Thanks for the great questions. We haven't called the transplant Dr. yet. You gave us more things to consider. Tommy's donor is a 41 year old male with one other potential donor. Dr. Druker did say that a younger donor is better. Thanks for all your caring responses. I had been looking for your email address to respond personally, but can't for the life of me find out what I did with it. Guess it's that post 40 thing.
Barb
hey00nanc wrote:
--- In [email protected], Neddo Family <[EMAIL PROTECTED]> wrote:
> Right now we are leaning towards transplant (given the higher
success rates for SCT for pediatric patients provided by Dr. Druker).
We have not made a final decision. We would like to call the
transplant doctor and get more info. on survival rates and see if he
absolutely has to use total body irradiation.
__________________
Hi Barb,
I am glad that your trip to OHSU was a good one and that you got to
enjoy this beautiful city.
A couple of things you might ask the transplant doctor (if you don't
already have this info):
1) Tommy has a great unrelated match right now (12/12).....did he also
have many other potential matches in the donor pool? (in case he did
not have the BMT right now, would there likely be others if this donor
were not still available). Do you know the sex and age of the donor? I
believe that it is better to have a male donor (esp vs a female who
has had pregnancies). Kelly might have more info on that.
2) Some places, like the Hutch, are definitely doing full BMTs without
TBI. So, you might inquire about any different protocols that they
have, and also any studies/trials about newer drugs for preventing
GVH.
3) and ask about their specific stats for someone in Tommy's age, with
CML, etc......and how do these compare with other transplant centers.
I think that the bottom line is that you have to be comfortable with
your choice of treatment and with those who will be treating you. Best
of luck to Tommy....and your family.
Nancy C.
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