Good for you losing weight! Keep up the good work! Way to go!
I too have lost a significant amount of weight since I started Gleevec. I started out at 355 lbs at 5' 10". I am now down to 280 lbs. (a loss of 75 lbs and still losing) after a year and a half (started on gleevec in 8/03). Someday I'd like to get down to my high school weight of 180 (I am 27, it doesn't seem possible that I was that small 10 years ago!) My weight loss started when I couldn't keep my food down at any meal. Gleevec really gives me a LOT of nausea, among all the other side effects, even to this day. At the time they had started me on 600mg and I was experiencing a lot of toxicity from it (I am PCRU for a year now, although I have never acheived HR because of high platelets, go figure, and on 400mg). Since being PCRU though in March of 04, I joined Weight Watchers, and they have really helped (my onc at University of Chicago, is very in favor of my weight loss, btw). I have learned so much about nutrition, and really do feel a lot better because of it. I haven't drank carbonated beverages since high school. I drink a lot of water and iced tea (for it's diuretic and caffeine qualities), although I can't drink or eat anything after about 9 or 10 pm because of the aedema (lasix wears off about that time, and I am on 80 - 120mg of it a day, have suffered weeping water blisters in the past and they pulled out 800cc's of water out of my lungs a year ago too) I REALLY recommend Weight Watchers to anyone looking to learn about nutrition, and for the support the meetings give. I have also started exercising this week, worked out three times on the step machine for the first time since I started gleevec. (I used to be pretty active before being diagnosed, but I had a breastbone BMB, that went horribly wrong in dec of 03, and caused so much chest pain for the last year that I haven't even been able to think about it until now, but it has finally diminished to the point where exercising is now an option) Okay, I guess that's all I have to say for now, I have only posted a couple of times in the past, but I am just so frustrated with this drug lately that I have been reading a lot of posts the past couple of weeks. I feel so terrible on a daily basis, with fatigue, nausea, aedema, etc and all the rituals I have to go through on a daily basis to keep these things at bay just frustrate me. I appreciate every one of you helping me to keep my sanity, knowing that there are others out there struggling just as much as I am. Happy Holidays all, and Hopefully for all of us, there are many more to come, Best Wishes, Stacy Wisslead dx 8/03 PCRU 03/04 (although no HR because of slightly high platelets, they run about 500) 400mg --- In [email protected], "suzanne" <[EMAIL PROTECTED]> wrote: > > > Teresa T, > From the time I started Gleevec back in 6/03 I have been losing > weight. Since I was very over weight then ( 198 pounds and only 5 > feet ) I was very concerned about gaining because of what I read > about Gleevec, I put myself on my own diet and exercise program. I > work out for an half hour in the morning before going to work then > another half hour at night before dinner. As far as food I drink a > lot of water or green tea during the day. I limit my salt in take and > just use portion control. I also never drink soda or any soft drinks > high in sugar and/or empty calories. I am also very strong minded and > believe you can do anything if you put your mind to it and keep a > positive attitude. I am now 127 pounds but would like to be 105 > pounds. > > > > -- In [email protected], <[EMAIL PROTECTED]> wrote: > > Suzanne, Please tell us what kind of diet are you on? I am 5 ft and > have gained 35-40 lbs since I was diagnosed last year 1/2003. Have > you lost weight after you achieve PCRU? It sounds like you are > loosing weight because you are working out too. If I am you I will go > on with my vacation and enjoy the holiday and life in my new look. > > Teresa T > > > > > > > > > > > > > ------------------------ Yahoo! Groups Sponsor --------------------~--> $4.98 domain names from Yahoo!. Register anything. http://us.click.yahoo.com/Q7_YsB/neXJAA/yQLSAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. 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