mom started on gleevec shortly after being diagnosed (8/02) and had a terrible reaction. she broke out into a terrible platelet rash from her platelet level going incredibly low. her dr tried her on a lower dosage, but the same thing started to happen again. then mom tried interfuron (sp?) but that dropped her hemoglobin so low she was getting shots (not procrit but something like that) too regularly. now her dr is looking into the new drug trials for her because those others didn't work. right now she takes hydrea and it's doing ok, i guess. nothing short of remission is really good enough for me, but i'll take this. at her last appt, her WBC was 30K, hemo 11.5 and platelets were terrific at 130 or so. these are numbers her dr is pleased with, especially since from 12/28 through 1/3 she was in the hospital with double pneumonia. crazy. wish i was able to explain better, but her and dad go to the appts since i live four hours away from them.
--- In [email protected], [EMAIL PROTECTED] wrote: > Why is your MOm on Hydrea and not Gleevec? > Jeanie<3 > In a message dated 1/26/05 10:50:34 PM Pacific Standard Time, [EMAIL PROTECTED] > writes: > > > it's so nice to be able to come to this board and communicate with > > people who don't think i'm crazy. my mom takes hydrea (sp?) and her > > skin is very very thin. she has frequent nosebleeds, cracks all > > over her hands, and a cut on her leg took forever to heal because > > just putting medicine on it would open it back up. she swears to me > > that her doctor is terrific but i do wonder why it took him months > > before he accepted it could be from the hydrea. i'm just thankful > > it's not worse. she's careful and mainly just deals with the > > cracked skin on her hands. > > best wishes to all, sarah > > ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/0iazvD/5WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
