Re: [CML] rad trial update

[ICANDOALLTTC]

Hi Karen, Did the Dr mention that you can have blood apheresis to clean those platelets and WBC; also Agrylyn will bring them down. I had both those things done as the Dr was afraid of stroke with the high platelets. I noticed that not many Drs had the blood apheresis done on patients. How many in this group had platelets in the millions and then had blood aphereisis done? After getting out of the hospital(getting the apheresis done) my platelets soared right back up in the millions. He then put me on Agylyn and Hydrea. The blood counts then crashed so I had to be taken off everything. Finally everything settled down and now my blood is in the normal range. Hang in there; it will get better. Jeanie<3 In a message dated 1/18/2005 6:47:46 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Hi all...  Had my 2 week trial visit today.  WBC is down from 11.8 2 weeks ago to 10.8. I was hoping it would be a bigger decrease, but at least they are still going in the right direction. Discouraging though that my platlets started to come down (below a million) and now they are back over a million.  Stubborn platlets.  The dr is pretty certain that my rash on my hands and feet is a gleevec rash (grade 1/2 whatever that means).  I have been using the aveeno anti-itch cream which helps the itching.  He also told me to take benedryl. He also said my mouth sores are probably some sort of herpes virus and I complained that I was getting tired of eating nothing but soup and icecream (and not even loosing weight!!!).  The lidocan helps for a few minutes, but not even long enough to eat a meal. So he prescriped Acyclovir. Again he classified them as grade 1/2.  I also asked about the "fragile skin" and he concludes that it is probably because my platlets are not functioning well! ...  I also asked about the bms trial at DFCI and he says its still a couple of months away...  -karen New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: cml@yahoogroups.com Subscribe:  [EMAIL PROTECTED] Unsubscribe:  [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED]  CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Sponsor ADVERTISEMENT Yahoo! Groups Links To visit your group on the web, go to: http://groups.yahoo.com/group/CML/   To unsubscribe from this group, send an email to: [EMAIL PROTECTED]   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.