I agree you maybe should stay on Glivec whilst away and then take the break. Hope you have a lovely time. Apart from Rich, we have heard of several people who have had cml for 10+ years, prior to Glivec. They did not wish to go the interferon route at that time and have remained on Hydrea. They also refused Glivec when it was available as they had been doing so well on Hydrea. Now, I am not recommending this at all, but they are all still here, have not progressed to accelerated phase and are feeling well. I know we are all different and what applies to one will not necessarily apply to another, but it just shows that sometimes cml is VERY slow to progress. After all, the hydrea is reducing their blood counts, but not much else..... Hope this encourages you that taking a Glivec break may be a good thing for you. Take care Annette xx
--- In [email protected], [EMAIL PROTECTED] wrote: > > In a message dated 2/5/2005 12:30:36 A.M. Eastern Standard Time, > [EMAIL PROTECTED] writes: > > Richard has been off Glivec since September > 2004, just on Hydrea. Whilst this has been frustrating having to > have blood counts every couple of days and adjusting the dose so > often due to counts bouncing, he is still in Chronic Phase > > > Oh Annette, thank you so much for telling me this. It is just what I needed > to hear. So, counts can be monitored closely and the patient can be kept on > Hydroxurea? I will be gone for 2 weeks out of the country so that is the > only thing that worries me. I think I will take Gleevec while away just to be on > the safe side,and then when I come home clean myself out again. I just > won't have the luxury of a lab where I am going. I think the doctor's timing is a > bit off, ha! > It is great news that one can remain in chronic without Gleevec for a period > of time, I had thought that not possible, so I am taking heart from your > email. Thank you. God Bless. Lynne A. ------------------------ Yahoo! Groups Sponsor --------------------~--> Help save the life of a child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/0iazvD/5WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
