visit your group on the web, go to:
    http://groups.yahoo.com/group/CML/

<*> To unsubscribe from this group, send an email to:
    [EMAIL PROTECTED]

<*> Your use of Yahoo! Groups is subject to:
    http://docs.yahoo.com/info/terms/
 



Reply via email to