Thank for sharing with us this trial and wish you all the best for quick remission.
Teresa T
-------------- Original message --------------
Thanks for all of the nice well wishes for the rad001 trial I started today. Apparently my dr today told me that although I am 100% ph+ by cyto, there are no blasts or any other chromosonal abnormalities in the 20 metaphases they looked at. Still in chronic phase (phew!!!). Nancy, I did ask him about the mutation screening and he didn't see that as necessary unless I was looking at the BMS or AMN trial. The RAD001 drug supposedly deals with all mutations. I am taking 600mg gleevec and 2.5 mg of rad. (3 pills that look just like an aspirin). I didn't have any side effects til about 5 hours after I took the pills. I started getting incredibly bad bone pains. (kinda like the ones I first had when I started gleevec, but a lot more intense). I am hoping that is a good sign. I go back tomorrow for another BMB (2 in 6 days!!!) yuck! as well as tests to see blood drug levels... I'll keep you posted as I eRADicate these phillies once and for all!!!
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