Hi Linda, How are you. I still think how nice it was to meet you in 2003 (hum it was 2003 wasn't it?) and I hope we can do that again some time. I am going to be a single woman and I probably will be much better lunch company the next time as I was so unhappy with my life when we got together. I just had to laugh when you said they did a MRI on your head and found nothing!! I know it wasn't meant to be funny but I want to thank you for the well needed smile and say thank you, I needed that! Can you tell us what Dr Sawyers says for you about BMB? I would be very grateful to hear what he has reccomended to you about them. Please email me privately if you like. They just did a brain MRI of me too, and also found nothing. I am in the same boat with recall problems, and it can be quite frustrating. I also have ringing in my head that drives me mad at times. Diazide helped this at first, but it is still a drag. Lots of love, xxx Linda in Ca
--- In [email protected], "Linda " <[EMAIL PROTECTED]> wrote: > > Suzan, > I am one of the long term Gleevec users. I was in the Phase One > Trials and began in Aug. 1999. I have struggled for a long time > with word recall problems as you described. Mine seems to be slowly > getting worse. I do alot of word association in my head trying to > remember what I'm trying to say. It's hard to describe because in > the middle of a sentence the words just aren't there. (I find > myself trying to make up other things to say or getting the wrong > words to fill in the blanks. No one says they notice it, but I > notice the people I'm talking to trying to fill in the blanks for me. > Just tell your doctor so it's documented in your records. Back > about a year ago they did an MRI on my head and found nothing. > > I still feel very fortunate to be on Gleevec because when I started > Interferon was the only choice outside of BMT. I don't work anymore > because of fatigue and the memory thing. I enjoy life and know my > limits. > > Good luck to you and everyone on our lives with CML & Gleevec. Soon > we may even have something better than Gleevec. > > Linda B. > Diagnosed Oct. '97 > Gleevec since Aug. 99 > PCRU since Jan. 2000 > > --- In [email protected], Suzan Collins <[EMAIL PROTECTED]> wrote: > > I have had all these side effects except I don't recall the heart > palpations. When it comes to memory loss I also have word recall > problems. I will be in the middle of a sentence and know what word I > want but can not recall it. I have found that since I'm not working > at the moment this has improved. > > Suzan ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
