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Thank you Mark and Cheryl, you both did a great job
of introducing us all those valuable and good news from ASH. I feel I have a new
family where all her members care about each other. I am fortune to
be member of CML group. I have not contribute a lot yet but you all seemed
ahead and so knowledgeable about the disease and I am learning. Thanks
again and wish you all a safe, wonderful holiday and a happy new year.
Love to you all.
Teresa
----- Original Message -----
Sent: Thursday, December 09, 2004 1:23
AM
Subject: [CML] Re: ASH - Visit to
Palomar
I would also like to thank Cheryl-Anne for allowing
me to tag along
and glean everything that I could from ASH. For
those of you who
haven't met Cheryl-Anne, she is a truly great
person. Very
intelligent, warm and down to earth. With her
drive, motivation and
interest in CML we are truly fortunate to have her
on this list. We
had a great time attending the various sessions,
digesting the
information and then collaborating on some of the
posts. Who would
have thought that having a serious disease could be
so much fun?
I was also very pleased to meet Rob and Kelly Harless
(finally!).
Rob and Kelly are local to me here in San Diego and we
have much in
common. For example, both Rob and I were misdiagnosed
because our
G.P.'s didn't do a simple CBC. By the time we were both
dx'ed, I was
at 332,000 WBC and Rob was around 400,000. Most of you
probably know
that Rob had the dreaded T315I mutation and underwent a
successful
SCT two years ago. I can attest that he looks great and
is doing
well although it was quite a battle. Kelly is a great
caregiver and
I was thoroughly impressed by her knowledge of CML and the
ins-and-
outs of SCT.
I was also pleased to meet Virginia and Van
Garner who were
introduced to me by Cheryl-Anne. Virginia is a long
time CML
sufferer who looks great and is doing well. She is being
treated by
Dr. Sawyers. I don't think Virgnia would mind me saying
that one of
the touching stories at ASH was that Dr. Sawyers (who was
pretty much
the man of the hour for his BMS presentations) looked
specifically
for Virginia at one of the sessions. He walked right
past all of his
esteemed colleagues and sat down next to her. How
cool is that?
I've also been amazed at how well informed my fellow
CML'ers are.
I've never seen a disease like this where the patients
seem to be so
well informed. Rob has done a great job hosting this
list and it has
obviously paid off for the listmembers that I have had the
pleasure
to meet.
All the best,
Mark
--- In
[EMAIL PROTECTED], "cher111376" <[EMAIL PROTECTED]> wrote:
>
> Hello All,
>
> I attended the last sessions at ASH
yesterday morning which were
> about the molecular mechanisms of the
disease and looking at
> possible other targets to possibly "cure"
CML. I took lots of
notes
> and in the next few days I'll
post them to this list.
>
> Mark had "time off for good behavior
;>)" yesterday morning!
> However we did meet up after the
sessions and he took me on a tour
> of Old Town San Diego. I had
changed my flight to the dreaded "red-
> eye" flight home because I
didn't want to miss yesterday mornings
> sessions, so we had more time
in the afternoon. As a really
special
> treat, Mark took me
up to Palomar to see the 200 inch Hale
> Telescope. I don't think
Mark will mind if I tell you one of his
> hobbies is Astronomy and it
is something that I have dabbled in
over
> the years, so it was
very kind of him to take me to one of his
> favorite places. The
coolest thing is that there was snow up in
> Palomar, and it was a very
chilly 36 degrees. So, the first bit of
> snow that I have seen
this year was in California!
>
> After visiting the telescope I
met Mark's family, his lovely wife
> Diane and their wonderful son
"king" Sean. Their son is practicing
> for a Christmas pageant
and he is playing the part of a king, so
> during our walk around Old
Town, Mark found the perfect crown for
> Sean to wear. It was an
awesome shinny gold crown with lots of
> jewels and Sean was very
happy. Afterwards we went out to dinner
> and then it was time
for me to go to the airport.
>
> I am still quite excited
about the chance to have been at ASH and
> will spend a good deal of
time reviewing my notes and posting them
> to you.
>
>
Thank you all very much for the nice words of appreciation. It has
> meant a great deal to me to be able to share my experience with you
> and to know that in some small way I might have been helpful to
some
> of you. Meeting Mark and his family, Virginia and Van
Garner and
> Rob, Kelly and Robbie Glatts was all so exciting for
me.
>
> Collaborating with Mark on the posts was lots of
fun, and I'll look
> forward to hearing your input Mark, I enjoy your
keen enthusiasm
and
> intelligent insight for this "tricky"
disease.
>
> Best wishes for the brightest and best
holiday season ever and
> peace, light and good health for us all in
the New Year.
>
> Love,
>
Cheryl
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---------------------------------
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