-Mike, I would be interested in hearing more of your story. When and where were you diagnosed and treated. If you don't mind sharing, you can email me at [EMAIL PROTECTED]
I have to admit, I have not been very open to this idea but keep it on the back burner. Thanks. Dianne -- In [email protected], M <[EMAIL PROTECTED]> wrote: > Hello Diane > > My name is MIke. I had an unrelated BMT over 5 years ago. I am totally healthy...no meds...normal counts...normal life. > > I would urge you to start the search for a donor immediately. There are medications that can be given to keep your counts down. Talk to your doctors. The BMT option is not an easy one, but for me it was the only one. I did not want to take drugs the rest of my life. Don't be afraid!!! > With the right doctors and the right attitude..this disease can be beaten!! > > I would love to talk to you more about this. If you have any questions...please e-mail me! > > Mke > > hey00nanc <[EMAIL PROTECTED]> wrote: > > --- In [email protected], "decesareds" <[EMAIL PROTECTED]> wrote: > > > > > Nancy,and friends who have been following our stories..... > > I just got the word from Dr. Talpaz and I must admit that I'm a bit > > disappointed. After visiting him, I felt so good. Now, I feel like > > a just got a kick in the butt! Only 5 of the 20 cells analyzed were > > negative which means resistance to Gleevec is definately a > > possibility. My molecular studies show a high level of disease, > also. > > He has suggested trying to take 800 mg. to see if it's a real issue > > of resistance. I will return in July. I guess I must seriously > start > > considering other options - BMS being 1st on my list. I would love > > to hear from others who have been down this road. I'm a bit shaken. > > Dianne > _____________ > > Dianne, > I am so sorry to hear about your latest results. I think that they > only way for there to be this big of turn-around in your results is > for you to have a mutation. > > Personally, I think this calls for mutation testing ASAP so that you > do understand your options better. MDACC has not been real good it > seems for mutation testing 'on demand'. OHSU and UCLA seem to honest > this request better. I would not wait until July....and you know you > have not done great with 800mg in the past. > > I have a friend who just returned from her follow-up with Dr. Druker. > She was recently tested for a mutation because her results jumped from > 30% to 75% in ?? 6 months. He identified her mutation and just the > other day he was able to show her a chart of how much of a dose it > would take with IM, AMN and BMS to treat her.....this must be from the > lab. > > Dianne, any chance you can consult with Dr. Druker? I know that you > could get in in a reasonable time...OHSU is in the boonies and not > swamped!! > > Hang tough turtle girl.......one of the new drugs should be an answer > for you....but again, I would not just twiddle my thumbs until July. > Write me privately if you need more info. > > Maui Nanc > > > > > > New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com > > Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com > > CML (Chronic Myelogenous Leukemia Support List) > --------------------------------- > Part Of CMLHope.Com > An International Community Of CML Patients > For more information: http://cmlhope.com > > Post Message: [email protected] > Subscribe: [EMAIL PROTECTED] > Unsubscribe: [EMAIL PROTECTED] > Change To No Mail/Web: [EMAIL PROTECTED] > Change To Digest: [EMAIL PROTECTED] > Change To Email: [EMAIL PROTECTED] > List Help: [EMAIL PROTECTED] > CML Group Web Site http://groups.yahoo.com/group/CML > > > > Yahoo! Groups SponsorADVERTISEMENT > document.write(''); > > --------------------------------- > Yahoo! Groups Links > > To visit your group on the web, go to: > http://groups.yahoo.com/group/CML/ > > To unsubscribe from this group, send an email to: > [EMAIL PROTECTED] > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. > > > __________________________________________________ > Do You Yahoo!? > Tired of spam? Yahoo! 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