Hi Sylvain, thanks for your reply - I was getting myself quite worked up. I've been on Glivec for 6 months, but have been having problems with low count. My 6 month BMA had me in CCR but 60% of my cells showed trisomy 8. Sorry to hear that you're still 100% ph+ after all this time - maybe you'll get to try one of the news drugs BMS or AMN? All the best, Barbara--- In [email protected], "sylvain571" <[EMAIL PROTECTED]> wrote: > > Hi Barb, > > I had Trisomy 8 appear in Ph neg cells, 33% in December 2001. At > that time...early days of IM, I was urged to proceed to an unrelated > transplant as it was unclear what this meant. I elected to stay on > IM and hope for it to disappear as it had for a few others. I had a > draw in June of 2002 and it was gone. > > There is still no consensus on what the appearance and disappearance > of abnormal Ph neg cells indicates while on IM. But in general, at > this point, it is not considered a negative indication. I am being > monitored with BMBs every 6 months to monitor the situation and I am > still 100% Ph+ 3 years post Trisomy 8 and 6 .5 years post dx! > > Talk to your doc about a possible dose increase and keep the > faith...your marrow is trying hard to sort itself out...IN YOUR > FAVOUR!! > > Love and Light, > Christine > dx 11/98 > > > > > --- In [email protected], "Barbara Meunier" <[EMAIL PROTECTED]> > wrote: > > > > Is there anyone that can help me with this? I know that it's > > probably not serious, but it's really eating me up - I didn't > sleep > > a wink last night, > > thanks Barbara
------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/0iazvD/5WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
