Thank you all, I am currently being treated at Memorial Sloan Kettering, needless to say, I have faith in their knowledge of available treatments. Currently I guess I am just scared, I am also being treated for HIV (19 years) with protease inhibitors, my case has many doctors scratching at their foreheads. So all the 'hiccups' that I am having are due to the two diseases and treatments fighting each other, I have been on gleevec for 20 months now and am just now accepting the fact that I may have reached my limit of treatment effectiveness. I am hoping for something that just does not seem to be a reality, a new treatment that has FDA approval. I do not meet the requirements to be in any new clinical trials because my case will not end with a positive response and we all know that these drug barons won't tackle a losing battle, it won't look good in the end report. Again thanks to everyone for the concerned e-mails and well wishes, you've touched my blackened and blue heart.
--- In [email protected], "hey00nanc" <[EMAIL PROTECTED]> wrote: > > --- In [email protected], "Dean" <[EMAIL PROTECTED]> wrote: > > > > Platelets dropping, HBG too high, RBC too high, unable to use the > bathroom for days on > > end. Can't eat, Gleevec shut down my sphincters, cannot evacuate > bowels unless all liquid. > > Is there nay other medication for CML? > _______________ > > Hi Dean, > I don't know if you have given more history before on the list, but > maybe you can (again?). When were you dx and what has your treatment > been to date? > > What I am really wondering about is the high red cells? I am not > familiar with that being part of CML. CML is a white cell disease. > Do you know for sure that you have the correct diagnosis? > Were you treated with hydrea initially? and how did you tolerate that > medication (in comparison to your present problems). > Can you go back on hydrea until one of the new drugs is available? > > I do agree with Cheryl-Anne that it might be appropriate for you to > have an evaluation with a cml specialist if you have not done that and > it is an option for you. > > just FYI....people do survive a long time on hydrea, so maybe that is > an option for now. > > Nancy C. ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
