Welcome John, Sorry to hear about your dx with CML, but glad to hear your successfully receiving treatment. I'm in my 6 month of Chronic CML and just got my first bmb since being on Gleevec. I will know my results 12/28. I went in to the doc for bronchitis issues and thank goodness he decided to do blood work. My count was 80,000 so more test were run and the rest is history. I'm keeping my fingers crossed that I've at least gotten a cytongentic response / remission, though I'd love to hear molecular. Keep reading and learning about the disease, knowledge is power and the more you learn the better you will feel about where you at and what your options are. You have found a wonderful place to come for information and support, this is a great group of people. Let us know how your results turn out. Brenda (43) dx 5/04 Gleevec 6/04 6 mth bmb, pending results
--- In [email protected], "slagathor65" <[EMAIL PROTECTED]> wrote: > > Hi all, > > I joined the CML message group about a week ago and I have been > reading ever since. I've learned a great deal in a very short time. > Thank you. I've been able to share information with my wife and > kids, which has helped them cope with this. > > I was dx with Chronic phase CML on my 39th b-day, and I'm about 3 > months into treatment. My road to dx was not an easy one, so I > think it is worth telling. > > By profession, I am a software engineer and I usually work long and > sometimes weird hours for a very large technology company. An > excellent excuse for someone who likes to avoid doctors. I've always > been blessed with perfect vision. So, when a small fuzzy dark spot > appeared in the center of my left eye field of vision, I was > concerned enough to make an appointment with an optomitrist. It took > a few days to get into see the optomitrist, and by the time I got in > to see her I had another curious spot in my right eye as well. She > looked at the hemorages that were at the cause of my vision problems > and pronounced that I indeed suffered from diabetes. > > Diabetic retinopathy was her official diagnosis to which I replied, > Huh? Are you sure? Aside from my affinity for all things digital, I > consume and enjoy multitudes of sugar in all of its glorious > forms...curiously,with no ill affects as would be expected of an > undiagnosed, untreated diabetic. To make a long stroy a little > shorter, it turns out that it would take about 10 years of diabetes > to cause the amount of retina damage I suffered in a matter of 3 > weeks or so. > > I am happy to report that my vision is slowly returning to normal > after near blindness in both eyes. Dispite a 23" monitor and a very > large font, everything is quite blurry, so please excuse my typos. > > I get the results of my BMB on Thursday, so I'm hoping for an early > Christmas present. My blood counts are normal now. My WBC as of > yesterday is 5.3 from 486 on Sept 15th. I've already made it through > the bone pain and serious cramping. I feel good about my prospects > and I think I am a very lucky guy. > > I got my mediacl records last week and I noticed that my doctor did > not order a PCR with this BMB. I'm a little concerned that my Dr. > may not be up on the latest CML info. Has anyone else had to second > guess your doctor? And, what did you do about it? > > I hope to hear from you. > > Thanks, > > John ------------------------ Yahoo! Groups Sponsor --------------------~--> $4.98 domain names from Yahoo!. Register anything. http://us.click.yahoo.com/Q7_YsB/neXJAA/yQLSAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
