Congratulations in your molecular reponse, what super news. Brenda --- In [email protected], "Steen Langeland" <[EMAIL PROTECTED]> wrote: > My name is Steen Langeland. I'm a 41 year old man from Denmark. I was diagnosed with CML in June 2004. I have since my diagnosis been treated with Gliveec 400mg/day. > > > > When I was diagnosed my WBC was 280 10^9/l and my spleen was 9 by 7 inches. I had for some time before the diagnosis felt a pressure from my upper left abdomen and had been very tired. After 3 weeks on Gliveec my spleen was back to normal size and my WBC count was within the normal range. > > > > The first 2month on Gliveec I had some difficult side effects. At first I had leg cramps, bone pains and nausea. The bone pain lasted about 2 month - first the pain was primary in my legs. Later the pain moved to my in shoulders and arms. The bone pain gradually reseeded and after 2-3 month the bone pains and nausea were gone. The cramps have stayed on - but they are manageable. Now I have some other minor side effects. Such as - puffy eyes and my abdomen some times feels bloated. I have gained about 16 pounds since diagnosis. I understand that weight gain is common when taking Gliveec. > > > > I have just had my 5th qPCR test done. At the same time I got the result from the qPCR test taken 18. October 2004. The result was quantified as 0,000045. The sensitivity in the test is 1:60000. I have had a 3.5 log reduction since I started on Gliveec June 6, 2004 . My results were specified as a "Major molecular response". I'm very relived and thankful that it is going well. > > > > I had one BMB when I was diagnosed and since I have had 5 qPCR on peripheral blood. My BMB qPCR values and peripheral blood values (taken at the same time) where almost identical. > > > > It is now almost 7 month since my dx. I have had many ups and downs during this time. Physically it has been relatively "easy", but emotionally it has been a challenge. Friend, colleges and family has been very supportive and this I am very thankful fore. > > > > I can't begin to tell you what this group has given me. My knowledge about CML has increased many many times. I would like to thank all the members of the group fore sharing knowledgeable information and inspiring personal stories. Thank You! > > > > Best regards > > Steen Langeland
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