Hello Pat, I really felt for you reading your 2 posts - all I can say to you is hang in there, in a couple of months you'll be able to participate in the Phase 2 trials for the BMS and Amn drugs. CML really is a nasty illness - it's so insidious, you never know when it's going to rear up again, every ache and pain makes me fear the worse and I'm sure I'm not the only one. We just have to tell ourselves that progress is being made every day and that the new drugs will soon be here, Barbara dx june 2004 100ph+ 97ph+ sept. 2004 next BMA 15/12/2004--- In [EMAIL PROTECTED], pat reynolds <[EMAIL PROTECTED]> wrote: > I thought I would share with you my call from my > oncologist which came a day after I complained about > how miserable I am on the 600mg. Well if I'm not > miserable enough on the 600mg, he says he is > increasing my dosage to 800mg immeediately as my pcr > test from last month came back, and my numbers > increased from 767 out of 100,000 in Sept to 1,368 out > of 100,000 in Nov. I knew I had been feeling worse and > having bad headaches every day just as I did before I > was dx'd. I do skip taking the gleevec occassionally, > maybe once a month but I didn't think it would make > that much of a difference. I am so upset, and so > scared. Just the thought of having to take 800mg, I > know I am going to be even more miserable. I just have > this gut feeling that I am going to suffer miserably > from the meds and then lose the battle anyway. I am so > overwhelmed with fear and frustraion. Jennifer, after > this conversation with the oncologist, I don't > personally advise for you to not take recommended > dosage. It's not working out for me. I would > appreciate your prayers and any suggestions that might > would relieve any of the side effects. I also want to > mention I am not a big water drinker, never have been > but do try to take with my meds, should I try to drink > more? I was a smoker, and have been quit for 9 months, > and never got over the cravings.....it's with me every > day, I just smoked 2 as my nerves are shattered. I'm > sure that will help. It took me 3 months before to > quit, and I did ask my oncologist if this would affect > the effect of gleevec and he said no, but wanted me to > quit so as to prepare myself for BMT which I have > refused since then. Please think of me in your > prayers. Love, Peace & Hope, Pat > > > > __________________________________ > Do you Yahoo!? > The all-new My Yahoo! - Get yours free! > http://my.yahoo.com
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