RE: [CML] 2005 Goals

[Peter Muraki]

Title: Message

Hi Allen and Gail,   Thanks for the words in support of my goal.  I think I was having a bad day yesterday.   I have recently restarted my Gleevec treatment after being off the medication for a month.  The side effects (severe pain in my right shoulder, muscle cramps, nausea, fatigue) are more severe than they were when I initially started the treatments.  So I guess it threw me for a loop.     Thanks again and I will get started this week working with my local Leukemia/Lymphoma Society chapter and SBC.  I will let you know my progress.   Peter From: Allen & Gail Lefebvre [mailto:[EMAIL PROTECTED] Sent: Sunday, January 02, 2005 1:23 PM To: CML@yahoogroups.com Subject: RE: [CML] 2005 Goals   Hi Peter:   I think your offer is a great one, and I don't see how it could conflict with what either Rob or Jennifer do, in fact it would be a great complement.  If I read your initial message correctly, you were offering IT support, possible hardware 'hand me downs' and training for folks in your geographic area.  All of these are required for many people to be able to access the great resources that Rob and Jennifer spend a lot of their personal time and effort into maintaining for the benefit if all of us.   I can identify with what you are suggesting.  In the last couple years I have passed on an 'old' computer to my parents, and a nephew did the same for my mother in law.  I have since become their primary tech support and trainer and can fully appreciate the kind of assistance they need to access the web.  The impact on their lives has been amazing and neither of them would dream of getting rid of their PC's now.  There is no doubt that there are cml'rs out here who have no access to the resources on the net because they don't have the technical or financial capacity to find them.  You have made a great suggestion to help alleviate that problem.   So, I guess what I am saying is GO FOR IT.  It's a wonderful idea.   Cheers   Allen         -----Original Message----- From: Peter Muraki [mailto:[EMAIL PROTECTED] Sent: January 2, 2005 11:54 AM To: CML@yahoogroups.com Subject: RE: [CML] 2005 Goals Hi Rob and everyone,   Sorry just a knee jerk reaction.  I have been on many non-profit boards and worked with support and services groups here in the San Francisco Bay Area.   Many individuals are very protective of their accomplishments and what they are trying to accomplish and I tend to be a little insensitive to individual’s feelings.    I also tend to go full boar on meeting my own goals/objectives.  I guess that is why I am a business owner.   Since I am new to this community, I haven’t gotten to know any of you yet.   I have been very fortunate in my life.  I have a moderately successful business (at least to be able to live comfortably).   I have a strong support group in my relationship, friends and family.  I just would like to give something (besides money) to those less fortunate or are isolated (for whatever reason) or need to take a break (especially to caregivers).   Sorry again if I had offended anyone.   I am still very interested in developing a nationwide program for providing Information technology services to individuals and families living with CML who either cannot afford or do not have the knowledge to get connected.   I believe the distribution and dissemination of information and the ability to connect via the internet is a way to be supportive to the widest group of individuals.   Thanks,   Peter From: Rob [mailto:[EMAIL PROTECTED] Sent: Sunday, January 02, 2005 9:04 AM To: CML@yahoogroups.com Subject: Re: [CML] 2005 Goals   Peter,   I was not offended and responded back with some of the details on what the future plans are for CMLHope.Com. I appreciate your offers of assistance.   Rob   ----- Original Message ----- From: Peter Muraki To: CML@yahoogroups.com Sent: Sunday, January 02, 2005 9:19 AM Subject: RE: [CML] 2005 Goals   Hi Hans,   Thanks for your response.  I guess I offended Rob and Jennifer (not sure who they are except that they are the sponsors of the CML support sites), concerning my offer to volunteer.  I would like to discuss with you my thoughts in providing a service and developing a program for providing IT services to individuals and families living with CML.     In regards to time, I am pretty flexible.   Let me know when it is convenient.   My office number is (415)731-2884.   If I am not there, just leave your number and a short message with my assistant.  Otherwise we can e-mail each other.   Thanks,   Peter     From: Hans Matheis [mailto:[EMAIL PROTECTED] Sent: Saturday, January 01, 2005 5:02 PM To: CML@yahoogroups.com Subject: RE: [CML] 2005 Goals   Peter, what a wonderful idea. Besides that I have to share your #1 goal for 2005 and adopt it for myself, I am rather intruigued by your idea of making IT equipment, services and training more accessible. I am the Service Department Manager in the Syracuse location (Central/North NY Area) of the one of the largest computer retailers in the US. I am thinking we should get together at a convenient time and bounce ideas of eachother maybe pool resources and develop a program.  For the members and/or families in the Central/North NY area - please feel free to contact me privately - If I can assist I will be more then happy to do so.   Everybody have a wonderfull 2005 and it shall be the best NEW YEAR ever   Regards   Hans   -----Original Message----- From: Peter Muraki [mailto:[EMAIL PROTECTED] Sent: Saturday, January 01, 2005 12:59 PM To: CML@yahoogroups.com Subject: [CML] 2005 Goals Hi Everyone, I hope everyone had a joyful and uneventful new year celebration.  For the past month I have been preparing my personal and business goals and objectives for 2005.  My #1 personal goal is to work with my doctors in obtaining full remission of my CML (I know it is somewhat out of my control, but I can at least take a very active role in my treatments and work on alternatives for reducing stress, minizing depressive thoughts etc. that might hinder my progress).  One of my other goals is become active within our community by volunteering and providing limited pro bono services to other individuals living with CML.   I am a information technology consultant and own a information technology consulting and training firm.  Since I am fairly new to the club, I have noticed that some individuals have problems getting access to the internet.  Is it lack of computers?  Costs for high speed internet access?  Computer training?  If lack of computer is an issue, my company is always swapping older computers (work just fine and are quite usuable to access the Internet) from my clients and donating the computers to non- profits.  I would be happy to start donating these older computers to individuals living with CML who either need a computer or replace their existing computers.  I can also try to work with SBC in developing a lifeline program to provide high speed internet access for free or reduced costs (I am sure there is already a program out there.  Does anyone know?).   I have been thinking of developing a program for my trainers provide free one-on-one computer training to individuals and their families living with CML (San Francisco Bay Area only).  The training could not only teach computer literacy but also training on newer versions of computer applications (such as, Windows XP, Microsoft Office products) for individuals wanting to get back into the workforce. I plan to join my local chapter of the Leukemia/Lymphoma Society.  But I am interested in providing services and support directly to individuals and families living with CML.   I am a bit leery of just donating money to large organizations.  I am also not great at counseling and listening (personal limitation of mine).   So if there are any services that is not being fulfilled for individuals and families living with CML, please let me know. Thanks, Peter dx 9/04 New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. 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