Glad you found us, sorry you had to.

I am wondering if you’ve had any mutation testing?  Also, have you or your doctor considered any of the new drugs in trials?

I had a BMT and, although I am only slightly familiar with your personal situation, I will say that it requires a whole team approach.  A team of doctors and, most important, a team of friends an family, to make it work.   I am assuming there is a social work-type that has talked to you about all of the care after the BMT, etc.  How is your support system?

You sound like an incredibly strong willed and strong minded person-wonderful traits for any BMT’er!!

If you have specific BMT questions, let me know. 

In the meantime, maybe do some research on the trial drugs?

 

Geri Sehnert



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