Fran, I'm always sorry to hear of the dx in the little ones, seems so unfair to me. I am really glad to hear he has done so well on Gleevec and with the progress being made I have good feelings about all of our futures. I'm sorry this little guy has had these struggles, I want to wish him a very 'special' Merry Christmas. Though CML in kids is not real common there are folks in this group with CML kids that will surely jump in and respond to you soon. Wishes of brighter days for you and your family. Hang in there and keep us posted on how Jonathon is doing. Take Care. Brenda dx 5/04 gleevec 6/04 6 mth bmb, pending results.
--- In [email protected], "iamfranj1" <[EMAIL PROTECTED]> wrote: > > We are so blessed to have this group... > Our son Jonathan is 10 years old and was DX with CML in October, 2003. > He started Hyd. to get his counts down..then 400mg mg Gleevec and > then in April 600mg. We have 2 other sons, 16 and 18 but they are not > a match for Jonathan. Last PCR 20/100,000 in Oct. His present one was > taken Friday, we are waiting for the results. They had taken it 2 > weeks before but it sat for 3 days and came back double, so we are > trying again and had it walked down. We took him in for an > injury to his hip playing basketball. That was when he > was DX. The injury went away with therapy etc. MRI only showed > alittle fluid around his femur that the Ortho said would go away in > time...we guess it did because after a length of time, Jonathan lost > his limp and pain and was back to playing like a little boy. Then in > late Oct this > year, a limp came back and now he has been DX with "Perthes" in his > hip. A child's form of AVN. Jonathan is a little trooper and our > hero. > We would like to also correspond with other parents who also care for > their children with CML but have troubles in finding them. > You are a great bunch of folks....Many Blessings... > Fran ------------------------ Yahoo! Groups Sponsor --------------------~--> $4.98 domain names from Yahoo!. Register anything. http://us.click.yahoo.com/Q7_YsB/neXJAA/yQLSAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
