RE: [CML] Introduction To The Group

[Zavie Miller]

YAHOOO!!! YIPPEEE!!! Number 782 in my Zero Club Zavie   -----Original Message----- From: Steen Langeland [mailto:[EMAIL PROTECTED] Sent: December 20, 2004 2:08 PM To: CML Yahoo Group Subject: [CML] Introduction To The Group My name is Steen Langeland.  I�m a 41 year old man from Denmark. I was diagnosed with CML in June 2004. I have since my diagnosis been treated with Gliveec 400mg/day.   When I was diagnosed my WBC was 280 10^9/l and my spleen was 9 by 7 inches. I had for some time before the diagnosis felt a pressure from my upper left abdomen and had been very tired. After 3 weeks on Gliveec my spleen was back to normal size and my WBC count was within the normal range.   The first 2month on Gliveec I had some difficult side effects. At first I had leg cramps, bone pains and nausea. The bone pain lasted about 2 month � first the pain was primary in my legs. Later the pain moved to my in shoulders and arms.  The bone pain gradually reseeded and after 2-3 month the bone pains and nausea were gone. The cramps have stayed on � but they are manageable. Now I have some other minor side effects. Such as - puffy eyes and my abdomen some times feels bloated. I have gained about 16 pounds since diagnosis. I understand that weight gain is common when taking Gliveec.    I have just had my 5th qPCR test done. At the same time I got the result from the qPCR test taken 18. October 2004. The result was quantified as 0,000045. The sensitivity in the test is 1:60000.  I have had a 3.5 log reduction since I started on Gliveec June 6,  2004 . My results were specified as a �Major molecular response�.  I�m very relived and thankful that it is going well.      I had one BMB when I was diagnosed and since I have had 5 qPCR on peripheral blood. My BMB qPCR values and peripheral blood values (taken at the same time) where almost identical.   It is now almost 7 month since my dx. I have had many ups and downs during this time. Physically it has been relatively �easy�, but emotionally it has been a challenge. Friend, colleges and family has been very supportive and this I am very thankful fore.   I can�t begin to tell you what this group has given me. My knowledge about CML has increased many many times. I would like to thank all the members of the group fore sharing knowledgeable information and inspiring personal stories. Thank You!   Best regards Steen Langeland   New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Sponsor ADVERTISEMENT Yahoo! Groups Links To visit your group on the web, go to: http://groups.yahoo.com/group/CML/   To unsubscribe from this group, send an email to: [EMAIL PROTECTED]   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.