Hi Casey, You picked a wonderful group for support and information. The group is moving from Yahoo though and you can join the google group. You can send an email to [EMAIL PROTECTED] to subscribe. Rob has put a lot of hard work in keeping this group going. If you have any questions or just want to talk, everyone in the group is very receptive.
My dad was dx in July 2003 and has been on 400 mg of gleevec. He has responded well. Jerry Mayfield's site that someone else mentioned is VERY informative. Take care and I hope your mother does well. Jenny --- kaufmanshawn <[EMAIL PROTECTED]> wrote: > > > Hello everyone. My name is Casey and my mother was > diagnosed with > CML in September of 2001. She began her treatment by > taking > Interferon and self-injected chemo, but that didn't > keep things in > check quite as well as the doctor had hoped, so in > the fall of 2003, > she started on Gleevec (400 mg per day). That put > her into a > remission for about 6 months, but after her last > bone marrow test, > the Philadelphia chromosomes were back :( So...the > doctor is upping > her dose to 600 mg and if her blood work next week > is fine, to 800 > mg. If this doesn't work, she will most likely have > to have a bmt. > The doctor is trying to hold off as long as possible > for that > because of her age (55) and because she has had open > heart surgery. > I've joined the group looking for support (for > myself as well as ay > groups for my mother) and to see if anyone is on any > experimental > therapies that are working... Any input is > appreciated. > > Thanks! :) > > > > > > ------------------------ Yahoo! Groups Sponsor > --------------------~--> > Help save the life of a child. Support St. Jude > Children's Research Hospital's > 'Thanks & Giving.' > http://us.click.yahoo.com/0iazvD/5WnJAA/xGEGAA/8zSolB/TM > --------------------------------------------------------------------~-> > > > New! Sign up for local CML support group meetings in > your local community at http://cml.meetup.com > > Apply for Commercial Real Estate loans online and > submit your deal to dozens of hungry lenders in just > minutes. Loan programs for all types of business and > commercial real estate. Apply anytime at > http://realestatezoo.com > > CML (Chronic Myelogenous Leukemia Support List) > --------------------------------- > Part Of CMLHope.Com > An International Community Of CML Patients > For more information: http://cmlhope.com > > Post Message: [email protected] > Subscribe: [EMAIL PROTECTED] > Unsubscribe: [EMAIL PROTECTED] > Change To No Mail/Web: [EMAIL PROTECTED] > Change To Digest: [EMAIL PROTECTED] > Change To Email: [EMAIL PROTECTED] > List Help: [EMAIL PROTECTED] > CML Group Web Site http://groups.yahoo.com/group/CML > > > Yahoo! Groups Links > > > [EMAIL PROTECTED] > > > > > > __________________________________ Do you Yahoo!? Yahoo! Mail - Easier than ever with enhanced search. Learn more. http://info.mail.yahoo.com/mail_250 ------------------------ Yahoo! Groups Sponsor --------------------~--> Give the gift of life to a sick child. Support St. Jude Children's Research Hospital's 'Thanks & Giving.' http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/8zSolB/TM --------------------------------------------------------------------~-> New! Sign up for local CML support group meetings in your local community at http://cml.meetup.com Apply for Commercial Real Estate loans online and submit your deal to dozens of hungry lenders in just minutes. Loan programs for all types of business and commercial real estate. Apply anytime at http://realestatezoo.com CML (Chronic Myelogenous Leukemia Support List) --------------------------------- Part Of CMLHope.Com An International Community Of CML Patients For more information: http://cmlhope.com Post Message: [email protected] Subscribe: [EMAIL PROTECTED] Unsubscribe: [EMAIL PROTECTED] Change To No Mail/Web: [EMAIL PROTECTED] Change To Digest: [EMAIL PROTECTED] Change To Email: [EMAIL PROTECTED] List Help: [EMAIL PROTECTED] CML Group Web Site http://groups.yahoo.com/group/CML Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/CML/ <*> To unsubscribe from this group, send an email to: [EMAIL PROTECTED] <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/
