Hello Heidi,
Sorry that you are still 100% Ph+ after a year and a bit. You certainly have your hands full being a single Mom and caregiver to your Mother. I haven't read what others may have mentioned to you here, so I do not know if you have already been asked this question. I was wondering since you are being seen at UCLA have they spoken to you about the potential for the new trial of the new BMS drug? I do understand that a Trisomy 8 is a scary thing, but if my memory serves me correctly, there have been a few people here on this list with a trisomy 8 that seems to have resolved mysteriously on its own after a while. However, since you have decided to go for a BMT/SCT I am not going to say anything to dampen your determination as I believe it is very important that once you are decided you just must approach it with every bit of conviction for the best possible outcome. I do want to say though that it seems that since you spend a good deal of time looking after lots of people that you get comfortable with the fact that this will be a time when you can and should let other people look after you. Please make sure before you go in for the SCT that you have a good enough support group around you that can look after the things that are most important so that you can completly focus on you getting better and recovering 100%. I know what it is like being the one to do it all and I am still learning how to let other people help me once in a while. Best of luck to you on this part of your journey and I hope you can keep us posted on your quest for the cure. Warmly, Cheryl-Anne Heidi Galli <[EMAIL PROTECTED]> wrote: > My Story: > My name is Heidi I am 45 years old. I was dx'd > September 25 2003. That in itself is a crazy story but > I tell it some other time. At dx my wbc's were 455,000 > hgb 5.7 hct 16 platelets 60,000. I was working full > time, a single mom 2 kids and a caregiver for my 76 > year old mom. I was wiped out..Started all the routine > meds Hydrea etc immediatly and then Gleevec in a > couple of months. My day to day (or week to week > )hemotology is terrific, wbc around 4.5 hgb 10 hct 39 > plts 180 etc.. BUT... my last BMB still showed 100% > PC+ and a new abnormality of trisomy 8?? I am now > prepping for a BMT to take place in early March at > UCLA. The bone marrow registry has found 3 perfect > matches as I have no eligible family members. This is > a very scary time for me, Did I mention single mom 2 > kids (12 & 9 )no family, full time job home etc.. I > will be working up to 2 weeks before hospitalization > but I need to get my life in order!! > Had a BMB this morning all I can do is hope for a > MAJOR change in my status, but I am determined to go > ahead for a cure, no options other than that. My kids > need me, my Mom needs me, And even my job needs me so > I have to be confident that this is how it will go. > I would love to hear pearsonnly form people who have > gone the BMT route, I know it won't be fun but I feel > well and strong now, will this be helpfull later?? > Feel free to contact me through this forum or personal > e mails to [EMAIL PROTECTED] > Any help would be appreciated. > Anyone in the LA area? > Thanx > Heidi > > > > __________________________________ > Do you Yahoo!? > Yahoo! Mail - Easier than ever with enhanced search. Learn more. > http://info.mail.yahoo.com/mail_250 ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
