I am like Kathy and Gina. My platelets count were 1 million and my white blood cell was normal. I was diagnosed to a "T". And after 3 weeks my results came ph+ and since than my life and my priorities have changed.Gleevec put me into CCR in 4 months but for more than a year my pcr is still positive. I think because we changed my gleevec dosage to 300 mg for side effect. I am back now on 400 mg and waiting for my first quantative PCR results in few weeks. I will keep you posted.
I have a question though to Kathy why did you added 10 miu interferon (intron a)after you are PCRU?
Take care.
Teresa
dxd 1/03
Gleevec 400 mg 3/03
CCR 7/03
----- Original Message -----
From: ginademase
Sent: Wednesday, December 08, 2004 7:00 PM
Subject: [CML] Re: Update-kathy in ct


your diagnosis is exactly how i was diagnosed to a "T".
my platelets were 2.4 million, and all other counts were fine. they
thought i had thrombocytosis, but i was ph+ too.
gleevec put me into ccr and pcr negative after 4 months.
its weird to read a story like this, not too many like ours.
lol, gina demase


--- In [EMAIL PROTECTED], "dantzigr" <[EMAIL PROTECTED]> wrote:
>
>).  Then a PCR showed the presence of
BCR
> ABL and the DX changed to CML - gleevec controlled the platelets.
I
> was PCRU in two months and have been ever since.
>
> In 3/02 I added 10 miu interferon (intron a) and will stop in 3/05
> (CAN"T WAIT).
>
> Kathy in CT





New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com

Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com

CML (Chronic Myelogenous Leukemia Support List)
---------------------------------
Part Of CMLHope.Com
An International Community Of CML Patients
For more information: http://cmlhope.com

Post Message: [EMAIL PROTECTED]
Subscribe:  [EMAIL PROTECTED]
Unsubscribe:  [EMAIL PROTECTED]
Change To No Mail/Web: [EMAIL PROTECTED]
Change To Digest: [EMAIL PROTECTED]
Change To Email: [EMAIL PROTECTED]
List Help: [EMAIL PROTECTED] 
CML Group Web Site http://groups.yahoo.com/group/CML





New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com

Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com

CML (Chronic Myelogenous Leukemia Support List)
---------------------------------
Part Of CMLHope.Com
An International Community Of CML Patients
For more information: http://cmlhope.com

Post Message: [EMAIL PROTECTED]
Subscribe:  [EMAIL PROTECTED]
Unsubscribe:  [EMAIL PROTECTED]
Change To No Mail/Web: [EMAIL PROTECTED]
Change To Digest: [EMAIL PROTECTED]
Change To Email: [EMAIL PROTECTED]
List Help: [EMAIL PROTECTED] 
CML Group Web Site http://groups.yahoo.com/group/CML



Yahoo! Groups Sponsor

Get unlimited calls to

U.S./Canada



Yahoo! Groups Links

Reply via email to