I'm sorry to hear of your struggles and I'm sorry you haven't had anyone to talk to. The experiences with this disease can really be a roller coaster and it helps to talk about it. Don't hesitate to jump on here and ask for a ear to listen or a shoulder to cry on if you need it. It does appear most folks going to the higher dose have more issues, but I agree with the other posters, split the dose to two, eat with heavy meals and drink lots of water. I'm only on the 400 mg but my side effects started improving after about 3 months, so hopefully things will get better. If possible you might check into the closest major cancer center and get your second opinion there. There are so many things happening with CML treatement right now, make sure you've been provided all those options. It is also important to have a doctor you like, feel comfortable with and believe is providing the best treatment. I hope things get easier for you soon, hang in there, your not alone. Please feel free to email me directly if you need more of a one of one. Take Care and keep us posted on how your doing. Brenda dx'd 5/04 Gleevec 6/04 6 mth bmb, pending results
--- In [EMAIL PROTECTED], "ladybug_blue00" <[EMAIL PROTECTED]> wrote: > > I am writing because I am scared. I tried this support group before > when i was first diagnosed in january 2004. I couldn't really keep > up on it. But I am willing to try again. I need to talk to people > who understand. I am beginning (11 months later) to have a really > hard time dealing with everything. I am a 22 year old female > attending college. I originally started on 400mg gleevec and was > raised to 800mg 2 months ago. Since then I have been experiencing > vomiting more and I am often afraid to take the meds because I hate > feeling sick all the time. I'm not sure how many people actually > get therapy. But I'm beginning to think I am going to need > something soon. For the most part I cope well, but every once in a > while, like tonight, I will break down and cry for hours. I live > alone, so it makes things this much more difficult. I can call and > talk to my parents, but sometimes even they don't understand. I > guess I'm just looking for some sort of inspiration to get out out > of this slump. It may also be because my doctor is talking about a > BMT and I don't really know much about it. She's not the most > friendly of doctors (that I have noticed). I am really concidering > a second opinion hopefully over the christmas/new years break. > Thank you for reading this, and I'll be looking to hear from someone > soon. ------------------------ Yahoo! Groups Sponsor --------------------~--> Make a clean sweep of pop-up ads. Yahoo! Companion Toolbar. Now with Pop-Up Blocker. Get it for free! http://us.click.yahoo.com/L5YrjA/eSIIAA/yQLSAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [EMAIL PROTECTED] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
